Childhood Cancer and Functional Impacts Across the Care Continuum
Childhood Cancer and Functional Impacts Across the Care Continuum

Author: National Academies of Sciences Engineering and Medicine

Publisher:

Published: 2021-09-09

Total Pages:

ISBN-13: 9780309683494

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Since the late 1960s, the survival rate in children and adolescents diagnosed with cancer has steadily improved, with a corresponding decline in the cancer-specific death rate. Although the improvements in survival are encouraging, they have come at the cost of acute, chronic, and late adverse effects precipitated by the toxicities associated with the individual or combined use of different types of treatment (e.g., surgery, radiation, chemotherapy). In some cases, the impairments resulting from cancer and its treatment are severe enough to qualify a child for U.S. Social Security Administration disability benefits. At the request of Social Security Administration, Childhood Cancer and Functional Impacts Across the Care Continuum provides current information and findings and conclusions regarding the diagnosis, treatment, and prognosis of selected childhood cancers, including different types of malignant solid tumors, and the effect of those cancers on childrenâ (TM)s health and functional capacity, including the relative levels of functional limitation typically associated with the cancers and their treatment. This report also provides a summary of selected treatments currently being studied in clinical trials and identifies any limitations on the availability of these treatments, such as whether treatments are available only in certain geographic areas.

Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer
Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer

Author: National Cancer Policy Forum

Publisher: National Academies Press

Published: 2014-05-18

Total Pages: 0

ISBN-13: 9780309294416

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Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer is the summary of a workshop convened by the Institute of Medicine's National Cancer Policy Forum in July 2013 to facilitate discussion about gaps and challenges in caring for adolescent and young adult cancer patients and potential strategies and actions to improve the quality of their care. The workshop featured invited presentations from clinicians and other advocates working to improve the care and outcomes for the adolescent and young adult population with cancer. Cancer is the leading disease-related cause of death in adolescents and young adults. Each year nearly 70,000 people between the ages of 15 and 39 are diagnosed with cancer, approximately 8 times more than children under age 15. This population faces a variety of unique short- and long-term health and psychosocial issues, such as difficulty reentering school, the workforce, or the dating scene; problems with infertility; cardiac, pulmonary, or other treatment repercussions; and secondary malignancies. Survivors are also at increased risk for psychiatric conditions such as anxiety, depression, substance abuse, and suicide and may have difficulty acquiring health insurance and paying for needed care. Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer discusses a variety of topics important to adolescent and young adult patients with cancer, including the ways in which cancers affecting this group differ from cancers in other age groups and what that implies about the best treatments for these cancer patients. This report identifies gaps and challenges in providing optimal care to adolescent and young adult patients with cancer and to discuss potential strategies and actions to address them.

Cancer in Adolescents and Young Adults
Cancer in Adolescents and Young Adults

Author: Archie W. Bleyer

Publisher: Springer Science & Business Media

Published: 2007-09-23

Total Pages: 538

ISBN-13: 3540681523

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This is the first comprehensive book devoted exclusively to cancer in adolescents and young adults. It compiles medical, epidemiological, biological, psychological, and emotional issues of young adults’ oncology. The emphasis is on the differences of the "same" cancer in younger and older patients. Model programs specially designed to care for patients in the age group and surveillance of long-term adverse effects are reviewed.

Riding the Cancer Coaster
Riding the Cancer Coaster

Author: Clarissa Schilstra

Publisher: Createspace Independent Publishing Platform

Published: 2015-10-24

Total Pages: 0

ISBN-13: 9781514208083

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A diagnosis of cancer is devastating at any age. For teenagers and young adults, it presents a unique challenge both socially and emotionally. You strive for independence, but cancer leaves you completely dependent on those around you. At an age when you want nothing but to be with your peers, isolation resulting from a compromised immune system leaves you starving for social contact. When you should be able to start setting goals for the future, you are confronted with the possibility of having no future at all. This all makes staying positive very difficult. Through her own experiences as a two-time cancer survivor, and previous teen cancer patient who faced a forty percent chance of survival, Clarissa Schilstra has learned a great deal about all of these challenges and how to cope with them. In the pages of this book, she shares those stories and strategies, in an effort to provide a guide through the emotional roller coaster that is cancer treatment and life as a cancer survivor. A foreword by Lori Wiener, PhD, DCSW, FAPOS is included.

Cancer and the Family
Cancer and the Family

Author: Lea Baider

Publisher:

Published: 1996-05-27

Total Pages: 440

ISBN-13:

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This volume is the result of many years of clinical research by medical and health care professionals working with cancer patients and their families. It demonstrates the impact of cancer at different stages of a patient's life, and how certain factors influence treatment and management.

Life After Cancer in Adolescence and Young Adulthood
Life After Cancer in Adolescence and Young Adulthood

Author: Anne Grinyer

Publisher: Routledge

Published: 2009-05-07

Total Pages: 207

ISBN-13: 1134022441

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Research has shown that cancer, and surviving cancer, in adolescence and young adulthood presents distinctive problems medically, socially and psychologically. This book offers a glimpse into a previously under-researched area and contributes to a better understanding of the needs of young adults post cancer.

Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care
Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care

Author: Annah N. Abrams

Publisher: Springer

Published: 2015-11-16

Total Pages: 413

ISBN-13: 3319213741

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This textbook walks clinicians through the psychosocial issues and challenges faced by children and adolescents with cancer and their families. Through a developmental lens, the text provides guidance and resources that will enable clinicians to understand the physical and emotional impact of the disease from diagnosis onwards, to work with families in distress, and to diagnose and treat a range of behavioral, psychological, and psychiatric issues. The book also addresses the burgeoning fields of social media, complementary therapies, palliative care, and survivorship. Among the variety of useful resources supplied are assessment tools, websites, and additional reading materials. The psychosocial issues that arise for children and their families during the course of treatment are an important yet often overlooked aspect of pediatric oncology care. The reader will find that Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care covers these issues at the forefront of clinical care in a direct and approachable way, integrating research literature with practical clinical guidance.

Investing in the Health and Well-Being of Young Adults
Investing in the Health and Well-Being of Young Adults

Author: National Research Council

Publisher: National Academies Press

Published: 2015-01-27

Total Pages: 431

ISBN-13: 0309309980

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Young adulthood - ages approximately 18 to 26 - is a critical period of development with long-lasting implications for a person's economic security, health and well-being. Young adults are key contributors to the nation's workforce and military services and, since many are parents, to the healthy development of the next generation. Although 'millennials' have received attention in the popular media in recent years, young adults are too rarely treated as a distinct population in policy, programs, and research. Instead, they are often grouped with adolescents or, more often, with all adults. Currently, the nation is experiencing economic restructuring, widening inequality, a rapidly rising ratio of older adults, and an increasingly diverse population. The possible transformative effects of these features make focus on young adults especially important. A systematic approach to understanding and responding to the unique circumstances and needs of today's young adults can help to pave the way to a more productive and equitable tomorrow for young adults in particular and our society at large. Investing in The Health and Well-Being of Young Adults describes what is meant by the term young adulthood, who young adults are, what they are doing, and what they need. This study recommends actions that nonprofit programs and federal, state, and local agencies can take to help young adults make a successful transition from adolescence to adulthood. According to this report, young adults should be considered as a separate group from adolescents and older adults. Investing in The Health and Well-Being of Young Adults makes the case that increased efforts to improve high school and college graduate rates and education and workforce development systems that are more closely tied to high-demand economic sectors will help this age group achieve greater opportunity and success. The report also discusses the health status of young adults and makes recommendations to develop evidence-based practices for young adults for medical and behavioral health, including preventions. What happens during the young adult years has profound implications for the rest of the life course, and the stability and progress of society at large depends on how any cohort of young adults fares as a whole. Investing in The Health and Well-Being of Young Adults will provide a roadmap to improving outcomes for this age group as they transition from adolescence to adulthood.

Paediatric Haematology and Oncology
Paediatric Haematology and Oncology

Author: Simon Bailey

Publisher: Oxford University Press, USA

Published: 2010

Total Pages: 624

ISBN-13: 0199299676

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While survival rates for children with cancer have increased in recent times, the increased use of more aggressive therapies has brought with it significant adverse effects. Therefore, the aim of pediatric oncologists has become to achieve "cure at least cost" by the appropriate reduction of the intensity and/or duration of treatment in carefully identified good prognosis patients. By comprehensively covering these issues, this handbook aims to provide residents in pediatric hematology and oncology, as well as staff in related medical or other healthcare disciplines, with an easily accessible source of information about the basic principles of childhood cancer and leukemia, as well as much of the more detailed specialist knowledge required to care for children with these conditions. Divided into sections to allow quick access to the necessary information, the handbook covers general principles of diagnosis and treatment, short and long term care, and oncological emergencies before moving on to chapters on specific disease. Normal values and useful websites are also included for reference.