This book investigates the ways in which context shapes how cognitive challenges and strengths are navigated and how these actions impact the self-esteem of individuals with dementia and their conversational partners. The author examines both the language used and face maintenance in everyday social interaction through the lens of epistemic discourse analysis. In doing so, this work reveals how changes in cognition may impact the faces of these individuals, leading some to feel ashamed, anxious, or angry, others to feel patronized, infantilized, or overly dependent, and still others to feel threatened in both ways. It further examines how discursive choices made by healthy interactional partners can minimize or exacerbate these feelings. This path-breaking work will provide important insights for students and scholars of sociolinguistics, applied linguistics, medical anthropology, and health communication.
This book investigates the ways in which context shapes how cognitive challenges and strengths are navigated and how these actions impact the self-esteem of individuals with dementia and their conversational partners. The author examines both the language used and face maintenance in everyday social interaction through the lens of epistemic discourse analysis. In doing so, this work reveals how changes in cognition may impact the faces of these individuals, leading some to feel ashamed, anxious, or angry, others to feel patronized, infantilized, or overly dependent, and still others to feel threatened in both ways. It further examines how discursive choices made by healthy interactional partners can minimize or exacerbate these feelings. This path-breaking work will provide important insights for students and scholars of sociolinguistics, applied linguistics, medical anthropology, and health communication. Heidi E. Hamilton is Professor of Linguistics at Georgetown University, USA. She is an expert on the interrelationships between language and health care issues. Her previous works on this topic include Conversations with an Alzheimer’s Patient (1994) and Language and Communication in Old Age (1999).
This study juxtaposes philosophical analysis and clinical experience to present an overview of the issues surrounding dementia. It conveys a strong ethical message, arguing in favour of treating people with dementia with all the dignity they deserve as human beings.
Alison Wray notes that “Alzheimer’s Disease affects language in many different ways. Directly, language processing is undermined by damage to the language areas of the brain. Indirectly, language is compromised by short term memory loss, distortions in perception, and disturbed semantic representation . . . All of this makes AD an obvious focus of interest for linguists and in particular, those interested in the field of pragmatics – yet a striking amount of what is published about AD language is written by non-linguists. AD language is independently researched in at least psychology, neuroscience, sociology, clinical linguistics and nursing. Each discipline has its own methods, theories, assumptions and values, which affect the research questions asked, the empirical approach taken in answering them, and how the evidence is interpreted. Without a more reliable holistic picture informed by linguistic and applied linguistic theory and methods, approaches to diagnosis and care risk being constrained, and may result in a less than satisfactory experience for all those whose daily life involves the direct or indirect experience of AD.” This book is an attempt to address some of the above issues noted by bringing together a group of researchers whose work focuses on interaction in the context of dementia. The authors represent the fields of linguistics, clinical linguistics, nursing, and speech pathology, and each chapter draws on methods associated with discourse analysis and pragmatics to examine how people with dementia utilize language in the presence of cognitive decline. In addition, the book seeks to generate academic discussion on how researchers can move forward to focus greater attention on this topic. In particular, this collection will inspire researchers involved in mainstream theoretical linguistics and pragmatics to turn their attention to the discourse of dementia and investigate what it has to say about our knowledge of language theories, and, in addition, to challenge what we know about ourselves as subjective beings.
The qualitative analysis of naturally occurring discourse in neurogenic communication disorders, specifically in dementia studies, has experienced recent burgeoning interest from wide-ranging disciplines. This multidisciplinarity has been exciting, but has added contextual confusion. This book advances the study of discourse in dementia by systematically exploring and applying different approaches to the same free conversational data sets, collected and transcribed by the authors. The applied methodologies and theories comprise a useful sourcebook for students, researchers, and practitioners alike.
This volume takes the positive view that conversation between persons with dementia and their interlocutors is a privileged site for ongoing cognitive engagement. The book aims to identify and describe specific linguistic devices or strategies at the level of turn-by-turn talk that promote and extend conversation, and to explore real-world engagements that reflect these strategies. Final reflections tie these linguistic strategies and practices to wider issues of the "self" and "agency" in persons with dementia. Thematically, the volume fosters an integrated perspective on communication and cognition in terms of which communicative resources are recognized as cognitive resources, and communicative interaction is treated as reflecting cognitive engagement. This reflects perspectives in cognitive anthropology and cognitive science that regard human cognitive activity as distributed and culturally rooted. This volume is intended for academic researchers and advanced students in applied linguistics, linguistic and medical anthropology, nursing, and social gerontology; and practice professionals in speech-language pathology and geropsychology.
Traditionally, dementia has been defined primarily in terms of loss: loss of cognitive and communicative competencies, loss of identity, loss of personal relationships. People living with dementia have been portrayed as increasingly dependent on others, with their loved ones seen more as care givers than as spouses, children and relatives. However, in the last two decades this view of the person living with dementia as an 'empty vessel' has been increasingly challenged, and the focus has shifted from one of care to one of helping people to live with dementia. With contributions from an international range of expert authors, Living with Dementia strongly advocates this new perspective through in-depth discussion of what people with dementia and their loved ones can do, and how they can actively make use of remaining resources. Topics covered include: - How to involve people with dementia in collaborative activities in the home, and the benefits this has on their cognitive and communicative abilities. - Ways in which identity can be presented and preserved through storytelling, and the impact on identity of moving from home into residential care. - The benefits of a 'citizenship' approach to dementia: of recognising that a person living with dementia is an active agent, with the right to self-determination and the ability to exert power over their own lives. This important new contribution to the dementia debate is truly enlightening reading for students across the full range of health and social care disciplines, and offers a fresh perspective to existing practitioners and those who care for people with dementia.
Memory loss is not always viewed purely as a contingent neurobiological process present in an ageing population; rather, it is frequently related to larger societal issues and political debates. This edited volume examines how different media and genres – novels, auto/biographical writings, documentary as well as fictional films and graphic memoirs – represent dementia for the sake of critical explorations of memory, trauma and contested truths. In ten analytical chapters and one piece of graphic art, the contributors examine the ways in which what might seem to be the individual, ahistorical diseases of dementia are used in contemporary cultural texts to represent and respond to violent historical and political events – ranging from the Holocaust to postcolonial conditions – all of which can prove difficult to remember. Combining approaches from literary studies with insights from memory studies, trauma studies, anthropology, the critical medical humanities and media, film and comics studies, this volume explores the politics of dementia and incites new debates on cultures of remembrance, while remaining attentive to the lived reality of dementia.
A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between care partners and patients and has proven successful with thousands of people living with dementia. Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to: · cope with the diagnosis and adjust to the disease’s progression · help the patient talk about the illness · face the issue of driving · make meals and bath times as pleasant as possible · adjust room design for the patient’s comfort · deal with wandering, paranoia, and aggression “A fine addition to Alzheimer's and caregiving collections.”—Library Journal (starred review) “Promises to transform not only the lives of patients but those of care providers…This book is a gift.”—Sue Levkoff, coauthor of Aging Well
An authoritative overview of language and speech disorders, featuring new and updated chapters written by leading specialists from across the field The Handbook of Speech and Language Disorders, Second Edition, provides timely and authoritative coverage of current issues, foundational principles, and new research directions within the study of communication disorders. Building upon the reputation of the landmark first edition, this volume offers an exceptionally broad and in-depth survey of the field, presenting original chapters by internationally recognized specialists that examine an array of language, speech, and cognitive disorders and discuss the most crucial aspects of this evolving discipline while providing practical information on analytical methods and assessment. Now in its second edition, the Handbook features extensively revised and refocused content throughout, reflecting the latest advances in the field. Original and updated chapters explore diverse topics including literacy and literacy impairments, patterns of normal and disordered language development, hearing impairment and cochlear implants, language acquisition and language delay, dementia, dysarthria, ADHD, autism spectrum disorder, and many others. This acclaimed single-volume reference resource: Provides 26 original chapters which describe the latest in new research and which indicate future research directions Covers new developments in research since the original publication of the first edition Features in-depth coverage of the major disorders of language and speech, including new insights on perception, hearing impairment, literacy, and genetic syndromes Includes a series of foundational chapters covering a variety of important general principles, including labelling, diversity, intelligibility, assessment, and intervention The Handbook of Speech and Language Disorders, Second Edition, is essential reading for researchers, scholars, and students in speech and language pathology, speech, language and hearing sciences, and clinical llinguistics, as well as active practitioners and clinicians.
