Issues in Ethics Research and Application / 2013 Edition is a ScholarlyEditions™ book that delivers timely, authoritative, and comprehensive information about Medical Ethics. The editors have built Issues in Ethics Research and Application: 2013 Edition on the vast information databases of ScholarlyNews.™ You can expect the information about Medical Ethics in this book to be deeper than what you can access anywhere else, as well as consistently reliable, authoritative, informed, and relevant. The content of Issues in Ethics Research and Application: 2013 Edition has been produced by the world’s leading scientists, engineers, analysts, research institutions, and companies. All of the content is from peer-reviewed sources, and all of it is written, assembled, and edited by the editors at ScholarlyEditions™ and available exclusively from us. You now have a source you can cite with authority, confidence, and credibility. More information is available at http://www.ScholarlyEditions.com/.
#1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.
Brings together international scholars across the social and behavioural sciences and education to address those ethical issues that arise in the theory and practice of research within the technologically advancing and culturally complex world in which we live.
This book examines the theoretical and practical aspects of ethical dilemmas in qualitative research. To many researchers, `ethics' has been associated with following ethical guidelines and gaining ethics approval from academic bodies. However, the complexities of researching private lives and placing accounts in the public arena increasingly raise ethical issues which are not easily solved by rules and guidelines. This book addresses the gap between research practice and ethical principles that inform it, focusing on responsibility and accountability in applied feminist research practice. The book explores ethical issues in research from a range of angles, including: - Access and informed consent - Negotiating participation - Rapport - The intentions of feminist research - Epistemology and data analysis - Tensions between being a professional researcher and a `caring' professional The book includes practical guidelines to aid ethical decision-making rooted in feminist ethics of care. Ethics in Qualitative Research is designed for academics, professionals and students carrying out research, and is a timely teaching text for ethics in research across the social sciences.
Ethical questions are at the centre of research with children and young people. This clear and practical text informs students and researchers about the relevant laws and guidelines and current debates in research ethics. Priscilla Alderson and Virginia Morrow cover ethics at every stage of research, and with all kinds of young research participants, particularly those who are vulnerable or neglected. They break down the process of research into ten stages, each with its own set of related questions and problems, and they show how these need to be addressed. This practical book is essential reading for anyone who conducts or reviews research with children or young people. Priscilla Alderson is Emerita Professor of Childhood Studies at the Institute of Education University of London. Virginia Morrow is Senior Research Officer in the Department of International Development, University of Oxford.
Education in the responsible conduct of research typically takes the form of online instructions about rules, regulations, and policies. Research Ethics takes a novel approach and emphasizes the art of philosophical decision-making. Part A introduces egoism and explains that it is in the individual's own interest to avoid misconduct, fabrication of data, plagiarism and bias. Part B explains contractualism and covers issues of authorship, peer review and responsible use of statistics. Part C introduces moral rights as the basis of informed consent, the use of humans in research, mentoring, intellectual property and conflicts of interests. Part D uses two-level utilitarianism to explore the possibilities and limits of the experimental use of animals, duties to the environment and future generations, and the social responsibilities of researchers. This book brings a fresh perspective to research ethics and will engage the moral imaginations of graduate students in all disciplines.
Introduces students to ethical theory and philosophy. This work provides practical guidance on what ethical theory means for research practice; and, offers case studies to give real examples of ethics in research action.
With the primary objective of raising ethical sensibility, this volume details the ethical problems and dilemmas faced by applied social science researchers. Issues such as the use of deception, the participant's right to privacy and informed consent, and the potential harm of public disclosure are confronted. The author discusses the need to review ethical problems and their implications in the context of current ethical standards in both society and the scientific community. Case studies illustrate unanticipated ethical dilemmas which might emerge during a research project. Issues are presented and interpreted clearly so that their complexity can be penetrated and potential solutions envisioned. The volume also includes specific methodolo
There has been an increasing interest in research ethics over the last decade given the increasing ethical regulation of social research. 'Ethical literacy' encourages researchers to understand and engage with the ethical issues that emerge in the process of research. This book provides a short, succinct and accessible overview of the field, highlighting the key issues and everyday ethical dilemmas that researchers are likely to face in different contexts. Covering a range of methods, the book provides clear guidance for researchers on how to identify an approach that fits with their moral and intellectual framework. It explores ethical issues relating to 'traditional' research methods as well as to new and emerging methods and approaches - particularly visual and online methods. Illustrated throughout with real-world examples, this book also includes an annotated bibliography of key texts and other helpful resources. What are Qualitative Research Ethics? will be a vital resource for social science researchers across a range of disciplines.
Recent scandals and controversies, such as data fabrication in federally funded science, data manipulation and distortion in private industry, and human embryonic stem cell research, illustrate the importance of ethics in science. Responsible Conduct of Research, now in a completely updated second edition, provides an introduction to the social, ethical, and legal issues facing scientists today.
