Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts

Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts

Author: Gabriele Lucius-Hoene

Publisher: Oxford University Press

Published: 2018-10-04

Total Pages: 431

ISBN-13: 0192529412

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What is it like to live with an illness? How do diagnostic procedures, treatments, and other encounters with medical institutions affect a patient's private and social life? By asking these types of questions, illness narratives have gained a reputation as a scientific domain in medicine in the last thirty years. Today, a patient's story plays an important role in doctor-patient communication and the development of a healing relationship. However, whereas patient experiences have been well acknowledged, methodologically reflected upon and widely collected as research data, less consideration has been invested in exploring how they work in practice. Used in the context of diagnosis, treatment, and teaching, patient stories give us a new perspective on how healthcare could be improved. Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts highlights the problems, challenges, and opportunities we face when using patient perspectives in practice and research in a clear format to provide readers with a comprehensive overview of this field. It investigates the epistemological foundations and communicational properties of illness narratives, as well as the pragmatic effects of using them as clinical and educational instruments. Significantly, it presents new examples from patient intakes and interviews that illustrate the disparity in communication between patients and medical professionals. The studies in this book also evaluate the experiences of medical practitioners and students who consciously use patient narratives as a tool for improved communication and diagnosis. Divided into eight sections with practical examples for medical teaching and practice, this book covers the use of patient narratives in communication training and decision making across medicine and psychotherapy. In addition, it reflects on the ethical aspects of working with a patient's personal experience of their illness, reports on cultural differences across the globe, and analyses how patients' stories are used in politics and the media. Written by scholars from multiple disciplines across clinical and theoretical fields, this rich resource provides a critical stance on the use of narratives in medical research, education, and practice.


The SAGE Handbook of Social Studies in Health and Medicine

The SAGE Handbook of Social Studies in Health and Medicine

Author: Susan C. Scrimshaw

Publisher: SAGE

Published: 2021-12-01

Total Pages: 649

ISBN-13: 1529761948

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With new chapters on key topics such as mental health, the environment, race, ethnicity and health, and pharmaceuticals, this new edition maintains its multidisciplinary framework and bridges the gap between health policy and the sociology of health. It builds upon the success of the first by encompassing a range of issues, studies, and disciplines. The broad coverage of topics in addition to new chapters present an engagement with contemporary issues, resulting in a valuable teaching aid. This second edition brings together a diverse range of leading international scholars with contributors from Australia, Puerto-Rico, USA, Guatemala, Germany, Sri Lanka, Botswana, UK, South Sudan, Mexico, South Korea, Canada and more. The second edition of this Handbook remains a key resource for undergraduates, post-graduates, and researchers across multidisciplinary backgrounds including: medicine, health and social care, sociology, and anthropology. PART ONE: Culture, Society and Health PART TWO: Lived Experiences PART THREE: Health Care Systems, Access and Use PART FOUR: Health in Environmental and Planetary Context


Narrative Based Medicine

Narrative Based Medicine

Author: Trisha Greenhalgh

Publisher: BMJ Books

Published: 1998-11-09

Total Pages: 304

ISBN-13: 9780727912237

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Edited by two leading general practitioners and with contributions from over 20 authors, this book covers a wide range of topics to do with narrative in medicine. It includes a wealth of real examples of patients narratives and addresses theoretical and practical issues including the use of narrative as a therapeutic tool, teaching narrative to students, philosophical issues, narrative in legal and ethical decisions, narrative in nursing, and the narrative medical record.


Navigating Digital Health Landscapes

Navigating Digital Health Landscapes

Author: Anna Lydia Svalastog

Publisher: Springer Nature

Published: 2020-12-07

Total Pages: 334

ISBN-13: 9811582068

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Navigating Digital Health Landscapes explores how users navigate the internet when searching for health information. It is the first book to conceptualise the internet as a landscape and the ways in which people navigate this digital world, including the complex entanglements between on and offline domains. It does so through a range of disciplinary perspectives from expert contributors across STS (science and technology studies), social anthropology, biomedicine, ethics and law, linguistics, social policy and computer scientists working in more technical aspects of tracking and visualising data and information on the internet. The book provides a unique and valuable contribution for those wishing to understand how digital technologies are affecting the design, implementation and use of digital systems to manage health information in different contexts.


Music and Creativity in Healthcare Settings

Music and Creativity in Healthcare Settings

Author: Hilary Moss

Publisher: Routledge

Published: 2021-03-03

Total Pages: 122

ISBN-13: 1000380289

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Through a series of vivid case studies, Music and Creativity in Healthcare Settings: Does Music Matter? documents the ways in which music brings humanity to sterile healthcare spaces, and its significance for people dealing with major illness. It also considers the notion of the arts as a vessel to explore humanitarian questions surrounding serious illness, namely what it is to be human. Overarching themes include: taking control; security and safety; listening; the normalization of the environment; being an individual; expressing emotion; transcendence and hope and expressing the inexpressible. With an emphasis on service user narratives, chapters are enriched with examples of good practice using music in healthcare. Furthermore, a focus on aesthetic deprivation contributes to debates on the intrinsic and instrumental value of music and the arts in modern society. This concise study will be a valuable source of inspiration for care givers and service users in the health sector; it will also appeal to scholars and researchers in the areas of Music medicine and music Therapy, and the Medical Humanities.


Understanding and Using Health Experiences

Understanding and Using Health Experiences

Author: Sue Ziebland

Publisher: Oxford University Press

Published: 2013-04-04

Total Pages: 180

ISBN-13: 0199665370

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Improving patient experience is a global priority for health policy-makers and care providers. This book critically examines the various ways in which people's experience of health and healthcare can be recorded, analysed and therefore improved.


Cultural Contexts of Health

Cultural Contexts of Health

Author: Centers of Disease Control

Publisher: Health Evidence Network Synthe

Published: 2016-10-24

Total Pages: 0

ISBN-13: 9789289051682

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Storytelling is an essential tool for reporting and illuminating the cultural contexts of health: the practices and behavior that groups of people share and that are defined by customs, language, and geography. This report reviews the literature on narrative research, offers some quality criteria for appraising it, and gives three detailed case examples: diet and nutrition, well-being, and mental health in refugees and asylum seekers. Storytelling and story interpretation belong to the humanistic disciplines and are not a pure science, although established techniques of social science can be applied to ensure rigor in sampling and data analysis. The case studies illustrate how narrative research can convey the individual experience of illness and well-being, thereby complementing and sometimes challenging epidemiological and public health evidence.


Neurogenic Communication Disorders and the Life Participation Approach

Neurogenic Communication Disorders and the Life Participation Approach

Author: Audrey L. Holland

Publisher: Plural Publishing

Published: 2020-06-30

Total Pages: 267

ISBN-13: 1635502896

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The Life Participation Approach to Aphasia (LPAA) is an evolutionary change in the way practitioners view aphasia intervention. By focusing on meeting the needs of individuals affected by aphasia, LPAA can produce real, meaningful enhancement to the quality of life. Neurogenic Communication Disorders and the Life Participation Approach: The Social Imperative in Supporting Individuals and Families breaks down the past, present, and future of the LPAA movement with contributions from a range of new and experienced practitioners. In addition, this text provides a roadmap for professionals interested in incorporating person-centered intervention for aphasia and other neurogenic communication disorders, including primary progressive aphasia, dementia, and traumatic brain injury. Within this book, clinicians will find tips, tools, and guidance for integrating a life participation approach into their practice, as well as first-hand descriptions of the positive benefits this approach can have for those living with neurogenic communication disorders.


Towards a Critical Political Ethics

Towards a Critical Political Ethics

Author: Hille Haker

Publisher: Schwabe Verlag (Basel)

Published: 2020-05-13

Total Pages: 398

ISBN-13: 3796541976

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In her book Hille Haker pleads for a radical course correction of Catholic social ethics by focusing on three foundational concepts of social ethics: human rights, human dignity and moral responsibility based on the interplay of compassion, solidarity and justice. The author argues for a historically and politically mediated ethics that replaces the natural law ethics. The theoretical reflections of the book are carried out by the practical social-ethical studies: The politicization of individual human rights is examined in the contexts of migration, religious freedom, and criminal justice. Human dignity is spelled out as "vulnerable agency" allowing for a sharp criticism of Catholic sexual morality and neglect of women's human rights.The book ends with a discussion of the relationship of political theology and political ethics and its social-ethical implications for the further development of a Critical Political Ethics.