I Have Autism... What'll I Do Without You, Mom?

I Have Autism... What'll I Do Without You, Mom?

Author: Amalia Starr

Publisher:

Published: 2014-10-15

Total Pages: 254

ISBN-13: 9780982137796

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How comforting would it be for you to know that you can help your adult child live well after you are gone? I believe this knowledge would be a great relief to you-and that is why I wrote this book. When Brandon, my 40-year-old autistic son, said, "I don't know what I would do without you, Mom," I knew I had to create a detailed written plan for his future. I have created a comprehensive, step-by-step plan and a personalized Instructional Care Manual for you to complete so that others can take care of and help your child live well. I will show you how to find the right people "to stand in for you" by creating a network of supportive individuals who can assist and be an advocate for your child. My Step-In Parenting Network program (SIPN) will help you identify potential "step-in parents" who can continue to love and care for your child when you no longer can. I've also included detailed chapters on independence because what you do today to help your child reach maximum independence will affect the quality of the rest of his or her life. Working on "letting go" of a special needs adult child is a sensitive area that many parents are afraid to face head on. However, the more your child knows and can learn to do, one step at a time, the easier it will be for your son or daughter to continue on. We cannot pretend that our children will be magically taken care of in the future if we don't do something about it today. This is why the Instructional Care Manual (ICM) will be crucial for every child with special needs. It will follow them wherever they go for the rest of their lives. I wrote this book to inspire you to move forward, knowing that there are things you can do to ensure that your child is not alone or forgotten. By taking action now, you will feel as empowered and relieved as I have become. This book is your best opportunity to be heard and to help your adult child reach maximum independence and live the best life possible-while you are still here, and after you're gone. "Amalia Starr takes her readers by the hand and walks this journey with us with sensitivity and decades of wisdom. Every special needs parent should read this book, which deals with the reality that our children need to be prepared to outlive us. From tips on how to launch our adult children into the maximum level of independent living to planning for them to thrive after we have left this planet, this book has it all-encouragement, practical advice, and the forms to create a personalized Care Manual." Bobbi Sheahan, author of What I'd Wish I'd Known About Raising a Child With Autism


We're Not Broken

We're Not Broken

Author: Eric Garcia

Publisher: Houghton Mifflin

Published: 2021

Total Pages: 309

ISBN-13: 1328587843

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"This book is a message from autistic people to their parents, friends, teachers, coworkers and doctors showing what life is like on the spectrum. It's also my love letter to autistic people. For too long, we have been forced to navigate a world where all the road signs are written in another language." With a reporter's eye and an insider's perspective, Eric Garcia shows what it's like to be autistic across America. Garcia began writing about autism because he was frustrated by the media's coverage of it; the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. His own life as an autistic person didn't look anything like that. He is Latino, a graduate of the University of North Carolina, and works as a journalist covering politics in Washington D.C. Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity, they don't need to be fixed. In We're Not Broken, Garcia uses his own life as a springboard to discuss the social and policy gaps that exist in supporting those on the spectrum. From education to healthcare, he explores how autistic people wrestle with systems that were not built with them in mind. At the same time, he shares the experiences of all types of autistic people, from those with higher support needs, to autistic people of color, to those in the LGBTQ community. In doing so, Garcia gives his community a platform to articulate their own needs, rather than having others speak for them, which has been the standard for far too long.


The Autism Mom's Survival Guide (for Dads, too!)

The Autism Mom's Survival Guide (for Dads, too!)

Author: Susan Senator

Publisher: Shambhala Publications

Published: 2010-03-30

Total Pages: 206

ISBN-13: 0834821710

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Given the daily challenges of raising a child with autism, it’s easy for parents to lose themselves and for their overall quality of life to plummet. Susan Senator interweaves the voices of autism parents, researchers, and professionals to offer guidance and encouragement on how to find happiness and fulfillment in the midst of the struggles of raising an autistic child. Topics include: how to handle feelings of despair and hopelessness; finding fun, even during turbulent times; caring for your marriage; and finding a balance between accepting your child as he or she is and seeking new treatments. To learn more about the author, visit her website at susansenator.com.


Life Amplified

Life Amplified

Author: Karen Skogen Haslem

Publisher: AuthorHouse

Published: 2015-03-20

Total Pages: 196

ISBN-13: 1504903420

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If you know one child with autism, you know one child with autism. But not everyone gets that chance. In Life Amplified, Karen Haslem gives readers an honest, intimate, remarkably engaging look at the struggles and triumphs of her oldest son, who has autism. Drawing strength from their faith, the Haslem family strives every day to embrace, not just tolerate, Tituss differences. Written with humor, grace, and a gift for lucid detail, Haslems memoir captures a sequence of vivid episodes that convey the joy, heartache, pride, and terror of being Titusor being Tituss mom. Life Amplified will bring new understanding and inspiration to other families touched by autism, as well as anyone seeking insight into their world.


Turn Autism Around

Turn Autism Around

Author: Mary Lynch Barbera, Ph.D.

Publisher: Hay House, Inc

Published: 2022-03-29

Total Pages: 266

ISBN-13: 1401965539

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Help remediate—and in some cases eliminate—autism and other developmental delays in young children, even in as little as 15 minutes a day with this toolkit of behavioral practices that can be taught at home. Developmental delays and signs of autism usually show up before 18 months of age, yet children are often not diagnosed until they are 4 or 5 years old. In Turn Autism Around, Dr. Mary Barbera explains why parents can't afford to worry and wait in long lines for evaluations and treatment while not knowing how to help their children. She empowers parents, caregivers, and early intervention professionals to regain hope and take back control with simple strategies to dramatically improve outcomes for their children. Dr. Barbera has created a new approach to teaching kids with developmental delays that uses the science of Applied Behavior Analysis (ABA) married with a positive, child-friendly methodology that any parent can use—whether or not their child has delays—to learn to teach communication skills, socialization strategies, as well as tackle sleep, eating, potty training, and behavior challenges in a positive, effective, and lasting way. Turn Autism Around is the first book of its kind that calls attention to an important fact: parents can make a tremendous impact on their child's development through behavioral practices taught at home, even in as little as 15 minutes a day. Her program shows these autism and developmental delays can be remediated, and in some cases, delays can be caught up altogether, if parents intervene while the child is young. This book is for parents of young children aged one-to-five years who are passionate about helping their child as well as learning how they can change the trajectory of their child's and family's life.


Verity

Verity

Author: Colleen Hoover

Publisher: Grand Central Publishing

Published: 2021-10-05

Total Pages: 295

ISBN-13: 153872474X

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Whose truth is the lie? Stay up all night reading the sensational psychological thriller that has readers obsessed, from the #1 New York Times bestselling author of Too Late and It Ends With Us. #1 New York Times Bestseller · USA Today Bestseller · Globe and Mail Bestseller · Publishers Weekly Bestseller Lowen Ashleigh is a struggling writer on the brink of financial ruin when she accepts the job offer of a lifetime. Jeremy Crawford, husband of bestselling author Verity Crawford, has hired Lowen to complete the remaining books in a successful series his injured wife is unable to finish. Lowen arrives at the Crawford home, ready to sort through years of Verity’s notes and outlines, hoping to find enough material to get her started. What Lowen doesn’t expect to uncover in the chaotic office is an unfinished autobiography Verity never intended for anyone to read. Page after page of bone-chilling admissions, including Verity's recollection of the night her family was forever altered. Lowen decides to keep the manuscript hidden from Jeremy, knowing its contents could devastate the already grieving father. But as Lowen’s feelings for Jeremy begin to intensify, she recognizes all the ways she could benefit if he were to read his wife’s words. After all, no matter how devoted Jeremy is to his injured wife, a truth this horrifying would make it impossible for him to continue loving her.


The Verbal Behavior Approach

The Verbal Behavior Approach

Author: Mary Lynch Barbera

Publisher: Jessica Kingsley Publishers

Published: 2007-05-15

Total Pages: 201

ISBN-13: 1846426537

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The Verbal Behavior (VB) approach is a form of Applied Behavior Analysis (ABA), that is based on B.F. Skinner's analysis of verbal behavior and works particularly well with children with minimal or no speech abilities. In this book Dr. Mary Lynch Barbera draws on her own experiences as a Board Certified Behavior Analyst and also as a parent of a child with autism to explain VB and how to use it. This step-by-step guide provides an abundance of information about how to help children develop better language and speaking skills, and also explains how to teach non-vocal children to use sign language. An entire chapter focuses on ways to reduce problem behavior, and there is also useful information on teaching toileting and other important self-help skills, that would benefit any child. This book will enable parents and professionals unfamiliar with the principles of ABA and VB to get started immediately using the Verbal Behavior approach to teach children with autism and related disorders.


Ambiguous Loss

Ambiguous Loss

Author: Pauline BOSS

Publisher: Harvard University Press

Published: 2009-06-30

Total Pages: 166

ISBN-13: 0674028589

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When a loved one dies we mourn our loss. We take comfort in the rituals that mark the passing, and we turn to those around us for support. But what happens when there is no closure, when a family member or a friend who may be still alive is lost to us nonetheless? How, for example, does the mother whose soldier son is missing in action, or the family of an Alzheimer's patient who is suffering from severe dementia, deal with the uncertainty surrounding this kind of loss? In this sensitive and lucid account, Pauline Boss explains that, all too often, those confronted with such ambiguous loss fluctuate between hope and hopelessness. Suffered too long, these emotions can deaden feeling and make it impossible for people to move on with their lives. Yet the central message of this book is that they can move on. Drawing on her research and clinical experience, Boss suggests strategies that can cushion the pain and help families come to terms with their grief. Her work features the heartening narratives of those who cope with ambiguous loss and manage to leave their sadness behind, including those who have lost family members to divorce, immigration, adoption, chronic mental illness, and brain injury. With its message of hope, this eloquent book offers guidance and understanding to those struggling to regain their lives. Table of Contents: 1. Frozen Grief 2. Leaving without Goodbye 3. Goodbye without Leaving 4. Mixed Emotions 5. Ups and Downs 6. The Family Gamble 7. The Turning Point 8. Making Sense out of Ambiguity 9. The Benefit of a Doubt Notes Acknowledgments Reviews of this book: You will find yourself thinking about the issues discussed in this book long after you put it down and perhaps wishing you had extra copies for friends and family members who might benefit from knowing that their sorrows are not unique...This book's value lies in its giving a name to a force many of us will confront--sadly, more than once--and providing personal stories based on 20 years of interviews and research. --Pamela Gerhardt, Washington Post Reviews of this book: A compassionate exploration of the effects of ambiguous loss and how those experiencing it handle this most devastating of losses ... Boss's approach is to encourage families to talk together, to reach a consensus about how to mourn that which has been lost and how to celebrate that which remains. Her simple stories of families doing just that contain lessons for all. Insightful, practical, and refreshingly free of psychobabble. --Kirkus Review Reviews of this book: Engagingly written and richly rewarding, this title presents what Boss has learned from many years of treating individuals and families suffering from uncertain or incomplete loss...The obvious depth of the author's understanding of sufferers of ambiguous loss and the facility with which she communicates that understanding make this a book to be recommended. --R. R. Cornellius, Choice Reviews of this book: Written for a wide readership, the concepts of ambiguous loss take immediate form through the many provocative examples and stories Boss includes, All readers will find stories with which they will relate...Sensitive, grounded and practical, this book should, in my estimation, be required reading for family practitioners. --Ted Bowman, Family Forum Reviews of this book: Dr. Boss describes [the] all-too-common phenomenon [of unresolved grief] as resulting from either of two circumstances: when the lost person is still physically present but emotionally absent or when the lost person is physically absent but still emotionally present. In addition to senility, physical presence but psychological absence may result, for example, when a person is suffering from a serious mental disorder like schizophrenia or depression or debilitating neurological damage from an accident or severe stroke, when a person abuses drugs or alcohol, when a child is autistic or when a spouse is a workaholic who is not really 'there' even when he or she is at home...Cases of physical absence with continuing psychological presence typically occur when a soldier is missing in action, when a child disappears and is not found, when a former lover or spouse is still very much missed, when a child 'loses' a parent to divorce or when people are separated from their loved ones by immigration...Professionals familiar with Dr. Boss's work emphasised that people suffering from ambiguous loss were not mentally ill, but were just stuck and needed help getting past the barrier or unresolved grief so that they could get on with their lives. --Asian Age Combining her talents as a compassionate family therapist and a creative researcher, Pauline Boss eloquently shows the many and complex ways that people can cope with the inevitable losses in contemporary family life. A wise book, and certain to become a classic. --Constance R. Ahrons, author of The Good Divorce A powerful and healing book. Families experiencing ambiguous loss will find strategies for seeing what aspects of their loved ones remain, and for understanding and grieving what they have lost. Pauline Boss offers us both insight and clarity. --Kathy Weingarten, Ph.D, The Family Institute of Cambridge, Harvard Medical School


A Freshman Survival Guide for College Students with Autism Spectrum Disorders

A Freshman Survival Guide for College Students with Autism Spectrum Disorders

Author: Haley Moss

Publisher: Jessica Kingsley Publishers

Published: 2014-06-21

Total Pages: 162

ISBN-13: 0857009222

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How do you know which college is right for you? What happens if you don't get on with your roommate? And what on earth is the Greek system all about? As a university student with High-Functioning Autism, Haley Moss offers essential tips and advice in this insider's guide to surviving the Freshman year of college. Chatty, honest and full of really useful information, Haley's first-hand account of the college experience covers everything students with Autism Spectrum Disorders need to know. She talks through getting ready for college, dorm life and living away from parents, what to expect from classes, professors and exams, and how to cope in new social situations and make friends. This book is a must-read for all students on the autism spectrum who are about to begin their first year of college, parents and teachers who are helping them prepare, and college faculty and staff.