The first interdisciplinary book taking a contextual approach to the developing health needs of women with intellectual disabilities. It considers the social, economic and political contexts of health promotion. Its concise but comprehensive evidence base makes it a unique, reliable source for a wide readership.
Women with disabilities often have difficulty accessing health care services, and the quality of the health care they do receive is often worse than the care received by women without disabilities and men with disabilities. The consequences of these disparities include increased prevalence of secondary complications, diminished quality of life, and even premature death. In this book, researchers from a range of disciplines, with expertise in a range of disabilities, investigate the causes and consequences of these health care disparities and offer plans for action to improve wellness, health promotion, and disease prevention among this broad yet consistently underserved population. Using an integrated care framework as a foundation, authors tackle the structural, environmental, and social barriers that prevent women with disabilities from accessing effective and culturally-competent care and services, and address related issues including psychosocial health, interpersonal violence, health care policy, health promotion, disease prevention programs, and telehealth, as well as reproductive and sexual health, and dental care.
Numerous issues confront women's healthcare today, among them the medicalization of women's bodies, cosmetic genital surgery, violence against women, HIV, perinatal mental health disorders. This volume uniquely explores such difficult topics and others at the intersection of clinical practice, policy, and bioethics in women's health care through a feminist ethics lens. With in-depth discussions of issues in women's reproductive health, it also broadens scholarship by responding to a wider array of ethical challenges that many women experience in accessing health care. Contributions touch on many themes previously tackled by feminist ethics, but in new, contemporary ways. Some chapters expand into new fields in the bioethics literature, such as the ethical issues related to the care of Indigenous women, uninsured refugees and immigrants, women engaged in sex work, and those with HIV at different life stages and perinatal mental health disorders. Authors seek to connect theory and practice with users of the health system by including women's voices in their research. Bringing to bear their experience in active clinical practice in medicine, nursing, and ethics, the authors contemplate new conceptual approaches to important issues in women's healthcare, and make ethical practice recommendations for those grappling with these issues. Topical and up-to-date, this book provides a valuable resource for physicians, nurses, clinical ethicists, and researchers working in some of the most critical areas of women's health and applied ethics today.
I recommend this book to anyone engaged in working collaboratively with people with the label 'learning difficulty', particularly in women's; groups, self advocacy or rights bases/citizenship concerns. The plain English accounts are accessible, but I also found the main bulk of the text easily translatable and used it extensively in my recent research. For the women involved in this project it provided a framework of reference in which they recognized similar life events and experiences. Not only does this book fill this gap by providing a frame in which women can examine this exclusion, it also questions the marginalized position of women classified as having 'learning difficulties' in feminist and disability literature.' - Disability and Society 'This is such a good read that it is difficult to be objective about the content, criticism was suspended! It is divided into parts and each part is helpfully introduced by the editors. There is also a short straightforward description of the content at the beginning of each chapter so that women with intellectual disabilities can be included in the readership.This book gives us a valuable insight into the lives of women with learning disabilities. It changes an often discriminated group into individuals of considerable interest and value. It is to be recommended to everyone who feels that difference is important in our community.' - Ann Craft Trust Bulletin This book provides the first comprehensive exploration of the issues affecting the lives of women with intellectual disabilities. Women from all over the world, with and without intellectual disabilities, have collaborated to write about their lives, their experiences and their hopes for the future. Different aspects of life - work, family, relationships and community involvement - are discussed. Some of the women have found, or are finding, fulfilling, happy, creative lifestyles. One message which emerging from many of their stories is that their intellectual disability is less of a problem than the social and economic discrimination these women experience. This book thus raises important questions about society's attitudes to women with intellectual disabilities. It is also a place where these women's stories - from the sad or disturbing to the happy, moving or inspirational - can be heard. The book's unique plain English versions of chapters will ensure that it is accessible to other women with intellectual disabilities. It is an important, interesting and readable addition to literature about intellectual disabilities and about women's lives across the world.
This open access handbook, the first of its kind, provides a comprehensive and carefully curated multidisciplinary and genre-spanning view of the state of the field of Critical Menstruation Studies, opening up new directions in research and advocacy. It is animated by the central question: ‘“what new lines of inquiry are possible when we center our attention on menstrual health and politics across the life course?” The chapters—diverse in content, form and perspective—establish Critical Menstruation Studies as a potent lens that reveals, complicates and unpacks inequalities across biological, social, cultural and historical dimensions. This handbook is an unmatched resource for researchers, policy makers, practitioners, and activists new to and already familiar with the field as it rapidly develops and expands.
Winner of the 2021 PROSE Award for CLINICAL PSYCHOLOGY and PSYCHIATRY Against a global backdrop of problematic adherence to medical treatment, this volume addresses and provides practical solutions to the simple question: "Why don't patients take treatments that could save their lives?" The Wiley handbook of Healthcare Treatment Engagement offers a guide to the theory, research and clinical practice of promoting patient engagement in healthcare treatment at individual, organizational and systems levels. The concept of treatment engagement, as explained within the text, promotes a broader view than the related concept of treatment adherence. Treatment engagement encompasses more readily the lifestyle factors which may impact healthcare outcomes as much as medication-taking, as well as practical, economic and cultural factors which may determine access to treatment. Over a span of 32 chapters, an international panel of expert authors address this far-reaching and fascinating field, describing a broad range of evidence-based approaches which stand to improve clinical services and treatment outcomes, as well as the experience of users of healthcare service and practitioners alike. This comprehensive volume adopts an interdisciplinary approach to offer an understanding of the factors governing our healthcare systems and the motivations and behaviors of patients, clinicians and organizations. Presented in a user-friendly format for quick reference, the text first supports the reader’s understanding by exploring background topics such as the considerable impact of sub-optimal treatment adherence on healthcare outcomes, before describing practical clinical approaches to promote engagement in treatment, including chapters referring to specific patient populations. The text recognizes the support which may be required throughout the depth of each healthcare organization to promote patient engagement, and in the final section of the book, describes approaches to inform the development of healthcare services with which patients will be more likely to seek to engage. This important book: Provides a comprehensive summary of practical approaches developed across a wide range of clinical settings, integrating research findings and clinical literature from a variety of disciplines Introduces and compliments existing approaches to improve communication in healthcare settings and promote patient choice in planning treatment Presents a range of proven clinical solutions that will appeal to those seeking to improve outcomes on a budget Written for health professionals from all disciplines of clinical practice, as well as service planners and policy makers, The Wiley Handbook of Healthcare Treatment Engagement is a comprehensive guide for individual practitioners and organizations alike. 2021 PROSE Biological and Life Sciences Category for Clinical Psychology & Psychiatry
The first international, cross-disciplinary book to explore and understand the lives of parents with intellectual disabilities, their children, and the systems and services they encounter Presents a unique, pan-disciplinary overview of this growing field of study Offers a human rights approach to disability and family life Informed by the newly adopted UN Convention on the Rights of Persons with Disabilities (2006) Provides comprehensive research-based knowledge from leading figures in the field of intellectual disability