The "Overview of the Privacy Act of 1974," prepared by the Department of Justice's Office of Privacy and Civil Liberties (OPCL), is a discussion of the Privacy Act's disclosure prohibition, its access and amendment provisions, and its agency recordkeeping requirements. Tracking the provisions of the Act itself, the Overview provides reference to, and legal analysis of, court decisions interpreting the Act's provisions.
Contains an overview discussion of the Freedom of Information Act's (FOIA) exemptions, its law enforcement record exclusions, and its most important procedural aspects. 2009 edition. Issued biennially. Other related products: Report of the Commission on Protecting and Reducing Government Secrecy, Pursuant to Public Law 236, 103d Congress can be found here: https: //bookstore.gpo.gov/products/sku/052-071-01228-1 Overview of the Privacy Act of 1974, 2015 Edition can be found here: https: //bookstore.gpo.gov/products/sku/027-000-01429-1
Digital communications technology has immeasurably enhanced our capacity to store, retrieve, and exchange information. But who controls our access to information, and who decides what others have a right to know about us? In Controlling Knowledge, author Lorna Stefanick offers a thought-provoking and eminently user-friendly overview of current legislation governing freedom of information and the protection of privacy. Aiming to clarify rather than mystify, Stefanick outlines the history and application of FOIP legislation, with special focus on how these laws affect the individual. To illustrate the impact of FOIP, she examines the notion of informed consent, looks at concerns about surveillance in the digital age, and explores the sometimes insidious influence of Facebook. Specialists in public policy and public administration, information technology, communications, law, criminal justice, sociology, and health care will find much here that bears directly on their work, while students and general readers will welcome the book's down-to-earth language and accessible style. Intended to serve as a "citizen's guide," Controlling Knowledge is a vital resource for anyone seeking to understand how freedom of information and privacy protection are legally defined and how this legislation is shaping our individual rights as citizens of the information age.
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
