Down Syndrome

Down Syndrome

Author: Mark Selikowitz

Publisher: OUP Oxford

Published: 2008-05-29

Total Pages: 232

ISBN-13: 019157970X

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Down syndrome is a genetic condition which causes varying degrees of learning disability as well as other health problems. Nearly one baby in every 1000 born in the UK has the condition. Parents are often frightened and confused by the birth of a baby with Down syndrome, and they need reassurance as well as up-to-date information regarding the condition. The new edition of this highly regarded book for parents of children with Down syndrome covers a number of important new developments in research and clinical practice that have occurred in the field in recent years. These include several newly recognised medical conditions that are known to occur more commonly in patients with Down syndrome, for example, glaucoma, gastrointestinal malformations, feeding difficulties, gastro-oesophageal reflux, coeliac disease, and diabetes. This expanded edition also includes new recommendations regarding routine health checks in line with those of the UK Down Syndrome Medical Interest Group (UKDSMIG). Additionally the book covers new prenatal screening methods which have been developed to identify Down syndrome during pregnancy.


Different--A Great Thing to Be!

Different--A Great Thing to Be!

Author: Heather Avis

Publisher: WaterBrook

Published: 2021-06-29

Total Pages: 40

ISBN-13: 0593232658

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NEW YORK TIMES BESTSELLER • This joyful rhyming book encourages children to value the “different” in all people, leading the way to a kinder world in which the differences in all of us are celebrated and embraced. Macy is a girl who’s a lot like you and me, but she's also quite different, which is a great thing to be. With kindness, grace, and bravery, Macy finds her place in the world, bringing beauty and laughter wherever she goes and leading others to find delight in the unique design of every person. Children are naturally aware of the differences they encounter at school, in their neighborhood, and in other everyday relationships. They just need to be given tools to understand and appreciate what makes us “different,” permission to ask questions about it, and eyes to see and celebrate it in themselves as well as in those around them.


Downs

Downs

Author: David Wright

Publisher: Oxford University Press

Published: 2011-08-25

Total Pages: 254

ISBN-13: 019956793X

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Editorial Advisor, Helen Bynum is a freelancer historian and author. --Book Jacket.


Fasten Your Seatbelt

Fasten Your Seatbelt

Author: Brian Skotko

Publisher: Special Needs Collection

Published: 2009

Total Pages: 0

ISBN-13: 9781890627867

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Even the closest brothers and sisters don't always get along or understand each other. Add a disability like Down syndrome to the mix, and that sibling relationship gets even more complicated, especially for teenagers. Fasten Your Seatbelt is the first book written exclusively for teens with a brother or sister with Down syndrome. In an easy-to-read, question & answer format, it tackles a broad range of their most common issues and concerns. Nearly 100 questions--all posed by teen siblings--are grouped into the following categories: Facts and stats about Down syndrome How people with Down syndrome learn Handling parent and family conflicts Dealing with your sibling's frustrating behaviors Managing uncomfortable situations Sorting out your feelings Becoming an advocate What the future holds for you and your sibling Finding local and national resources Thoughtful, knowledgeable answers are provided by Brian Skotko, the brother of a young woman with Down syndrome, and Sue Levine, a social worker focused on sibling issues for the past 30 years. Fasten Your Seatbelt gives teens the green light to explore their own feelings and questions about their sibling with Down syndrome and how their relationship may change in the future. Wondering whats on their minds? Here are a few sample questions from the book: Why does my brother always have temper tantrums? How can one extra chromosome make someone so different? Can my sister with Down syndrome marry someday? Will my brother be able to live on his own as an adult?


The Down Syndrome Diary

The Down Syndrome Diary

Author: Jamie Freeman

Publisher: Independently Published

Published: 2021-03-17

Total Pages: 250

ISBN-13:

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If ever a book had a soul, it would be the one you're reading about right now. In 2013, when her son was just six months old, a new mama walked into a bookstore and bought a beautiful, leather-bound journal. Inside she proceeded to pour her soul out and tell her story. What story? The story of what it's truly like to have a child with Down syndrome...the story she wished she could have read the day she found out she would be part of that club. She then packed up the journal and sent it off to her friend many miles away in northern Ontario, Canada. Social media outlets had brought them together, and the sharing of this tangible journal began to bring them even closer. The spirit of the book began to grow as the diary embarked on a journey through twenty-six homes in four different countries finally making its way back into the hands of that original mama.As the stories were told and the torch was passed, The Down Syndrome Diary was born. A journal filled with words, pictures, tears, and even a few wine stains became the greatest gift someone could receive upon hearing that their child has Down syndrome. Opening these pages will give you a glance into the amazing work of art that journal became.Enjoy!


I Just Am

I Just Am

Author: Bryan Lambke

Publisher:

Published: 2011-05-15

Total Pages: 0

ISBN-13: 9781589850804

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All too often, we shroud ourselves in ignorance, thus preventing us from learning from others whom we consider to be somewhat different. In a book that is both charming and disarming, Bryan Lambke, a young man with Down syndrome, invites us into his world where he lets us know he shares the same dreams and emotions as everyone else.


Teaching Children with Down Syndrome about Their Bodies, Boundaries, and Sexuality

Teaching Children with Down Syndrome about Their Bodies, Boundaries, and Sexuality

Author: Terri Couwenhoven

Publisher:

Published: 2007

Total Pages: 331

ISBN-13: 9781890627331

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Parents of children with Down syndrome and other intellectual disabilities are accustomed to paying close attention to their child's physical, cognitive, and emotional development. This proactive approach should also include their child's sexual development, which for many parents may not seem as obvious or urgent, especially to those with young children. Drawing on her unique background as both a sexual educator and mother of a child with Down syndrome, the author blends factual information and practical ideas for teaching children with Down syndrome about their bodies, puberty, and sexuality. This book gives parents the confidence to speak comfortably about these sometimes difficult subjects. In an easy-to-read, non-clinical style, the book covers relevant issues and concerns for children of all ages, such as: Labelling & explaining private body parts; Identifying & expressing emotions; Respecting personal space; Teaching self-care & hygiene; Understanding norms of privacy; Understanding gender identity; Showing appropriate levels of affection. It also covers later issues that affect teenagers and young adults, including: Anticipating and understanding puberty; Dealing with periods, bras for girls; Experiencing erections, wet dreams for boys; Relating to the opposite sex; Sharing parental values about sexuality; Explaining sexual relationships; Preventing sexual abuse; Understanding how Down syndrome affects puberty & fertility rates. Each chapter highlights important points with key messages, teaching activities, parental pauses, and anecdotes, all of which prompt readers to stop and consider concepts or values associated with a particular topic. The final chapter covers the special concerns of parents who are now teaching teenaged or adult children about sexuality for the first time. It concludes with extensive appendices containing invaluable teaching materials and illustrations of body parts and functions.