Ethics and Neurodiversity

Ethics and Neurodiversity

Author: Alexandra Perry

Publisher: Cambridge Scholars Publishing

Published: 2014-09-26

Total Pages: 315

ISBN-13: 1443867594

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Increasingly, voices in the growing neurodiversity movement are alleging that individuals who are neurologically divergent, such as those with conditions related to bipolar disorder, autism, schizophrenia, and depression, must struggle for their civil rights. This movement therefore raises questions of interest to scholars in the humanities and social sciences, as well as to concerned members of the general public. These questions have to do with such matters as the accessibility of knowledge about mental health; autonomy and community within the realm of the mentally ill; and accommodation in civil society and its institutions. The contributors to Ethics and Neurodiversity explore these questions, and the traditional philosophical questions related to them. The authors pay special attention to the need to examine the policies and practices of institutions, such as higher education, social support, and healthcare.


Autistic Community and the Neurodiversity Movement

Autistic Community and the Neurodiversity Movement

Author: Steven K. Kapp

Publisher: Springer Nature

Published: 2019-11-07

Total Pages: 330

ISBN-13: 9811384371

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This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment. The actions covered are legendary in the autistic community, including manifestos such as “Don’t Mourn for Us”, mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, a book, and advisory roles. These actions have shifted the landscape toward viewing autism in social terms of human rights and identity to accept, rather than as a medical collection of deficits and symptoms to cure.


Towards an Ethic of Autism

Towards an Ethic of Autism

Author: Kristien Hens

Publisher: Open Book Publishers

Published: 2021-07-07

Total Pages: 194

ISBN-13: 1800642334

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Kristien Hens succeeds in weaving together experiential expertise of both people with autism and their parents, scientific insights and ethics, and does so with great passion and affection for people with autism (with or without mental or other disabilities). In this book she not only asks pertinent questions, but also critically examines established claims that fail to take into account the criticism and experiences of people with autism. Sam Peeters, author of Autistic Gelukkig (Garant, 2018) and Gedurfde vragen (Garant, 2020); blog @ Tistje.com What does it mean to say that someone is autistic? Towards an Ethics of Autism is an exploration of this question and many more. In this thoughtful, wide-ranging book, Kristien Hens examines a number of perspectives on autism, including psychiatric, biological, and philosophical, to consider different ways of thinking about autism, as well as its meanings to those who experience it, those who diagnose it, and those who research it. Hens delves into the history of autism and its roots in the work of Leo Kanner and Hans Asperger to inform a contemporary ethical analysis of the models we use to understand autism today. She explores the various impacts of a diagnosis on autistic people and their families, the relevance of disability studies, the need to include autistic people fully in discussions about (and research on) autism, and the significance of epigenetics to future work on autism. Hens weaves together a variety of perspectives that guide the reader in their own ethical reflections about autism. Rich, accessible, and multi-layered, this is essential reading for philosophers, educational scientists, and psychologists who are interested in philosophical-ethical questions related to autism, but it also has much to offer to teachers, allied health professionals, and autistic people themselves.


The Ethics of Autism

The Ethics of Autism

Author: Deborah R. Barnbaum

Publisher: Indiana University Press

Published: 2008-09-17

Total Pages: 248

ISBN-13: 0253000688

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Autism is one of the most compelling, controversial, and heartbreaking cognitive disorders. It presents unique philosophical challenges as well, raising intriguing questions in philosophy of mind, cognitive science, and philosophy of language that need to be explored if the autistic population is to be responsibly served. Starting from the "theory of mind" thesis that a fundamental deficit in autism is the inability to recognize that other persons have minds, Deborah R. Barnbaum considers its implications for the nature of consciousness, our understanding of the consciousness of others, meaning theories in philosophy of language, and the modality of mind. This discussion lays the groundwork for consideration of the value of an autistic life, as well as the moral theories available to persons with autism. The book also explores questions about genetic decision making, research into the nature of autism, and the controversial quest for a cure. This is a timely and wide-ranging book on a disorder that commends itself to serious ethical examination.


Neurodiversity Studies

Neurodiversity Studies

Author: Hanna Bertilsdotter Rosqvist

Publisher: Routledge

Published: 2020-06-02

Total Pages: 399

ISBN-13: 1000073807

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Building on work in feminist studies, queer studies and critical race theory, this volume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and ‘others’, including dyslexics, autistics and ADHDers. This is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neurodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questions the theoretical and mythological assumptions that produce the idea of the neurotypical. Working at the crossroads between sociology, critical psychology, medical humanities, critical disability studies, and critical autism studies, and sharing theoretical ground with critical race studies and critical queer studies, the proposed new field – neurodiversity studies – will be of interest to people working in all these areas. Chapter 7 of this book is freely available as a downloadable Open Access PDF at http://www.taylorfrancis.com under a Creative Commons Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND) 4.0 license.


The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies

The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies

Author: Hanna Bertilsdotter Rosqvist

Publisher: Palgrave Macmillan

Published: 2024-10-16

Total Pages: 0

ISBN-13: 9783031661266

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This timely volume brings together well-established scholars and emerging voices to explore research methods and ethics in Neurodiversity Studies. It explores the epistemic injustice that currently surrounds much knowledge production around neurodivergence, and offers concrete examples of creative, participatory, and collaborative research practice in the field. The editors have assembled chapters combining reflexive, theoretical, and practical contributions. Together they address current debates surrounding participatory methods and Neurodiversity Studies and are unique in giving voice to mainly neurodivergent researchers and contributors across autism, ADHD, acquired brain injury, and multiple neurodivergence. The first of its kind, this much-needed volume contains essential reading for all those learning and teaching in the field of neurodiversity. It further represents a valuable resource for students and academics at all levels, participatory or creative researchers, research commissioners, and research evidence users across the social sciences.


Neurodivergence and Architecture

Neurodivergence and Architecture

Author:

Publisher: Academic Press

Published: 2022-09-30

Total Pages: 416

ISBN-13: 0128245638

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Neurodivergence and Architecture, Volume Five, the latest release in the Developments in Neuroethics and Bioethics series, focuses on the new and fascinating ethical and legal challenges posed by neurotechnology and its global regulation. Topics in this new release cover STS on architecture, Embodied Rhetoric/ Disability Studies, Autoethnography, Bioethics/Materialist Feminism, Advocacy, Cultural Commentary: Being Autistic Together, An autistic perspective on built spaces, Empty spaces and refrigerator boxes: making autistic spaces, On the Losing Myself Project, Neither Use nor Ornament (NUNO) project, Madness and (Be)coming Out Within and Through Spaces of Confinement, and more. Novel and original research on the emerging field of the legal regulation of neuroscience Interdisciplinary approach, chapters by global scholars from several disciplines, including law, philosophy, and medicine Develops a global approach, useful in jurisdictions along the globe


Understanding Ethics in Applied Behavior Analysis

Understanding Ethics in Applied Behavior Analysis

Author: Ann Beirne

Publisher: Routledge

Published: 2021-12-23

Total Pages: 582

ISBN-13: 1000507815

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This book provides the foundation for a lifelong journey of ethical practice in service for individuals with autism spectrum disorder and other developmental disabilities. The second edition of Understanding Ethics in Applied Behavior Analysis includes an explanation of each element in the Ethics Code for Behavior Analysts, along with considerations for ethical practice and examples from the field. Professional behavior for the behavior analyst is also addressed when fulfilling roles as teacher, employee, manager, colleague, advocate, or member of a multidisciplinary team. This new edition expands on the first chapter’s introduction of moral philosophy, adds a new chapter on ethical decision-making and core principles, and provides a study guide to assist those preparing for the Behavior Analyst Certification Board exams. Drawing upon Beirne and Sadavoy’s combined 40 years of clinical experience as well as the reflections of colleagues in the field, this is an indispensable guide to ethics for behavior analysis students.


Intellectual Disabilities and Autism: Ethics and Practice

Intellectual Disabilities and Autism: Ethics and Practice

Author: Andria Bianchi

Publisher: Springer

Published: 2024-08-11

Total Pages: 0

ISBN-13: 9783031615641

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This book meaningfully reflects upon difficult, timely, and debated ethics questions relating to people with intellectual disabilities (IDs) and autistic people. The book challenges now dated perceptions and introduces innovative ideas by leading scholars regarding some of the most complex, controversial, and relevant ethical dilemmas involving these neurodiverse populations. People with IDs and/or those on the autism spectrum continue to experience various forms of oppression and unjust treatment across the globe, despite the UN Convention on the Rights of Persons with Disabilities (CRPD). The collection explores questions such as: Can people with IDs make informed decisions about their medical treatment, living circumstances, and overall life? What are the ethical implications of selective termination of pregnancy based on a gene linked to a condition conferring intellectual impairment? How can we ensure that people with IDs and autistic people are meaningfully included in research? Can people with IDs successfully parent? How can we support the capabilities of neurodiverse populations such that they enjoy the rights afforded by the CRPD? Each contributor critically examines how we can move forward to create a world that understands and respects the rights of every person with ID and/or autism. An indispensable read for bioethicists, ethics students, social justice scholars, and others interested in and working with people with IDs and autistic people.


Shaping Children

Shaping Children

Author: Saskia K. Nagel

Publisher: Springer

Published: 2019-05-03

Total Pages: 212

ISBN-13: 3030106772

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The volume offers a unique collection of articles on pediatric neuroenhancement from an international and multidisciplinary perspective. In recent years, the topic of “neuroenhancement” has become increasingly relevant in academia and practice, as well as among the public. While autonomous adults are free to choose neuroenhancement, in children it presents its own ethical, social, legal, and developmental issues. A plethora of potential (neurotechnological) enhancement agents are on the market. While the manifold issues surrounding the topic have been extensively discussed, there is little work on the specific questions that arise in children and adolescents. This book addresses this gap in the literature: Next to conceptual and normative work on autonomy and self-control, the collection explores the implications for parenting and schooling, and provides input for a discussion of public attitudes. It is a valuable resource for the different academic communities confronted with questions of how to evaluate and approach enhancement in children and is of interest to neuroethicists, scholars in applied ethics and neurology, psychiatrists and psychologists as well as scientists developing enhancement interventions for children.