Finding Your Ethical Research Self

Finding Your Ethical Research Self

Author: Martin Tolich

Publisher: Routledge

Published: 2021

Total Pages: 198

ISBN-13: 9780429056994

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Finding Your Ethical Research Self introduces novice researchers to the need for ethical reflection in practice and gives them the confidence to use their knowledge and skill when, later as researchers, they are confronted by big ethical moments in the field. The 12 chapters build on each other, but not in a linear way. Core ethical concepts like consent and confidentiality once established in the early chapters are later challenged. The new focus becomes how to address qualitative research ethics when confidentiality and consent take on a limited form. This approach helps students understand that the application of concepts always requires thoughtful adaptation in different contexts and the book provides guidance on how to do this. Classroom/workbook exercises develop alternative solutions to create process consent, internal confidentiality, and engage reference groups, as examples. The first eight chapters allow students to develop their ethical research self before thinking through how they might address formal ethics review. Formal ethics review is deliberately not introduced until Chapter 9. Chapter 10 offers practical help to elements of review, before Chapter 11 emphasises the key message by providing examples of researchers' dilemmas in the field using vignettes and discussion. By providing these examples, students become aware that these can arise, explore how they might arise, and recognise how they might deal with them in the moment when they are unavoidable. With numerous examples of ethical dilemmas and issues and questions and exercises to encourage self-reflection, this reflexive, learn-by-doing model of research ethics will be highly useful to the novice researcher, undergraduate, and postgraduate research student.


Behind Closed Doors

Behind Closed Doors

Author: Laura Stark

Publisher: University of Chicago Press

Published: 2012-02

Total Pages: 242

ISBN-13: 0226770869

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Drwaing on extensive archival sources, Laura Stark reconstructs the daily lives of scientists, lawyers, administrators, and research subjects working - and 'warring' - on the campus of the National Institutes of Health, where they first wrote the rules for the treatment of human subjects.


Ethical Considerations for Research Involving Prisoners

Ethical Considerations for Research Involving Prisoners

Author: Committee on Ethical Considerations for Revisions to DHHS Regulations for Protection of Prisoners Involved in Research

Publisher: National Academies Press

Published: 2007-01-22

Total Pages: 284

ISBN-13: 0309164605

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In the past 30 years, the population of prisoners in the United States has expanded almost 5-fold, correctional facilities are increasingly overcrowded, and more of the country's disadvantaged populations—racial minorities, women, people with mental illness, and people with communicable diseases such as HIV/AIDS, hepatitis C, and tuberculosis—are under correctional supervision. Because prisoners face restrictions on liberty and autonomy, have limited privacy, and often receive inadequate health care, they require specific protections when involved in research, particularly in today's correctional settings. Given these issues, the Department of Health and Human Services' Office for Human Research Protections commissioned the Institute of Medicine to review the ethical considerations regarding research involving prisoners. The resulting analysis contained in this book, Ethical Considerations for Research Involving Prisoners, emphasizes five broad actions to provide prisoners involved in research with critically important protections: • expand the definition of "prisoner"; • ensure universally and consistently applied standards of protection; • shift from a category-based to a risk-benefit approach to research review; • update the ethical framework to include collaborative responsibility; and • enhance systematic oversight of research involving prisoners.


Ethical Practice in Participatory Visual Research with Girls

Ethical Practice in Participatory Visual Research with Girls

Author: Relebohile Moletsane

Publisher: Berghahn Books

Published: 2021-03-03

Total Pages: 240

ISBN-13: 1800730349

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Girls and young women, particularly those from rural and indigenous communities around the world, face some of the most adverse social issues in the world despite the existence of protective laws and international treaties. Ethical Practice in Participatory Visual Research with Girls explores the potential of participatory visual method (PVM) for girls and young women in these communities, presenting and critiquing the everyday ethical dilemmas visual researchers face and the strategies they implement to address them, reflecting on principles of autonomy, social justice, and beneficence in transnational, indigenous and rural contexts.


Ethical research with children

Ethical research with children

Author: Ann Farrell

Publisher: McGraw-Hill Education (UK)

Published: 2005-11-16

Total Pages: 200

ISBN-13: 0335224989

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This book focuses on doing ethical research with children in today's climate of increased globalization, surveillance and awareness of children as competent research participants. It covers a range of conceptual, methodological and procedural issues, and provides a framework for doing ethical research with children. Written by international experts in the fields of early childhood research and ethics, this book supports students, practitioner-researchers and research gatekeepers with resources on how to conduct and evaluate ethical research with children. The contributors: Use key examples of cutting-edge research from a range of countries to examine research ethics with children and those around them Provide strategies for planning, conducting and evaluating research in an ethical way Explore theoretical approaches to children and childhood that are relevant to ethical research Ethical Research with Children is key reading for students in childhood studies, teacher education, public health, nursing, human services, legal studies, psychology and social sciences, as well as practitioner-researchers in these fields.


Ethical Conduct of Clinical Research Involving Children

Ethical Conduct of Clinical Research Involving Children

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2004-07-09

Total Pages: 445

ISBN-13: 0309133386

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In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.


International Ethical Guidelines for Health-Related Research Involving Humans

International Ethical Guidelines for Health-Related Research Involving Humans

Author: Council for International Organizations of Medical Sciences (CIOMS)

Publisher: World Health Organization

Published: 2017-01-31

Total Pages: 0

ISBN-13: 9789290360889

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"In the new 2016 version of the ethical guidelines, CIOMS provides answers to a number of pressing issues in research ethics. The Council does so by stressing the need for research having scientific and social value, by providing special guidelines for health-related research in low-resource settings, by detailing the provisions for involving vulnerable groups in research and for describing under what conditions biological samples and health-related data can be used for research."--Page 4 de la couverture.


Ethical Choices in Research

Ethical Choices in Research

Author: Harris M. Cooper

Publisher: American Psychological Association (APA)

Published: 2016

Total Pages: 0

ISBN-13: 9781433821684

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Many books discuss the ethical treatment of human subjects in behavioral research, yet few talk about the equally important ethical issues that arise when the data are being analyzed and the study is being written up. All researchers need to be aware of their professional responsibilities and make sound choices after the subjects have left. This practical and easy-to-follow guide walks readers through often overlooked decision points in the research process. Drawing from his extensive experience as a teacher of research methods and a senior editorial advisor, and from well-established standards of practice -- including the APA Ethics Code -- Harris Cooper is the ideal mentor in this process. Readers of this book will learn how to: Collect and manage data in a way that does not compromise the confidentiality of subjects Avoid data fraud and misleading data analysis Assign research responsibilities and authorships to team members Avoid committing plagiarism and intellectual theft Navigate the journal submission and publication process Post-publication ethical considerations are also addressed, including researchers' obligations when communicating their findings to the media and the general public, and when engaging with the scientific community as a peer reviewer.


Handbook of Research Ethics and Scientific Integrity

Handbook of Research Ethics and Scientific Integrity

Author: Ron Iphofen

Publisher: Springer

Published: 2020-04-02

Total Pages: 0

ISBN-13: 9783030167585

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This handbook is a ‘one-stop shop’ for current information, issues and challenges in the fields of research ethics and scientific integrity. It provides a comprehensive coverage of research and integrity issues, both within researchers’ ‘home’ discipline and in relation to similar concerns in other disciplines. The handbook covers common elements shared by disciplines and research professions, such as consent, privacy, data management, fraud, and plagiarism. The handbook also includes contributions and perspectives from academics from various disciplines, treating issues specific to their fields. Readers are able to quickly source the most comprehensive and up-to-date information, protagonists, issues and challenges in the field. Experienced researchers keen to assess their own perspectives, as well as novice researchers aiming to establish the field, will equally find the handbook of interest and practical benefit. It saves them a great deal of time in sourcing the disparate available material in these fields and it is the first ‘port of call’ for a wide range of researchers, research advisors, funding agencies and research reviewers.The most important feature is the handbook’s ability to provide practical advice and guidance to researchers in a wide range of disciplines and professions to help them ‘think through’ their approach to difficult questions related to the principles, values and standards they need to bring to their research practice.