This book examines theoretical considerations in the study of decision making as well as practical applications in social interpersonal domains for adolescents and adults with intellectual and developmental disabilities (IDD). It provides a history of the study of decision making in individuals with IDD and examines emerging views on decision making from a positive psychology perspective. The book explores the role of decision making in self-determination as well as offers global perspectives on the rights and responsibilities of individuals with IDD to engage in independent decision making. It outlines a framework for the study of decision making in individuals with IDD, reviews research that addresses the role of culturally diverse influences on individual decision making, and examines likely consequences of the etiological bases of disability on decision-making profiles. Key areas of coverage include: · Critical role of basic processes of cognition, motivation and self-beliefs, affect and emotion, and various styles of decision making. · Applications of decision-making skills within family and community contexts, in personal and social relationships, during transition to adulthood and more independent lifestyles, and in successful community living. · Self-protective decision making by individuals in situations of abuse as well as in resisting peer victimization and bullying. · Decision-making parameters for enabling maximum participation in self-decision making, through shared and supported decision making in contexts such as health care, aging, and end-of-life decisions. · Research-based interventions to improve effective decision making in individuals with IDD. Decision Making by Individuals with Intellectual and Developmental Disabilities is a must-have reference for researchers, professors, and graduate students as well as clinicians and other professionals in the fields of developmental and positive psychology, rehabilitation, social work, special education, occupational, speech and language therapy, public health, and healthcare policy.
Disability Law and Policy provides an overview of the major themes and insights in disability law. It is also a compelling compendium of stories about how our legal system has responded to the needs of impacted individuals. Peter Blanck is University Professor & Chairman of the Burton Blatt Institute at Syracuse University. The year 2020 marks the thirtieth anniversary of the Americans with Disabilities Act. During the past three decades, disability law and policy, including the law of the ADA itself, have evolved dramatically in the United States and internationally. Walls of inaccessibility, exclusion, segregation, stigma, and discrimination have been torn down, often brick-by-brick. But the work continues, many times led by advocates who have never known a world without the ADA and are now building on the efforts of those who came before them. Lex Frieden, former Chairperson of the National Council on Disability, writes in the book's Foreword: "In 1967, I survived a head-on car crash. When I woke up, I was paralyzed from the shoulders down. . . . My story is one of many in the modern disability rights movement. In Disability Law and Policy, Peter Blanck retells my story, and the personal experiences of many others living with disabilities, in a master tour of the area. Peter is a world-renowned teacher, researcher, lawyer, and advocate. He has been central to the modern sea change in disability civil rights . . . Disability Law and Policy should be read by all of us--people with the lived experience of disability and their advocates, parents, family members, and friends."
This book examines choice and preference in the lives of people with disability, focusing on people with intellectual and developmental disabilities. It provides an overview of choice and examines foundational concepts related to choice and preference, including self-determination and supported decision making. Chapters examine a range of critical service and policy issues, such as guardianship, individualized funding, the health care system, and the situation regarding choices for people with disability in international contexts. In addition, chapters explore issues ranging from the development of preference and choice in childhood to choices in older age and end of life matters. It provides in-depth analysis of particular choices faced at different points across the lifespan. The book concludes with implications for policy and practice. Topics featured in this book include: Supported decision making for adults with intellectual disabilities or acquired brain injury. The role of parents and families in the development of choice-making skills. Preference assessments for individuals who cannot tell us what they prefer. Employment opportunities for people with intellectual disabilities. Sexual and reproductive rights for people with intellectual disabilities. Disability and the choice to become a parent. Choice, Preference, and Disability is an essential resource for researchers, professors, clinicians, therapists, and other professionals as well as graduate students in the fields of developmental and positive psychology, rehabilitation, social work, special education, occupational, speech and language therapy, public health, and healthcare policy.
Medical Decision Making provides clinicians with a powerful framework for helping patients make decisions that increase the likelihood that they will have the outcomes that are most consistent with their preferences. This new edition provides a thorough understanding of the key decision making infrastructure of clinical practice and explains the principles of medical decision making both for individual patients and the wider health care arena. It shows how to make the best clinical decisions based on the available evidence and how to use clinical guidelines and decision support systems in electronic medical records to shape practice guidelines and policies. Medical Decision Making is a valuable resource for all experienced and learning clinicians who wish to fully understand and apply decision modelling, enhance their practice and improve patient outcomes. “There is little doubt that in the future many clinical analyses will be based on the methods described in Medical Decision Making, and the book provides a basis for a critical appraisal of such policies.” - Jerome P. Kassirer M.D., Distinguished Professor, Tufts University School of Medicine, US and Visiting Professor, Stanford Medical School, US
The United States Social Security Administration (SSA) administers two disability programs: Social Security Disability Insurance (SSDI), for disabled individuals, and their dependent family members, who have worked and contributed to the Social Security trust funds, and Supplemental Security Income (SSSI), which is a means-tested program based on income and financial assets for adults aged 65 years or older and disabled adults and children. Both programs require that claimants have a disability and meet specific medical criteria in order to qualify for benefits. SSA establishes the presence of a medically-determined impairment in individuals with mental disorders other than intellectual disability through the use of standard diagnostic criteria, which include symptoms and signs. These impairments are established largely on reports of signs and symptoms of impairment and functional limitation. Psychological Testing in the Service of Disability Determination considers the use of psychological tests in evaluating disability claims submitted to the SSA. This report critically reviews selected psychological tests, including symptom validity tests, that could contribute to SSA disability determinations. The report discusses the possible uses of such tests and their contribution to disability determinations. Psychological Testing in the Service of Disability Determination discusses testing norms, qualifications for administration of tests, administration of tests, and reporting results. The recommendations of this report will help SSA improve the consistency and accuracy of disability determination in certain cases.
Painâ€"it is the most common complaint presented to physicians. Yet pain is subjectiveâ€"it cannot be measured directly and is difficult to validate. Evaluating claims based on pain poses major problems for the Social Security Administration (SSA) and other disability insurers. This volume covers the epidemiology and physiology of pain; psychosocial contributions to pain and illness behavior; promising ways of assessing and measuring chronic pain and dysfunction; clinical aspects of prevention, diagnosis, treatment, and rehabilitation; and how the SSA's benefit structure and administrative procedures may affect pain complaints.
Second in a series of publications from the Institute of Medicine's Quality of Health Care in America project Today's health care providers have more research findings and more technology available to them than ever before. Yet recent reports have raised serious doubts about the quality of health care in America. Crossing the Quality Chasm makes an urgent call for fundamental change to close the quality gap. This book recommends a sweeping redesign of the American health care system and provides overarching principles for specific direction for policymakers, health care leaders, clinicians, regulators, purchasers, and others. In this comprehensive volume the committee offers: A set of performance expectations for the 21st century health care system. A set of 10 new rules to guide patient-clinician relationships. A suggested organizing framework to better align the incentives inherent in payment and accountability with improvements in quality. Key steps to promote evidence-based practice and strengthen clinical information systems. Analyzing health care organizations as complex systems, Crossing the Quality Chasm also documents the causes of the quality gap, identifies current practices that impede quality care, and explores how systems approaches can be used to implement change.
Each year, more than 33 million Americans receive health care for mental or substance-use conditions, or both. Together, mental and substance-use illnesses are the leading cause of death and disability for women, the highest for men ages 15-44, and the second highest for all men. Effective treatments exist, but services are frequently fragmented and, as with general health care, there are barriers that prevent many from receiving these treatments as designed or at all. The consequences of this are seriousâ€"for these individuals and their families; their employers and the workforce; for the nation's economy; as well as the education, welfare, and justice systems. Improving the Quality of Health Care for Mental and Substance-Use Conditions examines the distinctive characteristics of health care for mental and substance-use conditions, including payment, benefit coverage, and regulatory issues, as well as health care organization and delivery issues. This new volume in the Quality Chasm series puts forth an agenda for improving the quality of this care based on this analysis. Patients and their families, primary health care providers, specialty mental health and substance-use treatment providers, health care organizations, health plans, purchasers of group health care, and all involved in health care for mental and substanceâ€"use conditions will benefit from this guide to achieving better care.
Direct democracy, or pure democracy, is a concept spreading throughout the world, now adopted by nearly 30 countries on the national level. While the concept is not new, it is important to investigate the current benefits or hinderances of direct democracy related to local governments so that they may be implemented further. Direct Democracy Practices at the Local Level deepens the knowledge of direct democracy in political science. This book explores how local governments utilize these instruments in international governments and analyzes a series of popular initiatives and local referenda to how successful these initiatives are. Covering topics such as religious rights, street committees, and climate change, this book is essential for political science students and professors, policymakers, faculty, local governments, academicians, and researchers in political science with an interest in direct democracy procedures in representative systems.