Dying in America

Dying in America

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2015-03-19

Total Pages: 470

ISBN-13: 0309303133

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For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.


Being with Dying

Being with Dying

Author: Joan Halifax

Publisher: Shambhala Publications

Published: 2024-07-09

Total Pages: 233

ISBN-13: 1645472876

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Inspiring teachings, personal stories, and meditations for those near death and their caregivers, by a respected Zen teacher who has worked with the dying for over 30 years. Everyone who lives must inevitably face death. Inspired by traditional Buddhist teachings and decades of work with the dying and their caregivers, this landmark work on death and dying by beloved Buddhist teacher Joan Halifax is a source of wisdom for all those who are charged with a dying person’s care, facing their own death, or wishing to explore and contemplate the transformative power of the dying process. Relevant and powerful for people of all backgrounds, her teachings affirm that all of us can open and contact our inner strength even in the face of death, and that we can help others who are suffering to do the same. Halifax observes that millions will have to deal with the loss of parents and loved ones and that we are largely unprepared emotionally for their deaths. She presents the notion that the process of dying is a rite of passage. Halifax offers stories from her personal experience as well as guided exercises and contemplations to help readers contemplate death without fear, develop a commitment to helping others, and transform suffering and resistance into courage. Topics and exercises include: Learning to see death as a rite of passage The guiding principles of bearing witness and how self-awareness can help us to relate more fully with others How to take care of ourselves when we’re taking care of others Contemplation on the universality of death How to transform pain and fear with lovingkindness And much more Coupled with a new foreword by Frank Ostaseski, a leader in the field of death and dying palliative care, the guidance and experiences represented in Being with Dying are invaluable in supporting and instilling peace as the journey of life unfolds and inevitably reaches not only an end, but also a new beginning.


Living with Death and Dying

Living with Death and Dying

Author: Elisabeth Kübler-Ross

Publisher: Simon and Schuster

Published: 2011-07-19

Total Pages: 196

ISBN-13: 1439125287

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In this compassionate and moving guide to communicating with the terminally ill, Dr. Elisabeth Küebler-Ross, the world's foremost expert on death and dying, shares her tools for understanding how the dying convey their innermost knowledge and needs. Expanding on the workshops that have made her famous and loved around the world, she shows us the importance of meaningful dialogue in helping patients to die with peace and dignity.


Death, Dying, and Bereavement

Death, Dying, and Bereavement

Author: Judith M. Stillion, PhD, CT

Publisher: Springer Publishing Company

Published: 2014-11-07

Total Pages: 444

ISBN-13: 0826171427

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Delivers the collective wisdom of foremost scholars and practitioners in the death and dying movement from its inception to the present. Written by luminaries who have shaped the field, this capstone book distills the collective wisdom of foremost scholars and practitioners who together have nearly a millennium of experience in the death and dying movement. The book bears witness to the evolution of the movement and presents the insights of its pioneers, eyewitnesses, and major contributors past and present. Its chapters address contemporary intellectual, institutional, and practice developments in thanatology: hospice and palliative care; funeral practice; death education; and caring of the dying, suicidal, bereaved, and traumatized. With a breadth and depth found in no other text on death, dying, and bereavement, the book disseminates the thinking of prominent authors William Worden, David Clark, Tony Walter, Robert Neimeyer, Charles Corr, Phyllis Silverman, Betty Davies, Therese A. Rando, Colin Murray Parkes, Kenneth Doka, Allan Kellehear, Sandra Bertman, Stephen Connor, Linda Goldman, Mary Vachon, and others. Their chapters discuss the most significant facets of early development, review important current work, and assess major challenges and hopes for the future in the areas of their expertise. A substantial chronology of important milestones in the contemporary movement introduces the book, frames the chapters to follow, and provides guidance for further, in-depth reading. The book first focuses on the interdisciplinary intellectual achievements that have formed the foundation of the field of thanatology. The section on institutional innovations encompasses contributions in hospice and palliative care of the dying and their families; funeral service; and death education. The section on practices addresses approaches to counseling and providing support for individuals, families, and communities on issues related to dying, bereavement, suicide, trauma, disaster, and caregiving. An Afterword identifies challenges and looks toward future developments that promise to sustain, further enrich, and strengthen the movement. KEY FEATURES: Distills the wisdom of pioneers in and major contributors to the contemporary death, dying, and bereavement movement Includes living witness accounts of the movement's evolution and important milestones Presents the best contemporary thinking in thanatology Describes contemporary institutional developments in hospice and palliative care, funeral practice, and death education Illuminates best practices in care of the dying, suicidal, bereaved, and traumatized


Approaching Death

Approaching Death

Author: Committee on Care at the End of Life

Publisher: National Academies Press

Published: 1997-10-30

Total Pages: 457

ISBN-13: 0309518253

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When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."


Insights on Death & Dying

Insights on Death & Dying

Author: Joy Ufema

Publisher: Lippincott Williams & Wilkins

Published: 2007

Total Pages: 292

ISBN-13: 9781582559735

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This book brings together the most popular and thought-provoking Insights on Death & Dying columns written by internationally acclaimed thanatologist Joy Ufema for the Nursing journal. The book offers the kind of thoughtful advice that only a seasoned practitioner skilled in the palliative arts could provide. The preface presents a history of thanatology and explains why it's such an important part of today's health care landscape. The body of the book consists of ten themed chapters filled with Joy Ufema's personal, first-hand accounts of how she helped patients, families, and co-workers through the most stressful times in their lives.


Endings

Endings

Author: Michael C. Kearl

Publisher: Oxford University Press

Published: 1989-10-26

Total Pages: 542

ISBN-13: 0199725888

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Arguing that death is the central force shaping our social life and order, Michael Kearl draws on anthropology, religion, politics, philosophy, the natural sciences, economics, and psychology to provide a broad sociological perspective on the interrelationships of life and death, showing how death contributes to social change and how the meanings of death are generated to serve social functions. Working from a social as well as a psychological perspective, Kearl analyzes traditional topics, including aging, suicide, grief, and medical ethics while also examining current issues such as the impact of the AIDS epidemic on social trust, governments' use of death symbolism, the business of death and dying, the political economy of doomsday weaponry, and death in popular culture. Incisive and original, this book maps the separate contributions of various social institutions to American attitudes toward death, observing the influence of each upon the broader cultural outlook on life.


Top Five Regrets of the Dying

Top Five Regrets of the Dying

Author: Bronnie Ware

Publisher: Hay House, Inc

Published: 2019-08-13

Total Pages: 322

ISBN-13: 1401956009

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Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.