Intractable illnesses such as advanced cancer, AIDS, and chronic progressive neurological diseases present health-care professionals with an array of symptoms and ethical issues that demand extensive exploration and consideration. As the quest for advances in symptomatology continues, it is imperative to disseminate and integrate the knowledge currently available in palliative medicine. The International Symposium on Current Perspectives and Future Directions in Palliative Medicine was held in Tokyo in October 1997 to provide health-care professionals with a multidisciplinary approach for improving comprehensive palliative care. With invited speakers from North America, Europe, and Japan, the symposium focused on standard management and clinical trials of control of symptoms such as pain and cachexia, ethics in palliative medicine, the economics of health care, quality-of-life research, management of depression, and patient education.
"Over the centuries healers have been called upon to palliate, or "make better," myriad afflictions. Only in recent times has the notion arisen that our primary goal is to identify and cure diseases, thereby prolonging life and, presumably, preventing distressing symptoms and associated suffering. The medical advances made in recent decades are indeed so astonishing that one could almost forgive those who would hope that a cure-based medical system might eliminate scourges such as pain, chronic illness, and the debilitations of old age. However, we remain mortal. I recall a scene from Bernado Bertolucci's film Little Buddha in which a child sits with a wise, old monk looking out over a bustling city in Nepal. "What is impermanence?" asks the child. The monk answers, "See these people. All of us and all the people alive today. One hundred years from now we'll all be dead. That is impermanence." Intellectually, I understand the truth of this statement. However that more than 6 billion people will die in a period of 100 years is beyond my comprehension"--
Public health approaches to palliative care have been growing in policy importance and practice acceptance. This innovative volume explores the major concepts, practice examples, and practice guidelines for this new approach. The goal of ‘comprehensive care’ – seamless support for patients as they transition between home based care and inpatient services – relies on the principles of health promotion and community development both to ensure services are available and importantly appropriate for patients’ needs. In developing contexts, where hospitals and hospices may be inaccessible, a public health approach provides not only continuity of care but greater access to good end of life care. This book provides both a historical and conceptual overview whilst offering practical case examples from affluent and developing contexts, in a range of clinical settings. Finally, it draws together research-based guidelines for future practice. Essential reading for public health researchers and practitioners with an interest in end of life care and global health as well as those involved in developing palliative care provision, International Perspectives on Public Health and Palliative Care is the first volume to present an overview of theory and practice in this emerging field.
This book provides an unique resource for registered nurses working in hospice palliative care at home and for the community, outside of acute care settings and also incorporates literature related to palliative care in acute health care settings, as part of the overall services and supports required. Very few resources exist which specifically address hospice palliative care in the home setting, despite the fact that most palliative care occurs outside acute care settings and is primarily supported by unpaid family caregivers. An overview of the concerns for individuals and families, as well as specific nursing interventions, from all ages would be an excellent support for nursing students and practicing registered nurses alike. The book structure begins with a description of the goals and objectives of hospice palliative care and the nursing role in providing excellent supportive care. Chapters include research findings and specifically research completed by the authors in the areas of pediatric palliative care, palliative care for those with dementia, and the needs of family caregivers in bereavement. Interventions developed by the editors are provided in this book, such as the “Finding Balance Intervention” for bereaved caregivers; the “Reclaiming Yourself” tool for bereaved spouses of partners with dementia; and The Keeping Hope Possible Toolkit for families of children with life threatening and life limiting illnesses. The development and application of these theory-based interventions are also highlighted. Videos and vignettes written by family caregivers about what was helpful for them, provide a patient-and family-centered approach./div The book will benefit nursing students, educators and practicing registered nurses by providing information, theory, and evidence from research.
Individuals and families face challenges at the end of life that can vary significantly depending on social and cultural contexts, yet more than ever is now known about the needs that cut across the great diversity of experiences in the face of dying and death. A number of behavioural interventions and clinical approaches to addressing these needs have been developed and are available to help providers care for clients and assist them in achieving their goals. Perspectives on Palliative and End-of-Life Care: Disease, Social and Cultural Contexts explores how these interventions can be used to address a range of issues across social and cultural contexts for those in need of end of life care. With perspectives from experienced clinicians, providers, and caregivers from around the world, the book offers a strong foundation in contemporary evidence-based practice alongside seasoned practice insights from the field and explores interventions for people as diverse as HIV caregivers in Africa and individuals dying with dementia. In addition, readers will learn about the process of caring for individuals with chronic illnesses including severe mental illness; weigh the impact of policy regulations on the availability of and access to palliative care and interventions; and be able to compare the different issues experienced by family caregivers and formal caregivers. As the companion volume to Perspectives on Behavioural Interventions in Palliative and End-of-Life Care, this book will be of interest to a wide variety of individuals, such as academics, researchers and postgraduates in the fields of mental health, medicine, psychology and social work. It will also be essential reading for healthcare providers and trainees from psychosocial and palliative medicine, social work and nursing.
The need for Palliative Care is increasing around the world due to demographic change, the extension of the lifespan in general and the advances of medical and oncological treatment. In Palliative Care quality of life and family-centred care are paramount. The book, entitled Palliative Care - Current Practice and Future Perspectives, offers an insightful introduction to different concepts and approaches, presenting a multidisciplinary perspective and diverse ways of insights provided by a team of authors from various disciplines and regions across Europe, Asia, and Africa. The different chapters divided into five sections provide an insight into current practices from different fields and countries. It highlights current knowledge and experiences and discusses ideas for the future development of Palliative Care.
This book provides a new outlook on the practice of palliative care worldwide. All five continents are represented in this book by global leaders in this relatively new subspecialty. The chapters in the book re-emphasize the fact that in the 21st century, most patients in the world still lack this elementary tool to alleviate suffering physical, and even more so, emotional and spiritual which are so critical to people, especially when patients conditions become fatal. An issue that comes up again and again from almost all parts of the world, regardless of religion and traditional backgrounds, ethnicities, beliefs or faith, refers to the critical lack of basic and advanced training for physicians, nurses, volunteers and the public at large. Healthcare professionals are currently not equipped with the principles of communication with both the patient and his/her relatives. These kinds of drawbacks have to be corrected immediately. Moreover, training courses, symposia and conferences do not require large amounts of funds and can be carried out in local countries and/or regions which share a common language, culture and faith. Each country needs to create a nucleus of local champions who would then take it upon themselves to educate as many people in their own countries with the support, guidance and encouragement of international organizations that are dedicated to this mission. Almost all of the larger international institutions, e.g., the UN and WHO, preach for improvement of the current situation. Unfortunately, responses are extremely slow and not efficient. This book calls for the global health community to urgently respond and bring about a rapid change in a totally unjustified situation that still prevails in over three-quarters of the world.
Current projections indicate that by 2050 the number of people aged over 80 years old will rise to 395 million and that by this date 25-30% of people over the age of 85 will show some degree of cognitive decline. Palliative care for older people: A public health perspective provides a comprehensive account of the current state of palliative care for older people worldwide and illustrates the range of concomitant issues that, as the global population ages, will ever more acutely shape the decisions of policy-makers and care-givers. The book begins by outlining the range of policies towards palliative care for older people that are found worldwide. It follows this by examining an array of socio-cultural issues and palliative care initiatives, from the care implications of health trajectories of older people to the spiritual requirements of palliative care patients, and from the need to encourage compassion towards end-of-life care within communities to the development of care pathways for older people. Palliative care for older people: A public health perspective is a valuable resource for professionals and academics in a range of healthcare and public health fields to understand the current state of policy work from around the world. The book also highlights the social-cultural considerations that influence the difficult decisions that those involved in palliative care face, not least patients themselves, and offers examples of good practice and recommendations to inspire, support, and direct healthcare policy and decision-making at organisational, regional, national and international levels.
This second edition provides the most up-to-date information on all aspects of palliative care including recent developments (including COVID-19), global policies, service provision, symptom management, professional aspects, organization of services, palliative care for specific populations, palliative care emergencies, ethical issues in palliative care, research in palliative care, public health approaches and financial aspects of care. This new Textbook of Palliative Care remains a unique, comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still needs to be explained. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and theirfamilies. However, the science of palliative care is advancing and this new edition will contribute to a better understanding of this specialty. This new edition offers 20 new chapters out of over 120, written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This new Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so the Editors and contributors from all over the world aim to keep this Textbook updated so that the reader can find new evidence and approaches to care.
