'Social Aspects of Care' provides an overview of financial and mental stress illness places, not just on the patient, but on the family as well. This volume contains information on how to support families in palliative care, cultural considerations important in end-of-life care, sexuality and the impactof illness, planning for the actual death, and bereavement.
Persisting caregiving burden causes health problems among family caregivers. In this diverse, global society, culturally sensitive care for both patients and their family has been emphasized. Exploring interactions of race/ethnicity and other cultural components with caregiving patterns and coping styles is important. Furthermore, cultural values interacted with race/ethnicity shape different patterns of using social support and coping styles, and thereby explain differing mental health outcomes among family caregivers. Examining the influence of cultural factors is important to develop culturally sensitive interventions targeting potentially modifiable social and cultural factors that delineate coping mechanisms and resilience. This dissertation consists of the introduction (Chapter 1), three manuscripts regarding family caregiving in palliative and hospice care that are presented in three chapters (Chapters 2, 3, and 4) and the conclusion (Chapter 5). Chapter 2 is a quantitative secondary analysis study and examines the effect of the interaction between race/ethnicity and other cultural factors on mental health among family caregivers. The findings of this study suggested that we can refine culturally tailored interventions focusing on modifiable cultural predictors such as family functioning and trust in providers interacted with race/ethnicity for improving mental health among ethnically diverse family caregivers of pediatric patients in intensive care units. Chapter 3 is a qualitative secondary analysis study and aims to identify challenges, possible solutions that are resources for resilience, and expected consequences from hospice dementia caregivers' perspectives. The findings of this study suggested that there are several resources for enhancing resilience among family caregivers of hospice geriatric patients with dementia. Chapter 4 is a systematic narrative review. This review identified the studies reporting on the interconnected relationships among cultural components and social determinants of health including race/ethnicity, and the impact of these relationships on resilience and coping mechanisms among family caregivers of older adults in palliative and hospice care settings. Overall, my dissertation examines resilience and coping mechanisms, which are differently shaped by potentially modifiable social and cultural factors that are closely related to race/ethnicity among family caregivers. My research will provide guidance for developing culturally tailored interventions to support the patient-family caregiver dyads in palliative and hospice care.
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
This open access book aims to provide a comprehensive but practical overview of the knowledge required for the assessment and management of the older adult with or at risk of fragility fracture. It considers this from the perspectives of all of the settings in which this group of patients receive nursing care. Globally, a fragility fracture is estimated to occur every 3 seconds. This amounts to 25 000 fractures per day or 9 million per year. The financial costs are reported to be: 32 billion EUR per year in Europe and 20 billon USD in the United States. As the population of China ages, the cost of hip fracture care there is likely to reach 1.25 billion USD by 2020 and 265 billion by 2050 (International Osteoporosis Foundation 2016). Consequently, the need for nursing for patients with fragility fracture across the world is immense. Fragility fracture is one of the foremost challenges for health care providers, and the impact of each one of those expected 9 million hip fractures is significant pain, disability, reduced quality of life, loss of independence and decreased life expectancy. There is a need for coordinated, multi-disciplinary models of care for secondary fracture prevention based on the increasing evidence that such models make a difference. There is also a need to promote and facilitate high quality, evidence-based effective care to those who suffer a fragility fracture with a focus on the best outcomes for recovery, rehabilitation and secondary prevention of further fracture. The care community has to understand better the experience of fragility fracture from the perspective of the patient so that direct improvements in care can be based on the perspectives of the users. This book supports these needs by providing a comprehensive approach to nursing practice in fragility fracture care.
Spiritual, Religious, and Cultural Aspects of Care is the fifth volume in the HPNA Palliative Nursing Manuals series. Chapters address how to conduct a spiritual assessment of patients and families, spiritual interventions including compassionate presence, listening deeply, bearing witness, and being compassionate, how to partner with the patient and family to ensure culture guides the plan of care, how to find meaning in illness, the many dimensions of hope and its influence on the dying process. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.
Cancer Pain Management, Second Edition will substantially advance pain education. The unique combination of authors -- an educator, a leading practitioner and administrator, and a research scientist -- provides comprehensive, authoritative coverage in addressing this important aspect of cancer care. The contributors, acknowledged experts in their areas, address a wide scope of issues. Educating health care providers to better assess and manage pain and improve patientsrsquo; and familiesrsquo; coping strategies are primary goals of this book. Developing research-based clinical guidelines and increasing funding for research is also covered. Ethical issues surrounding pain management and health policy implications are also explored.
Table of contents: Spiritual assessment / Elizabeth Johnston Taylor Spiritual care intervention / Rev. Pamela Baird Cultural considerations in palliative care / Polly Mazanec and Joan T. Panke Meaning in illness / Tami Borneman and Katherine Brown-Saltzman The meaning of hope in the dying / Valerie T. Cotter and Anessa M. Foxwell.
The vast majority of care provided to adults and elders with chronic illness is given in the home, most often by family members. The caregiver's role is daunting; caregiving is often referred to as a 'career,' requiring long hours and arduous tasks. Primary caregivers show higher rates of morbidity and mortality, and caregiving is a major source of stress and burden to caregiving families. Presently, very little support is available to caregivers from either State or Federal agencies. However, awareness of this worsening problem is growing among health professionals and policy makers. The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness is written for individuals in the helping professions who are in roles that interface with or serve family caregivers who are supporting an adult or elder with a chronic condition. The volume includes eight disease-specific chapters written by experts from various disciplines. Each discusses the caregiving role and includes a thorough review of the literature on the characteristics of caregivers and care-recipients, including related care needs, issues, and challenges unique to that chronic illness. Chapters also review the extant literature on caregiver interventions. An Evidence Table is included in each of these chapters so that the reader can easily judge the quality of evidence supporting the intervention studies. Finally, each chapter includes two case studies describing common problems encountered by caregivers, along with descriptions of interventions used to address these problems. The final chapter summarizes the state of the science on caregiving roles and caregiver interventions and discusses the most relevant challenges and barriers faced by today's caregivers and caregiver advocates. This book will be valuable to clinicians and those in the helping professions, as well as academics and researchers with an interest in the study of family caregiving and caregiver interventions, and to health administrators, public officials, and policy makers concerned with chronic illness care and management.
The Oxford Textbook of Palliative Nursing is the definitive text on nursing care of the seriously ill and dying. It is a comprehensive work addressing all aspects of palliative care including physical, psychological, social and spiritual needs. The text is written by leaders in the field and includes an impressive section on international palliative care. Each chapter includes case examples and a strong evidence base to support the highest quality of care. The book is rich with tables and figures offering practical resources for clinical practice across all settings of care and encompassing all ages from pediatrics to geriatrics.
