"Counseling Persons with Parkinson's Disease offers a distinctive, practical, philosophically grounded, and person-centered approach to counseling those living with Parkinson's disease and other chronic illnesses. As a seasoned teacher of professional counselors who also lives with Parkinson's, the author demonstrates that chronic illness requires accepting and living with profound loss, but that this loss may lead to personal transformation and constructive ends, wherein one finds new hope, meaning, purpose, happiness, and passion for living. Equal parts memoir and professional resource, this book guides clinicians who give counsel, educators who teach counseling, and anyone wanting to know more about Parkinson's disease and providing support for those who live with it. Parkinson's disease; bereavement; grief, mourning; illness; counseling; task-centered; happiness"--
What is it like to live with a chronic illness? How can counselors support those living with one? Allan Hugh Cole Jr. offers answers to these two questions and so many more in Counseling Persons with Parkinson's Disease. In ten succinct chapters, Cole offers a glimpse into life with Parkinson's and presents an insightful approach to counseling someone living with a chronic illness. Cole was diagnosed with Parkinson's Disease in 2016, and--though it hardly happened overnight--he has since discovered a new passion and drive for life. A teacher of social workers and counselors for many years, Cole has unique insight into chronic illness and the care required to help someone diagnosed with one. He delves into the importance of accepting a chronic illness and how this can create an opportunity for personal transformation, newfound meaning, and rejuvenated purpose. In addition to emphasizing the importance of self-reflection, he also offers evidence-based approaches to counseling. Cole's approaches to counseling draw on task-centered social work practice. Throughout the book, he engages with five purposeful actions tied to principles of constructivism, Aristotelian thought, American pragmatism, and theories of interpretation (hermeneutics). At once informative, realistic, humorous, and hopeful, this is a thoughtful guide for clinicians who give counsel, educators who teach counseling, people supporting someone else, and anyone living with a chronic illness.
In this "must-read" guide (Lonnie Ali), four leading doctors and advocates offer a bold action plan to prevent, care for, and treat Parkinson's disease-one of the great health challenges of our time. Brain diseases are now the world's leading source of disability. The fastest growing of these is Parkinson's: the number of impacted patients has doubled to more than six million over the last twenty-five years and is projected to double again by 2040. Harmful pesticides that increase the risk of Parkinson's continue to proliferate, many people remain undiagnosed and untreated, research funding stagnates, and the most effective treatment is now a half century old. In Ending Parkinson's Disease, four top experts provide a plan to help prevent Parkinson's, improve care and treatment, and end the silence associated with this devastating disease.
The poems in this book were written after the author was diagnosed young-onset Parkinson’s disease at the age of forty-eight. Some of the poems include reflections on and accounts of his experiences of sadness, darkness, and struggle, especially during the first year following his diagnosis. More of the poems capture experiences of deep questioning, discovery, acceptance, joy, and hope. This range of reflections and experiences is what we would expect for one who mourns and learns to live in peace after a life-changing loss.
These practice guidelines draw upon the widest relevant knowledge and evidence available to describe and inform contemporary best practice occupational therapy for people with Parkinson's disease. They include practical examples of interventions to allow occupational therapists to apply new treatments to their practice.
After being a first-round draft pick of the Detroit Red Wings in 1974, Brent Peterson embarked on a successful National Hockey League playing career that lasted 11 seasons. During his career, he played for Detroit, the Buffalo Sabres, Vancouver Canucks, and Hartford Whalers. When he retired as a player, Brent immediately became an assistant coach with the Whalers before moving back to Portland, Oregon to become the head coach of the Portland Winter Hawks of the Western Hockey League. After leading Portland to the Memorial Cup championship in 1998, Brent wanted to pursue his dream of becoming a head coach in the NHL, so he left Portland and took an assistant coaching position with the expansion Nashville Predators. Brent was later promoted to the position of associate head coach. Soon after that promotion, things took a turn when Brent was diagnosed with Parkinson's disease, a degenerative neurological disorder for which there is no known cure. For a year Brent and his wife Tami kept Brent's diagnosis a secret, even going so far as to borrow the money needed for medications so that they did not have to use Brent's insurance out of fear that the Predators would find out about his condition. When Brent's symptoms became more obvious to the people who were around him every day, he and Tami made the decision to go public with the information that would likely end any chances of a team hiring him to be their head coach. Brent made the news public first by telling the Predators following their elimination from the playoffs in 2004. The team rallied around the affable coach they call Petey. In addition to keeping his position as Nashville's associate head coach, Brent established the Peterson for Parkinson's Foundation in hopes of raising awareness and funding for research. Away from the ice, Brent received some counseling from Michael J. Fox, one of Parkinson's most visible faces. It was that same advice that Brent turned around and gave to former NBA star Brian Grant after he too was diagnosed with the same disease. Like Brent, Grant struggled with the emotional trauma of having been diagnosed with Parkinson's at such a young age. At Brent's urging, Grant established a foundation of his own. Early in the 2010-11 NHL season, Brent's symptoms became more and more difficult to manage. His balance was affected, making it dangerous for both him and the players to be out on the ice together. Following Nashville's elimination from the 2011 playoffs, Poile announced that the team had made the decision that Brent would no longer be a coach. The Predators kept Brent on staff though, creating the position of hockey operations advisor to tap into Brent's years of experience in working with the players. Those same symptoms that made Brent step away from behind the bench were also affecting his quality of life, and the decision was made to undergo the radical medical procedure called Deep Brain Stimulation. DBS is a series of four medical procedures that involve wires being surgically implanted into the brain and then connected to a device inside of the patient's chest. That device sends signals to the brain, and those signals mimic the effects of the chemical dopamine. The results were nearly instantaneous. The morning prior to the system being turned on, Brent needed assistance getting his shoes and socks on before traveling to the hospital. The next day, he was running on a treadmill at the Predators' practice facility. DBS is not a cure for Parkinson's, but it does replicate the effects that medication has on a patient. Brent still has Parkinson's and probably always will. The symptoms will reappear at some point and his condition will likely worsen again, but now he has a renewed outlook on life and a renewed ability to do the things that drive him; being a good husband, father, hockey man, and advocate for Parkinson's patients everywhere.
Patients with Parkinson's disease (PD) are known to suffer from motor symptoms of the disease, but they also experience non-motor symptoms (NMS) that are often present before diagnosis or that inevitably emerge with disease progression. The motor symptoms of Parkinson's disease have been extensively researched, and effective clinical tools for their assessment and treatment have been developed and are readily available. In contrast, researchers have only recently begun to focus on the NMS of Parkinson's Disease, which are poorly recognized and inadequately treated by clinicians. The NMS of PD have a significant impact on patient quality of life and mortality and include neuropsychiatric, sleep-related, autonomic, gastrointestinal, and sensory symptoms. While some NMS can be improved with currently available treatments, others may be more refractory and will require research into novel (non-dopaminergic) drug therapies for the future. Edited by members of the UK Parkinson's Disease Non-Motor Group (PD-NMG) and with contributions from international experts, this new edition summarizes the current understanding of NMS symptoms in Parkinson's disease and points the way towards future research.
Vanity Fair columnist Michael Kinsley escorts his fellow Boomers through the door marked "Exit." The notorious baby boomers—the largest age cohort in history—are approaching the end and starting to plan their final moves in the game of life. Now they are asking: What was that all about? Was it about acquiring things or changing the world? Was it about keeping all your marbles? Or is the only thing that counts after you’re gone the reputation you leave behind? In this series of essays, Michael Kinsley uses his own battle with Parkinson’s disease to unearth answers to questions we are all at some time forced to confront. “Sometimes,” he writes, “I feel like a scout from my generation, sent out ahead to experience in my fifties what even the healthiest Boomers are going to experience in their sixties, seventies, or eighties.” This surprisingly cheerful book is at once a fresh assessment of a generation and a frequently funny account of one man’s journey toward the finish line. “The least misfortune can do to make up for itself is to be interesting,” he writes. “Parkinson’s disease has fulfilled that obligation.”
Fully Revised and Updated The only complete and up-to-date book addressing the most common behavioral symptoms of Parkinsonís Disease (PD), including depression, anxiety, hallucinations, disrupted sleep, and compulsive behavior. When people think about PD they usually picture tremor, shuffling, and other physical changes. But as many as 90% of all Parkinsonís patients also live with behavioral symptoms that few families are prepared to handle. In this fully revised and updated edition of Making the Connection Between Brain and Behavior, Dr. Joseph H. Friedman, a leading expert in PD, explains the most common behavioral issues in down-to-earth, straightforward language, offers the most current research on available therapies and medications, and provides guidance on ways to communicate with your healthcare team for effective treatment. Now, fully updated and revised throughout and including three new chapters and two new appendices, Making the Connection Between Brain and Behavior includes even more information on a variety of treatment options, including Electroconvulsive Therapy (ECT). It is an essential resource for every person with PD and his or her family.
Neurologic Music Therapy (NMT) is a form of music therapy developed for people suffering from cognitive, sensory, or motor dysfunctions - arising from neurological diseases of the nervous system. People who can benefit from this therapy include sufferers from: stroke, traumatic brain injury, Parkinson's and Huntington's disease, cerebral palsy, Alzheimer's disease, autism, and other neurological diseases affecting cognition, movement, and communication (e.g., MS, Muscular Dystrophy, etc). The Handbook of Neurologic Music Therapy is a comprehensive landmark text presenting a new and revolutionary model of music in rehabilitation, therapy and medicine that is scientifically validated and clinically tested. Each of the 20 clinical techniques is described in detail with specific exercises, richly illustrated and with pertinent background information regarding research and clinical diagnoses. The book is a 'must have' for all neurologic music therapists and those who want to become one, clinicians, university faculty, and students alike. Physicians and therapists from other disciplines will find this tome an important guide to provide new insight how music can contribute significantly to brain rehabilitation and how Neurologic Music Therapists can be effective interdisciplinary providers in patient care.
