Chronic Fatigue Syndrome, Fibromyalgia, and Other Invisible Illnesses
Author: Katrina Berne
Publisher: Hunter House
Published: 2001
Total Pages: 402
ISBN-13: 0897932803
DOWNLOAD EBOOKSymptom checklist included in appendix A.
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Surviving and Thriving with an Invisible Chronic Illness
Author: Ilana Jacqueline
Publisher: New Harbinger Publications
Published: 2018-03-01
Total Pages: 181
ISBN-13: 1626256012
DOWNLOAD EBOOK“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.
Coping with Chronic Illness
Author: Judith Fitzgerald Miller
Publisher: F A Davis Company
Published: 2000
Total Pages: 573
ISBN-13: 9780803602984
DOWNLOAD EBOOKCompletely rewritten to include the most recent research and nursing strategies, the 3rd edition continues to expand nurses' perceptions of persons with long-term health problems in a way that emphasizes patien t and family power resources. The book includes nursing assessment, di agnosis, interventions, conceptual models, and related research.
Sick And Tired Of Feeling Sick And Tired
Author: Paul J Donoghue
Publisher: W. W. Norton & Company
Published: 2000-10-10
Total Pages: 310
ISBN-13: 9780393320657
DOWNLOAD EBOOKInvisible chronic illness (ICI) can manifest itself in chronic fatigue, chronic pain, and many other miseries that are often perceived and dismissed negatively, even by doctors. This book offers "an invaluable source of help and comfort" (Katharina Dalton, M.D.) to those who suffer from ICI. "Today" feature.
Ask Me About My Uterus
Author: Abby Norman
Publisher: Bold Type Books
Published: 2018-03-06
Total Pages: 312
ISBN-13: 1568585829
DOWNLOAD EBOOKFor any woman who has experienced illness, chronic pain, or endometriosis comes an inspiring memoir advocating for recognition of women's health issues In the fall of 2010, Abby Norman's strong dancer's body dropped forty pounds and gray hairs began to sprout from her temples. She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands -- securing a job in a hospital and educating herself over lunchtime reading in the medical library -- that she found an accurate diagnosis of endometriosis. In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.
The Invisible Kingdom
Author: Meghan O'Rourke
Publisher: Penguin
Published: 2022-03-01
Total Pages: 337
ISBN-13: 1594633797
DOWNLOAD EBOOKA NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
But You Don't Look Sick!
Author: Bette Brown
Publisher:
Published: 2019-10-08
Total Pages: 135
ISBN-13: 9781698268125
DOWNLOAD EBOOKThere is a wealth of information in this small book regarding fibromyalgia and its many co-existing illness. Topics such as medication, hints and tips, educating the family, childhood fibromyalgia (JFS), financial advice and much more is discussed.Fibromyalgia is an invisible, chronic illness for which there are no medical tests. Diagnosis is by a process of elimination and there is no recognised treatment. Symptoms include widespread aches and pains; extreme fatigue; cognitive and mobility difficulties and impairment; insomnia; gut, digestive, bowel and bladder problems; headaches/migraines; Tinnitus and many more unexplained symptoms.For many years Bette Brown has been diagnosed and living with the challenges of fibromyalgia (sometimes referred to as Fibromyalgia Syndrome or FMS). She knows how it affects every corner of your life. She's had to make several lifestyle changes to ensure she can keep fighting this life changing illness. As well as her own experience, knowledge and research, she has had access to the personal stories of others who have had the challenge and trauma of living with fibromyalgia and its effect. They have agreed Bette can share these with you. This is a down to earth, easy-to-read book about the debilitating, fluctuating and frequently misunderstood illness fibromyalgia.Ann Livingstone B.H.(Hons) Business Admin
Brain on Fire
Author: Susannah Cahalan
Publisher: Simon and Schuster
Published: 2012-11-13
Total Pages: 294
ISBN-13: 1451621396
DOWNLOAD EBOOKNOW A MAJOR MOTION PICTURE STARRING CHLOË GRACE MORETZ A “captivating” (The New York Times Book Review), award-winning memoir and instant New York Times bestseller that goes far beyond its riveting medical mystery, Brain on Fire is a powerful account of one woman’s struggle to recapture her identity. When twenty-four-year-old Susannah Cahalan woke up alone in a hospital room, strapped to her bed and unable to move or speak, she had no memory of how she’d gotten there. Days earlier, she had been on the threshold of a new, adult life: at the beginning of her first serious relationship and a promising career at a major New York newspaper. Now she was labeled as violent, psychotic, a flight risk. What happened? In an “unforgettable” (Elle), “stunningly brave” (NPR), and breathtaking narrative, Susannah tells the astonishing true story of her descent into madness, her family’s inspiring faith in her, and the lifesaving diagnosis that almost didn’t happen. “A fascinating look at the disease that…could have cost this vibrant, vital young woman her life” (People), Brain on Fire is an unforgettable exploration of memory and identity, faith and love, and a profoundly compelling tale of survival and perseverance.
I Have Fibromyalgia / Chronic Fatigue Syndrome, But It Doesn't Have Me! a Memoir
Author: Chantal K. Hoey-Sanders
Publisher:
Published: 2011
Total Pages: 200
ISBN-13: 1452501475
DOWNLOAD EBOOKYou are not alone, you can change your life and reverse this highly frustrating, emotionally confusing, very often unrecognized "invisible" illness, Fibromyalgia and Chronic Fatigue Syndrome. Chantal's book will bring you hope, insightful tips and positive results.
Women and Fibromyalgia
Author: Barbara Keddy
Publisher: iUniverse
Published: 2007-07
Total Pages: 162
ISBN-13: 0595443710
DOWNLOAD EBOOK"Dr. Keddy captures the patient's experience of living and coping with suffering in the poignant interviews with twenty women who have fibromyalgia, herself included." -Dr. Jock Murray, medical humanities and neurology professor, Dalhousie University Medical School Fibromyalgia, a musculoskeletal condition characterized by widespread chronic pain and fatigue, specific tender points, and sleep disturbance, is a major medical and social concern for physicians, employers, workers' compensation boards, and the insurance industry. But what about those who suffer from the condition? Drawing on her own experiences as well as the stories of twenty other women living with the challenges of fibromyalgia, Barbara A. Keddy, RN, PhD, discusses current theories of causes and types of treatments. She also speculates about why this condition is more prominent among women than men. By sharing these stories, Keddy highlights the invisibility of the daily difficulties fibromyalgia sufferers face. With its uniquely personal perspective, Women and Fibromyalgia validates Keddy's experience and offers hope for her and others that they will someday take back control of their bodies.
