Chronic Complex Diseases of Childhood

Chronic Complex Diseases of Childhood

Author: Shahram Yazdani

Publisher: Universal-Publishers

Published: 2011

Total Pages: 730

ISBN-13: 1599425351

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This new book is a practical guide for physicians and other professionals who care for children and adolescents with complex, chronic diseases. These disorders are a challenge because they require multiple services, the information about the disorders are scattered, and the exact treatments are not available in standard texts. To overcome these barriers, this book provides a summary of the clinical features, laboratory diagnosis, and the general and specific treatments needed for optimal care of these children. The key points are presented in a clear, succinct format, providing recommendations that can be implemented within the time span of an office or emergency room visit. Furthermore, pitfalls that are encountered are emphasized and alternatives are suggested. For example, this resource outlines: - Routine and special vaccines that are needed or contraindicated for these children - Interactions between drugs and diseases that could result in surprising adverse effects - Care of medical devices such as gastrostomy tube and nebulizer machine - Specific medical treatment with the appropriate medication dosage - Chronic wound care - Education and rehabilitation recommendations - Patient support groups This book not only provides a disease specific guide, but also instructions for creating a medical home, information on disease-drug interactions, and references for further study.


When Your Child Has a Chronic Medical Illness

When Your Child Has a Chronic Medical Illness

Author: Frank J. Sileo

Publisher: American Psychological Association (APA)

Published: 2021-01-26

Total Pages: 419

ISBN-13: 9781433833816

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Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.


A Compromised Generation

A Compromised Generation

Author: Beth Lambert

Publisher: Sentient Publications

Published: 2010

Total Pages: 376

ISBN-13: 1591810965

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The media has called attention to new ?epidemics? of chronic illness in children, including ADHD, autism, food allergies, asthma, and obesity. Are they real, and if so, why are so many children getting sick? This book, rooted in scientific literature, answers these questions for parents. Many children considered healthy by their pediatricians show subtle signs of ill health. The author explains how to prevent these illnesses, and how to help those who are already ill.


Extreme Parenting

Extreme Parenting

Author: Sharon Dempsey

Publisher: Jessica Kingsley Publishers

Published: 2008-03-15

Total Pages: 211

ISBN-13: 184642772X

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[A] valuable addition to the literature on chronic paediatric illness... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical... There is much to be learnt from this book and it deserves careful reading.' - from the Foreword by Hilton Davis, Emeritus Professor of Child Health Psychology, King's College London Parents of children with chronic illnesses experience 'extreme parenting'. Parenting under extreme circumstances, like an extreme sport, challenges us to find our true strengths, to push ourselves physically and emotionally. This book is a guide and a source of support for parents of children with long-term illnesses. Sharon Dempsey argues that by helping parents to cope with their child's condition we are ultimately helping the child, and that parents are better able to live a full, enjoyable life if they have an awareness of strategies and knowledge to cope with the difficulties of dealing with their child with a chronic illness. The guide is packed with practical advice, models of exploration and lists of action points, and will empower parents to be good advocates for their children. It will also provide health professionals with invaluable insights into the demands of living with chronic illness.


Public Health Ethics: Cases Spanning the Globe

Public Health Ethics: Cases Spanning the Globe

Author: Drue H. Barrett

Publisher: Springer

Published: 2016-04-20

Total Pages: 0

ISBN-13: 9783319238463

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This Open Access book highlights the ethical issues and dilemmas that arise in the practice of public health. It is also a tool to support instruction, debate, and dialogue regarding public health ethics. Although the practice of public health has always included consideration of ethical issues, the field of public health ethics as a discipline is a relatively new and emerging area. There are few practical training resources for public health practitioners, especially resources which include discussion of realistic cases which are likely to arise in the practice of public health. This work discusses these issues on a case to case basis and helps create awareness and understanding of the ethics of public health care. The main audience for the casebook is public health practitioners, including front-line workers, field epidemiology trainers and trainees, managers, planners, and decision makers who have an interest in learning about how to integrate ethical analysis into their day to day public health practice. The casebook is also useful to schools of public health and public health students as well as to academic ethicists who can use the book to teach public health ethics and distinguish it from clinical and research ethics.


Definition of Serious and Complex Medical Conditions

Definition of Serious and Complex Medical Conditions

Author: Institute of Medicine

Publisher: National Academies Press

Published: 1999-10-19

Total Pages: 127

ISBN-13: 0309172608

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In response to a request by the Health Care Financing Administration (HCFA), the Institute of Medicine proposed a study to examine definitions of serious or complex medical conditions and related issues. A seven-member committee was appointed to address these issues. Throughout the course of this study, the committee has been aware of the fact that the topic addressed by this report concerns one of the most critical issues confronting HCFA, health care plans and providers, and patients today. The Medicare+Choice regulations focus on the most vulnerable populations in need of medical care and other services-those with serious or complex medical conditions. Caring for these highly vulnerable populations poses a number of challenges. The committee believes, however, that the current state of clinical and research literature does not adequately address all of the challenges and issues relevant to the identification and care of these patients.


The Infectious Etiology of Chronic Diseases

The Infectious Etiology of Chronic Diseases

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2004-06-16

Total Pages: 234

ISBN-13: 0309165911

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In recent years, a number of chronic diseases have been linked, in some cases definitively, to an infectious etiology: peptic ulcer disease with Helicobacter pylori, cervical cancer with several human papillomaviruses, Lyme arthritis and neuroborreliosis with Borrelia burgdorferi, AIDS with the human immunodeficiency virus, liver cancer and cirrhosis with hepatitis B and C viruses, to name a few. The proven and suspected roles of microbes does not stop with physical ailments; infections are increasingly being examined as associated causes of or possible contributors to a variety of serious, chronic neuropsychiatric disorders and to developmental problems, especially in children. The Infectious Etiology of Chronic Diseases: Defining the Relationship, Enhancing the Research, and Mitigating the Effects, summarizes a two-day workshop held by the Institute of Medicine's Forum on Microbial Threats to address this rapidly evolving field. Participants explored factors driving infectious etiologies of chronic diseases of prominence, identified difficulties in linking infectious agents with chronic outcomes, and discussed broad-based strategies and research programs to advance the field.


Conquering Your Child's Chronic Pain

Conquering Your Child's Chronic Pain

Author: Lonnie K. Zeltzer

Publisher: Zondervan

Published: 2009-01-09

Total Pages: 420

ISBN-13: 0061976857

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“An important, compassionate book.” — Deepak Chopra “Parents! If you hava child in pain, read this book. There is hope.” — James Campbell, M.D., Professor of Jeurological Surgery and Director, Johns Hopkins University School of Medicine; Founder and President, American Pain Foundation “An outstanding book for parents of children and adolescents with chronic pain. I recommend it highly.” — Charles Berde, M.D., Ph.D., Chief, Division of Pain Medicine, Department of Anesthesiology, Children's Hospital, Boston; Professor of Anaesthesia and Pediatrics, Harvard Medical School “A valuable and important book that will be appreciated by every family struggling with a child in pain.” — Neil L. Schechter, M.D., Professor of Pediatrics, University of Connecticut School of Medicine; Director, Pain Relief Program, Connecticut Children's Medical Center “Reassuring and informative. Parents will gain hope when they discover the many available treatment options.” — Kenneth R. Goldschneider, M.D., F.A.A.P., Director, Division of Pain Management, Cincinnati Children's Hospital Medical Center and Susmita Kashikar-Zuck, Ph.D, Associate Professor of Pediatrics, Cincinnati Children's Hospital Medical Center “I hope Dr. Zeltzer continues to do subjective research on yoga so that the young generation regains freedom from pain...” — B.K.S. Iyengar “A wonderful book! Dr. Zeltzer’s approach is loving, respectful, upbeat, and best of all - successful.” — Laura Schanberg, M.D., Associate Professor, Pediatric Rheumatology, Duke University Medical Center “A must-read for any patient with chronic pain.” — Steven J. Weisman, M.D., Jane B. Pettit Chair in Pain Management, Children's Hospital of Wisconsin; Professor of Anesthesiology and Pediatrics, Medical College of Wisconsin “Now [Dr. Zeltzer’s] wisdom is available to all.” — Patrick J. McGrath, O.C., Ph.D., F.R.S.C., Canadian Institutes of Health Research Distinguished Scientist; Killam Professor of Psychology and Professor of Pediatrics and Psychiatry, Dalhousie University “This is an amazingly caring, competent, and useful book. It opens your mind but also your heart...” — Vanna Axia, Ph.D., Professor of Developmental Psychology, Child Neuro-psychiatry Specialization School, School of Medicine; Director “All [Dr. Zeltzer’s] work has resulted in real solutions for children and their parents.” — David Geffen “One of the few [books] for laypeople on chronic pain in children.” — Washington Post “Informative, practical, and well written.” — Pediatric Pain Letter


Dying in America

Dying in America

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2015-03-19

Total Pages: 470

ISBN-13: 0309303133

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For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.


Pediatric Chronic Fatigue Syndrome

Pediatric Chronic Fatigue Syndrome

Author: Kenny De Meirleir

Publisher: CRC Press

Published: 2007-02-07

Total Pages: 146

ISBN-13: 9780789035325

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Help young CFS sufferers cope with this debilitating illness Chronic Fatigue Syndrome (CFS) is a debilitating illness that can have devastating effects for those afflicted, especially children and adolescents. Pediatric Chronic Fatigue Syndrome discusses this growing problem and its many facets in depth, including the mounting prevalence of incidents in the population and detailed explanations of diagnostic criteria. Case studies are provided to illustrate the issues those afflicted with CFS face, such as increasing isolation, decreasing school attendance, the length of time it typically takes to get diagnosed, and the impact on leisure activities. Current criteria for CFS were designed for use in adults, with few studies done on assessing how appropriate these criteria are for children and adolescents. Pediatric Chronic Fatigue Syndrome provides the criteria for first-time diagnosis of pediatric CFS and includes practical recommendations developed by the International Association of Chronic Fatigue Syndrome Pediatric Case Definition Working Group. This book closely examines the potential impact that Chronic Fatigue Syndrome has on child and adolescent functioning, psychological factors, social factors, and the suffering endured from symptoms. Guidelines are provided on ways ME-CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) can be addressed in primary practice. Topics in Pediatric Chronic Fatigue Syndrome include: ME/CFS CACFS (Chronic Fatigues Syndrome in Children and Adolescents) the common problem of Munchausen-by-proxy research on the psychosocial, family, and physical functioning comparing children and adolescents with CFS and those without CFS using theory in clinical practice guidelines on how ME/CFS can be addressed in primary practice overview of CFS aspects for healthcare professionals who may be called on to diagnose or treat the illness and more Pediatric Chronic Fatigue Syndrome is timely, important information for health professionals, researchers, counselors, caregivers, parents of children and adolescents with CFS, and patients with CFS.