Dying in America

Dying in America

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2015-03-19

Total Pages: 470

ISBN-13: 0309303133

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For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.


Pediatric Palliative Care

Pediatric Palliative Care

Author: Betty Ferrell

Publisher:

Published: 2016

Total Pages: 161

ISBN-13: 0190244186

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Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.


SIDS Sudden Infant and Early Childhood Death

SIDS Sudden Infant and Early Childhood Death

Author: Roger W. Byard

Publisher:

Published: 2018-04

Total Pages: 844

ISBN-13: 9781925261677

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This volume covers aspects of sudden infant and early childhood death, ranging from issues with parental grief, to the most recent theories of brainstem neurotransmitters. It also deals with the changes that have occurred over time with the definitions of SIDS (sudden infant death syndrome), SUDI (sudden unexpected death in infancy) and SUDIC (sudden unexpected death in childhood). The text will be indispensable for SIDS researchers, SIDS organisations, paediatric pathologists, forensic pathologists, paediatricians and families, in addition to residents in training programs that involve paediatrics. It will also be of use to other physicians, lawyers and law enforcement officials who deal with these cases, and should be a useful addition to all medical examiner/forensic, paediatric and pathology departments, hospital and university libraries on a global scale. Given the marked changes that have occurred in the epidemiology and understanding of SIDS and sudden death in the very young over the past decade, a text such as this is very timely and is also urgently needed.


To Train Up a Child

To Train Up a Child

Author: Michael Pearl

Publisher: No Greater Joy Ministries

Published: 1994-03

Total Pages: 0

ISBN-13: 9781892112002

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"Turning the hearts of the fathers to the children"--Cover.


Jephthah’s Daughter, Sarah’s Son

Jephthah’s Daughter, Sarah’s Son

Author: Maria E. Doerfler

Publisher: Univ of California Press

Published: 2020-01-02

Total Pages: 413

ISBN-13: 0520972961

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Late antiquity was a perilous time for children, who were often the first victims of economic crisis, war, and disease. They had a one in three chance of dying before their first birthday, with as many as half dying before age ten. Christian writers accordingly sought to speak to the experience of bereavement and to provide cultural scripts for parents who had lost a child. These late ancient writers turned to characters like Eve and Sarah, Job and Jephthah as models for grieving and for confronting or submitting to the divine. Jephthah's Daughter, Sarah’s Son traces the stories these writers crafted and the ways in which they shaped the lived experience of familial bereavement in ancient Christianity. A compelling social history that conveys the emotional lives of people in the late ancient world, Jephthah's Daughter, Sarah's Son is a powerful portrait of mourning that extends beyond antiquity to the present day.


After the Death of a Child

After the Death of a Child

Author: Ann K. Finkbeiner

Publisher:

Published: 1996

Total Pages: 296

ISBN-13:

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For a parent, losing a child is the most devastating event that can occur. Most books on the subject focus on grieving and recovery, but as most parents agree, there is no recovery from such a loss. This book examines the continued love parents feel for their child and the many poignant and ingenious ways they devise to preserve the bond. Through detailed profiles of parents, Ann Finkbeiner shows how new activities and changed relationships with their spouse, friends, and other children can all help parents preserve a bond with the lost child. Refusing to fall back on pop jargon about "recovery" or to offer easy suggestions or standardized timelines, Finkbeiner's is a genuine and moving search to come to terms with loss. Her complex profiles of parents resonate with the honesty and authenticity of uncomfortable emotions expressed and, most importantly, shared with others experiencing a similar loss. Finally, each profile exemplifies the many heroic ways parents learn to live with their pain, and by so doing, honor the lives their children should have lived.


Death Without Weeping

Death Without Weeping

Author: Nancy Scheper-Hughes

Publisher: Univ of California Press

Published: 2023-11-10

Total Pages: 632

ISBN-13: 0520911563

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When lives are dominated by hunger, what becomes of love? When assaulted by daily acts of violence and untimely death, what happens to trust? Set in the lands of Northeast Brazil, this is an account of the everyday experience of scarcity, sickness and death that centres on the lives of the women and children of a hillside "favela". Bringing her readers to the impoverished slopes above the modern plantation town of Bom Jesus de Mata, where she has worked on and off for 25 years, Nancy Scheper-Hughes follows three generations of shantytown women as they struggle to survive through hard work, cunning and triage. It is a story of class relations told at the most basic level of bodies, emotions, desires and needs. Most disturbing - and controversial - is her finding that mother love, as conventionally understood, is something of a bourgeois myth, a luxury for those who can reasonably expect, as these women cannot, that their infants will live.


The Health Effects of Cannabis and Cannabinoids

The Health Effects of Cannabis and Cannabinoids

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2017-03-31

Total Pages: 487

ISBN-13: 0309453070

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Significant changes have taken place in the policy landscape surrounding cannabis legalization, production, and use. During the past 20 years, 25 states and the District of Columbia have legalized cannabis and/or cannabidiol (a component of cannabis) for medical conditions or retail sales at the state level and 4 states have legalized both the medical and recreational use of cannabis. These landmark changes in policy have impacted cannabis use patterns and perceived levels of risk. However, despite this changing landscape, evidence regarding the short- and long-term health effects of cannabis use remains elusive. While a myriad of studies have examined cannabis use in all its various forms, often these research conclusions are not appropriately synthesized, translated for, or communicated to policy makers, health care providers, state health officials, or other stakeholders who have been charged with influencing and enacting policies, procedures, and laws related to cannabis use. Unlike other controlled substances such as alcohol or tobacco, no accepted standards for safe use or appropriate dose are available to help guide individuals as they make choices regarding the issues of if, when, where, and how to use cannabis safely and, in regard to therapeutic uses, effectively. Shifting public sentiment, conflicting and impeded scientific research, and legislative battles have fueled the debate about what, if any, harms or benefits can be attributed to the use of cannabis or its derivatives, and this lack of aggregated knowledge has broad public health implications. The Health Effects of Cannabis and Cannabinoids provides a comprehensive review of scientific evidence related to the health effects and potential therapeutic benefits of cannabis. This report provides a research agendaâ€"outlining gaps in current knowledge and opportunities for providing additional insight into these issuesâ€"that summarizes and prioritizes pressing research needs.