Biographical note: Sally Chivers is a Full Professor in the Departments of English and Gender & Women's Studies at Trent University in Peterborough, Ontario, and a founding executive member of the Trent Centre for Aging and Society. Ulla Kriebernegg is an Associate Professor at the Center for Inter-American Studies of the University of Graz, Austria, and chair of the European Network in Aging Studies.
Institutional care for seniors offers a cultural repository for fears and hopes about an aging population. Although enormous changes have occurred in how institutional care is structured, the legacies of the poorhouse still persist, creating panicked views of the nursing home as a dreaded fate. The paradoxical nature of a space meant to be both hospital and home offers up critical tensions for examination by age studies scholars. The essays in this book challenge stereotypes of institutional care for older adults, illustrate the changes that have occurred over time, and illuminate the continuities in the stories we tell about nursing homes.
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
In its brief but vigorous history, gerontology has spawned a broadening range of specializations. One of the newest of such specializations is narrative gerontology, so named for its emphasis on the biographical, or inside, dimensions of the experience of aging. Telling stories about our world, our relationships, and ourselves is fundamental to how we make meaning. Everything from our history to our religion and our memories to our emotions is linked to the tales we tell ourselves, and others, about where we have come from and where we are going. They are central to who we are. The biographical side of human life is every bit as critical to fathom as the biological side, if we seek a more balanced, positive, and optimistic perspective on what aging is about; if we would honor the dignity and complexity, the humanity and uniqueness of the lives of older persons, no matter what their health or economic standing. In this respect, a narrative approach is particularly suited to the exploration of such topics as meaning, spirituality, and wisdom, and the connections they share. This volume reflects a selection of new directions and insights, and constitutes a general broadening and deepening of narrative gerontology, exploring its implications for theory and research in the field of aging, and for the quality of life of older adults themselves. Such deepening indicates a greater refinement of thought, method, and intervention. The evolution of narrative gerontology is also evidenced by a significant increase in the number of faculty and graduate students engaged in research in this area, as well as by increasing collaboration among researchers, practitioners, and administrators in applying narrative insights to contexts such as long term care - indeed, healthcare in general. These initiatives have given rise to the phrase, "narrative care as core care".
Introducing life story work, a way for people with dementia to connect with their relatives, carers and the professionals working with them. This evidence-based book explains the many benefits of life story work, with practical guidance for introducing it in a variety of settings. The authors show how life story work can empower people with dementia to inform care practitioners and family members what care and support they may need now and in the future, by taking into account their past and their future wishes and aspirations. The book includes practical information on how to get started, ethical considerations such as consent and confidentiality, and considers issues of diversity and how to address them. The voices of practitioners, researchers and family carers sit alongside those of people living with dementia to present a wide-range of perspectives on life story work.
The target audience is women between the ages of 42 and 65. They represent the majority of unpaid care givers for loved ones with dementia. Dementia Home Care: How to Prepare Before, During and After will examine taking on the role of care giver and help them make informed decisions about in-home care giving. It will give examples of how to create a safe living space, how to use distraction techniques, and suggest available resources for the care giver. It will emphasize the role of care giver respite and participating in dementia community support to relieve the daily stress of dementia care. Home care giver, Tracy Cram Perkins, will use anecdotes drawn from twelve years of experience. Demetia Home Care will cover aggressive behavior, coping strategies, memory aids, communication aids, and support services. There is a space at the end of each chapter for the reader to record special or humorous moments with their loved ones. And it will address the empty nester experience after the loss of a loved one—to a nursing facility or to death—rarely covered in other books of this genre. This life-lesson of care giving is not meant to destroy us but meant to remind us to take care of ourselves, forgive ourselves, accept ourselves. To know other people trudge up this same hill with us every day. To pay forward kindness in some measure. To know laughter has not abandoned us. At the end, to know some measure of joy. -- Tracy Cram Perkins
Among the issues confronting America is long-term care for frail, older persons and others with chronic conditions and functional limitations that limit their ability to care for themselves. Improving the Quality of Long-Term Care takes a comprehensive look at the quality of care and quality of life in long-term care, including nursing homes, home health agencies, residential care facilities, family members and a variety of others. This book describes the current state of long-term care, identifying problem areas and offering recommendations for federal and state policymakers. Who uses long-term care? How have the characteristics of this population changed over time? What paths do people follow in long term care? The committee provides the latest information on these and other key questions. This book explores strengths and limitations of available data and research literature especially for settings other than nursing homes, on methods to measure, oversee, and improve the quality of long-term care. The committee makes recommendations on setting and enforcing standards of care, strengthening the caregiving workforce, reimbursement issues, and expanding the knowledge base to guide organizational and individual caregivers in improving the quality of care.
The Arts of Penelope: Art-Making and Making Artifacts, by Ellie Rose and Shannon Scrofano -- Who Is a Hero in Your Own Life?, by Jolene Hansen -- Mamie's Story, by Beth Meyer-Arnold -- On Playing the Suitors: In Dialogue, by Daniel Cohen and Rusty Tym -- On Playing Penelope: In Dialogue, by Joyce Heinrich and Nikki Zaleski -- Five Seconds after the Audience Left, by Anne Basting -- The Magic of the Movement, by Anne Basting and Leonard Cruz -- Finding an Ending, by Maureen Towey -- Excerpt from Finding Penelope, Scene 5, by Anne Basting -- Part Five: Evaluation and Evolution -- Beyond Penelope at Luther Manor, by Ellie Rose -- On the Challenges of Continuity in Civic Arts Projects: In Dialogue, by Michael Rohd and Anne Basting -- Making Structural Changes in the Curriculum through Penelope, by Robin Mello and Anne Basting -- What Did the Research Tell Us?, by Robin Mello and Julie Voigts -- The Essential Elements of Penelope, by Robin Mello and Julie Voigts -- The Landscape beyond Penelope, by Anne Basting, Ellie Rose, and Maureen Towey -- Appendices -- Appendix 1. Penelope Project Timeline -- Appendix 2. Penelope Project Team -- Appendix 3. Partnership Agreement -- Appendix 4. Prompts for Penelope Activities and Challenges -- Appendix 5. Storytelling and Playwriting Syllabus -- Appendix 6. A Note on the Program Evaluation, by Robin Mello -- Appendix 7. Funding Partners -- Appendix 8. Survey Questions -- Contributors -- Index
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
What caregiving role will you play? How will you avoid the caregiving cost drain? Are you prepared for the end? How will you overcome stress, burn-out, depression, guilt? How will you find happiness and support? How do you start the caregiving conversation with a loved one? Are you caring for yourself while caregiving? More than 65 million Americans are caring for a loved one yet most dont know what they are facing or where to get help. Caregiving expert Sherri Snelling shines a spotlight on the world of caregiving and interviews celebrities who have taken the caregiving journey and shared their lessons learned. This how-to guide also covers caregiving topics A to Z, self-care advice and more. Inside you will find numerous expert interviews and tips on how to have the C-A-R-E Conversation and how to find your Me Time Monday. Written to inspire and empower you, this is your screenplay for health and happiness while caregiving. As Dorothy said in The Wizard of Oz, Toto, I have a feeling were not in Kansas anymore. Welcome to the Cast of Caregivers.
