"Elliott's absorbing account will make readers think again about the ways that science shapes our personal identities."—American Scientist Americans have always been the world's most anxiously enthusiastic consumers of "enhancement technologies." Prozac, Viagra, and Botox injections are only the latest manifestations of a familiar pattern: enthusiastic adoption, public hand-wringing, an occasional congressional hearing, and calls for self-reliance. In a brilliant diagnosis of our reactions to self-improvement technologies, Carl Elliott asks questions that illuminate deep currents in the American character: Why do we feel uneasy about these drugs, procedures, and therapies even while we embrace them? Where do we draw the line between self and society? Why do we seek self-realization in ways so heavily influenced by cultural conformity?
By New Yorker and Atlantic writer Carl Elliott, a readable and even funny account of the serious business of medicine. A tongue-in-cheek account of the changes that have transformed medicine into big business. Physician and medical ethicist Carl Elliott tracks the new world of commercialized medicine from start to finish, introducing the professional guinea pigs, ghostwriters, thought leaders, drug reps, public relations pros, and even medical ethicists who use medicine for (sometimes huge) financial gain. Along the way, he uncovers the cost to patients lost in a health-care universe centered around consumerism.
Drawing on the work of Ludwig Wittgenstein and novelists such as Walker Percy, Paul Auster and Graham Greene, A Philosophical Disease brings to the bioethical discussion larger philosophical questions about the sense and significance of human life. Carl Elliott moves beyond the standard menu of bioethical issues to explore the relationship of illness to identity, and of mental illness to spiritual illness. He also examines the treatment of children born with ambiguous genitalia, the claims of Deaf culture, and the morality of self-sacrifice. This book focuses on a different sensibility in bioethics; how we use concepts, and how they relate to our own particular social institutions.
Carte Blanche is the alarming tale of how the right of Americans to say "no" to risky medical research is eroding at a time when we are racing to produce a vaccine and treatments for Covid-19. This medical right that we have long taken for granted was first sacrificed on the altar of military expediency in 1990 when the Department of Defense asked for and received from the FDA a waiver that permitted it to force an experimental anthrax vaccine on the ranks of ground troops headed for the Persian Gulf. Since then, the military has pressed ahead to impose nonconsensual testing of the blood substitute PolyHeme in civilian urbanities, quietly enrolling more than 20,000 non-consenting subjects since 2005. Most Americans think that their right to give or withhold consent is protected by law, but the passing in 1996 of modifications to the Code of Federal Regulations, such as statute CFR 21 50.24, now permit investigators to conduct research wtih trauma victims without their consent or event their knowledge. More than a dozen studies since have used the 1996 loophole to recruit large numbers of subjects without their knowledge. The erosion of consent is the result of a U.S. medical-research system that has proven again and again that it cannot be trusted.
A star writer for the New York Times Styles section captures the follies, frauds, and fanaticism that fuel the American pursuit of youth and beauty in a wickedly revealing excursion into the burgeoning business of cosmetic enhancement. Americans are aging faster and getting fatter than any other population on the planet. At the same time, our popular notions of perfect beauty have become so strict it seems even Barbie wouldn’t have a chance of making it into the local beauty pageant. Aging may be a natural fact of life, but for a growing number of Americans its hallmarks—wrinkles, love handles, jiggling flesh—are seen as obstacles to be conquered on the path to lasting, flawless beauty. In Beauty Junkies Alex Kuczynski, whose sly wit and fearless reporting in the Times has won her fans across the country, delivers a fresh and irresistible look at America's increasingly desperate pursuit of ultimate beauty by any means necessary. From a group of high-maintenance New York City women who devote themselves to preserving their looks twenty-four hours a day, to a “surgery safari” in South Africa complete with “after” photographs of magically rejuvenated patients posing with wild animals, to a podiatrist's office in Manhattan where a “foot face-lift” provides women with the right fit for their $700 Jimmy Choos, Kuczynski portrays the all-American quest for self-transformation in all its extremes. In New York, lawyers become Botox junkies in an effort to remain poker-faced. In Los Angeles, women of an uncertain age nip and tuck their most private areas, so that every inch of their bodies is as taut as their lifted faces. Across the country, young women graduating from high school receive gifts of breast implants – from their parents. As medicine and technology stretch the boundaries of biology, Kuczynski asks whether cosmetic surgery might even be part of human evolution, a kind of cosmetic survival of the fittest – or firmest? With incomparable portraits of obsessive patients and the equally obsessed doctors who cater to their dreams, Beauty Junkies examines the hype, the hope, and the questionable ethics surrounding the advent of each new miraculous technique. Lively and entertaining, thought-provoking and disturbing, Beauty Junkies is destined to be one of the most talked-about books of the season.
Observing Bioethics examines the history of bioethics as a discipline related not only to modern biology, medicine, and biotechnology, but also to the core values and beliefs of American society and its courts, legislatures, and media. The book is written from the perspective of two social scientists--a sociologist of medicine(Renee C. Fox) and a historian of medicine (Judith P. Swazey)--who have participated in bioethics since the emergence of this multidisciplinary field more than 30 years ago. Fox and Swazey draw on first-hand observations and experiences in a variety of American bioethical settings; face-to-face interviews with first- and second-generation figures in the genesis and early unfolding of bioethics; a detailed examination of the theatrical media coverage of what was considered to be a banner event in the annals of bioethics (the creation and birth of the cloned sheep, Dolly); case studies of how bioethics has internationally developed; and a large corpus of primary documents and secondary source materials. While recognizing the intellectual, moral, and sociological importance of American bioethics, Fox and Swazey are critical of its characteristics. Foremost among these are what they identify as the problems of thinking socially, culturally, and internationally in American bioethics; the 'tenuous interdisciplinarity' of the field; and the troubling extent to which the 'culture wars' have penetrated bioethics. This book will appeal to a wide range of doctors, scientists, and academics who are involved in the history and sociology of bioethics.
Nowadays, emancipation evokes scenarios of an acquired freedom, and is closely linked to autonomy. Emancipation as liberation and freedom imposes a reflection on the conditions in which we live, as well as a question concerning what people can free themselves from and what is not possible to liberate oneself from. This collection investigates the possibility of relating to emancipation through the eyes of the ethicist. What does emancipation mean in the contemporary moral and political landscape? How is emancipation possible, and from and towards what can humankind aspire to emancipate? Which are the unattended promises of emancipation? Where, when, and to whom can one speak of emancipation? Assuming a clear ethical and moral standpoint, the contributions collected here reply to such questions, firstly by re-semantising this word and then by re-placing it within different philosophical traditions.
Personalized healthcare—or what the award-winning author Donna Dickenson calls "Me Medicine"—is radically transforming our longstanding "one-size-fits-all" model. Technologies such as direct-to-consumer genetic testing, pharmacogenetically developed therapies in cancer care, private umbilical cord blood banking, and neurocognitive enhancement claim to cater to an individual's specific biological character, and, in some cases, these technologies have shown powerful potential. Yet in others they have produced negligible or even negative results. Whatever is behind the rise of Me Medicine, it isn't just science. So why is Me Medicine rapidly edging out We Medicine, and how has our commitment to our collective health suffered as a result? In her cogent, provocative analysis, Dickenson examines the economic and political factors fueling the Me Medicine phenomenon and explores how, over time, this paradigm shift in how we approach our health might damage our individual and collective well-being. Historically, the measures of "We Medicine," such as vaccination and investment in public-health infrastructure, have radically extended our life spans, and Dickenson argues we've lost sight of that truth in our enthusiasm for "Me Medicine." Dickenson explores how personalized medicine illustrates capitalism's protean capacity for creating new products and markets where none existed before—and how this, rather than scientific plausibility, goes a long way toward explaining private umbilical cord blood banks and retail genetics. Drawing on the latest findings from leading scientists, social scientists, and political analysts, she critically examines four possible hypotheses driving our Me Medicine moment: a growing sense of threat; a wave of patient narcissism; corporate interests driving new niche markets; and the dominance of personal choice as a cultural value. She concludes with insights from political theory that emphasize a conception of the commons and the steps we can take to restore its value to modern biotechnology.
The ethics of sports medicine is an important emerging area within biomedical ethics. The professionalization of medical support services in sport and continuing debates around issues such as performance-enhancing technologies or the health and welfare of athletes mean that all practitioners in sport, as well as researchers with an interest in sports ethics, need to develop a clear understanding of the ethical aspects of the sport–medicine nexus. This timely collection of articles explores the conceptual and practical issues that shape and define ethics in sports medicine. Examining central topics such as consent, confidentiality, pain, doping and genetic technology, this book establishes an important baseline for future academic and professional work in this area.
