Sean Strub arrived in Washington, D.C. in 1976 harbouring a terrifying secret: his attraction to men. As Strub explored the capital's political and social circles, he discovered a parallel world where powerful men lived double lives shrouded in shame. When the AIDS epidemic hit in the early '80s, Strub turned to activism to combat discrimination and demand research. Strub takes readers through his own diagnosis and inside ACT UP, the activist organisation that transformed a stigmatised cause into one of the defining political movements of our time.
Yingling was a relatively young, but already important Americanist who died of AIDS related causes in 1992. This volume gathers his uncollected and unpublished essays together with some of his more personal writing and memorial essays by three former col
The Republic of Therapy tells the story of the global response to the HIV epidemic from the perspective of community organizers, activists, and people living with HIV in West Africa. Drawing on his experiences as a physician and anthropologist in Burkina Faso and Côte d’Ivoire, Vinh-Kim Nguyen focuses on the period between 1994, when effective antiretroviral treatments for HIV were discovered, and 2000, when the global health community acknowledged a right to treatment, making the drugs more available. During the intervening years, when antiretrovirals were scarce in Africa, triage decisions were made determining who would receive lifesaving treatment. Nguyen explains how those decisions altered social relations in West Africa. In 1994, anxious to “break the silence” and “put a face to the epidemic,” international agencies unwittingly created a market in which stories about being HIV positive could be bartered for access to limited medical resources. Being able to talk about oneself became a matter of life or death. Tracing the cultural and political logic of triage back to colonial classification systems, Nguyen shows how it persists in contemporary attempts to design, fund, and implement mass treatment programs in the developing world. He argues that as an enactment of decisions about who may live, triage constitutes a partial, mobile form of sovereignty: what might be called therapeutic sovereignty.
Europe's "Black Death" contributed to the rise of nation states, mercantile economies, and even the Reformation. Will the AIDS epidemic have similar dramatic effects on the social and political landscape of the twenty-first century? This readable volume looks at the impact of AIDS since its emergence and suggests its effects in the next decade, when a million or more Americans will likely die of the disease. The Social Impact of AIDS in the United States addresses some of the most sensitive and controversial issues in the public debate over AIDS. This landmark book explores how AIDS has affected fundamental policies and practices in our major institutions, examining: How America's major religious organizations have dealt with sometimes conflicting values: the imperative of care for the sick versus traditional views of homosexuality and drug use. Hotly debated public health measures, such as HIV antibody testing and screening, tracing of sexual contacts, and quarantine. The potential risk of HIV infection to and from health care workers. How AIDS activists have brought about major change in the way new drugs are brought to the marketplace. The impact of AIDS on community-based organizations, from volunteers caring for individuals to the highly political ACT-UP organization. Coping with HIV infection in prisons. Two case studies shed light on HIV and the family relationship. One reports on some efforts to gain legal recognition for nonmarital relationships, and the other examines foster care programs for newborns with the HIV virus. A case study of New York City details how selected institutions interact to give what may be a picture of AIDS in the future. This clear and comprehensive presentation will be of interest to anyone concerned about AIDS and its impact on the country: health professionals, sociologists, psychologists, advocates for at-risk populations, and interested individuals.
The literature on AIDS has attempted to teach us the "facts" about this new disease or to provide a narrative account of scientific discovery and developing public health policy. But AIDS has precipitated a crisis that is not primarily medical, or even social and political; AIDS has precipitated a crisis of signification the "meaning" of AIDS is hotly contested in all of the discourses that conceptualize it and seek to respond to it. AIDS: Cultural Analysis/Cultural Activism is the first book on the subject that takes this battle over meaning as its premise. Contributors include Leo Bersani, author of The Freudian Body; Simon Watney, who serves on the board of the Health Education Committee of London's Terrence Higgens Trust; Jan Zita Grover, medical editor at San Francisco General Hospital; Suki Ports, former executive director of the New York City Minority Task Force on AIDS; and Sander Gilman, author of Difference and Pathology. Also included are essays by Paula A. Treichler, who teaches in the Medical School and in communications at the University of Illinois; Carol Leigh, a member of COYOTE and contributor to Sex Work; and Max Navarre, editor of the People With AIDS Coalition monthly Newsline. In addition to these essays, the book contains a portfolio of manifestos, articles, letters, and photographs from the publications of the PWA Coalition, an interview with three members of the AIDS discrimination unit of the New York City Commission on Human Rights; and presentations for the independent video documentaries on AIDS, Testing the Limits and Bright Eyes.
During the early years of the AIDS epidemic, thousands of Americans became infected with HIV through the nation's blood supply. Because little reliable information existed at the time AIDS first began showing up in hemophiliacs and in others who had received transfusions, experts disagreed about whether blood and blood products could transmit the disease. During this period of great uncertainty, decision-making regarding the blood supply became increasingly difficult and fraught with risk. This volume provides a balanced inquiry into the blood safety controversy, which involves private sexual practices, personal tragedy for the victims of HIV/AIDS, and public confidence in America's blood services system. The book focuses on critical decisions as information about the danger to the blood supply emerged. The committee draws conclusions about what was doneâ€"and recommends what should be done to produce better outcomes in the face of future threats to blood safety. The committee frames its analysis around four critical area: Product treatmentâ€"Could effective methods for inactivating HIV in blood have been introduced sooner? Donor screening and referralâ€"including a review of screening to exlude high-risk individuals. Regulations and recall of contaminated bloodâ€"analyzing decisions by federal agencies and the private sector. Risk communicationâ€"examining whether infections could have been averted by better communication of the risks.
This volume examines the complex medical, social, ethical, financial, and scientific problems arising from the AIDS epidemic and offers dozens of public policy and research recommendations for an appropriate national response to this dread disease.
A British medical journalist offers a meticulously researched look at HIV and its potential source, discussing the history of this lethal epidemic, analyzing a number of theories concerning its origins, and investigating current scientific inquiries into HIV, AIDS, and the search for a cure. Reprint. 15,000 first printing.
John-Manuel Andriote chronicles the impact of the disease from the coming-out revelry of the 1970s to the post-AIDS gay community of the 1990s, showing how it has changed both individual lives and national organizations. He tells the truly remarkable story of how a health crisis pushed a disjointed jumble of local activists to become a nationally visible and politically powerful civil rights movement, a full-fledged minority group challenging the authority of some of the nations most powerful institutions. Based on hundreds of interviews with those at the forefront of the medical, political, and cultural responses to the disease. Victory Deferred blends personal narratives with institutional histories and organizational politics to show how AIDS forced gay men from their closets and ghettos into the hallways of power to lobby and into the streets to protest.
