This book provides a comprehensive overview of the latest theory and practice on Patient and Public Involvement (PPI) in research. Its seven chapters cover the historical and conceptual background; the various ways implementation can be approached and how they are put into practice; ethical considerations and critical perspectives, including on the potentially negative impacts of PPI; approaches to meaningful evaluation; a step by-step guide to planning PPI and conclusions with considerations for future research. Drawing on current literature, this book provides an essential reference work for research students and all who want to better understand PPI in practice. It offers exercises to address key questions, case examples and a checklist for planning PPI and includes a valuable glossary of terms.
This electronic version has been made available under a Creative Commons (BY-NC-ND) open access license. This book is written for patients and members of the public who want to understand more about the approaches, methods and language used by health-services researchers. Patient and public involvement (PPI) in research is now a requirement of most major health-research programmes, and this book is designed to equip these individuals with the knowledge and skills necessary for meaningful participation. Edited by award-winning mental-health researchers, the book has been produced in partnership with mental-health-service users and carers with experience of research involvement. It includes personal reflections from these individuals alongside detailed information on quantitative, qualitative and health-economics research methods.
Service user involvement in mental health research poses specific challenges for both researchers and service users. The book describes the relevant background and principles underlying the concept of service user involvement in mental health research, providing relevant practical advice on how to engage with service users and how to build and maintain research collaboration on a professional level. It highlights common practical problems in service user involvement, based on experience from various countries with different social policies and suggests ways to avoid pitfalls and common difficulties. The book helps researchers decide which level of service user involvement will be adequate for their research activities and what will be feasible in view of the practicalities involved. It is also ideal for service users who are interested in becoming involved in research, providing relevant background information on the possibilities of involvement in professional research.
The idea of person-centred health systems is widely advocated in political and policy declarations to better address health system challenges. A person-centred approach is advocated on political, ethical and instrumental grounds and believed to benefit service users, health professionals and the health system more broadly. However, there is continuing debate about the strategies that are available and effective to promote and implement 'person-centred' approaches. This book brings together the world's leading experts in the field to present the evidence base and analyse current challenges and issues. It examines 'person-centredness' from the different roles people take in health systems, as individual service users, care managers, taxpayers or active citizens. The evidence presented will not only provide invaluable policy advice to practitioners and policymakers working on the design and implementation of person-centred health systems but will also be an excellent resource for academics and graduate students researching health systems in Europe. This title is available as Open Access on Cambridge Core.
For more than two decades, the concept of student engagement has grown from simple attention in class to a construct comprised of cognitive, emotional, and behavioral components that embody and further develop motivation for learning. Similarly, the goals of student engagement have evolved from dropout prevention to improved outcomes for lifelong learning. This robust expansion has led to numerous lines of research across disciplines and are brought together clearly and comprehensively in the Handbook of Research on Student Engagement. The Handbook guides readers through the field’s rich history, sorts out its component constructs, and identifies knowledge gaps to be filled by future research. Grounding data in real-world learning situations, contributors analyze indicators and facilitators of student engagement, link engagement to motivation, and gauge the impact of family, peers, and teachers on engagement in elementary and secondary grades. Findings on the effectiveness of classroom interventions are discussed in detail. And because assessing engagement is still a relatively new endeavor, chapters on measurement methods and issues round out this important resource. Topical areas addressed in the Handbook include: Engagement across developmental stages. Self-efficacy in the engaged learner. Parental and social influences on engagement and achievement motivation. The engaging nature of teaching for competency development. The relationship between engagement and high-risk behavior in adolescents. Comparing methods for measuring student engagement. An essential guide to the expanding knowledge base, the Handbook of Research on Student Engagement serves as a valuable resource for researchers, scientist-practitioners, and graduate students in such varied fields as clinical child and school psychology, educational psychology, public health, teaching and teacher education, social work, and educational policy.
New media forums have created a unique opportunity for citizens to participate in a variety of social and political contexts. As new social technologies are being utilized in a variety of ways, the public is able to interact more effectively in activities within their communities. The Handbook of Research on Citizen Engagement and Public Participation in the Era of New Media addresses opportunities and challenges in the theory and practice of public involvement in social media. Highlighting various communication modes and best practices being utilized in citizen-involvement activities, this book is a critical reference source for professionals, consultants, university teachers, practitioners, community organizers, government administrators, citizens, and activists.
This is the first book to offer a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as patient participation in the HTA process and research into patient aspects, this book includes detailed explanations of approaches to participation and research, as well as case studies. Patient Involvement in HTA enables researchers, postgraduate students, HTA professionals and experts in the HTA community to study these complementary ways of taking account of patients’ knowledge, experiences, needs and preferences. Part I includes chapters discussing the ethical rationale, terminology, patient-based evidence, participation and patient input. Part II sets out methodology including: Qualitative Evidence Synthesis, Discrete Choice Experiments, Analytical Hierarchy Processes, Ethnographic Fieldwork, Deliberative Methods, Social Media Analysis, Patient-Reported Outcome Measures, patients as collaborative research partners and evaluation. Part III contains 15 case studies setting out current activities by HTA bodies on five continents, health technology developers and patient organisations. Each part includes discussion chapters from leading experts in patient involvement. A final chapter reflects on the need to clearly define the goals for patient involvement within the context of the HTA to identify the optimal approach. With cohesive contributions from more than 80 authors from a variety of disciplines around the globe, it is hoped this book will serve as a catalyst for collaboration to further develop patient involvement to improve HTA. "If you’re not involving patients, you're not doing HTA!" - Dr. Brian O’Rourke, President and CEO of CADTH, Chair of INAHTA
The development of social technologies has brought about a new era of political planning and government interactions. In addition to reducing costs in city resource management, ICT and social media can be used in emergency situations as a mechanism for citizen engagement, to facilitate public administration communication, etc. In spite of all these advantages, the application of technologies by governments and the public sector has also fostered debate in terms of cyber security due to the vulnerabilities and risks that can befall different stakeholders. It is necessary to review the most recent research about the implementation of ICTs in the public sector with the aim of understanding both the strengths and the vulnerabilities that the management models can entail. Digital Government and Achieving E-Public Participation: Emerging Research and Opportunities is a collection of innovative research on the methods and applications of ICT implementation in the public sector that seeks to allow readers to understand how ICTs have forced public administrations to undertake reforms to both their workflow and their means of interacting with citizens. While highlighting topics including e-government, emergency communications, and urban planning, this book is ideally designed for government officials, public administrators, public managers, policy holders, policymakers, public consultants, professionals, academicians, students, and researchers seeking current research on the digital communication channels between elected officials and the citizens they represent.
"In the field of social work, qualitative research is starting to gain more prominence as are mixed methods and various issues regarding race, ethnicity and gender. These changes in the field are reflected and updated in "The Handbook of Social Work Research Methods, Second Edition". This text contains meta analysis, designs to evaluate treatment and provides the support to help students harness the power of the Internet. This handbook brings together leading scholars in research methods in social work." --Book Jacket.
Brings together international scholars across the social and behavioural sciences and education to address those ethical issues that arise in the theory and practice of research within the technologically advancing and culturally complex world in which we live.
