A guide for helping our children lead meaningful and independent lives as they reach adulthood In the next five years, hundreds of thousands of children with autism spectrum disorder will reach adulthood. And while diagnosis and treatment for children has improved in recent years, parents want to know: What happens to my child when I am no longer able to care for or assist him? Autism expert Chantal Sicile-Kira and her son Jeremy offer real solutions to a host of difficult questions, including how young adults of different abilities and their parents can: *navigate this new economy where adult service resources are scarce *cope with the difficulties of living apart from the nuclear family *find, and keep a job that provides meaning, stability and an income *create and sustain fulfilling relationships
"In the next five years, hundreds of thousands of children with autism spectrum disorder will reach adulthood. And while diagnosis and treatment for children has improved dramatically in recent years, no one is answering the question that plagues so many parents: What happens to my child when I am no longer able to care for or assist him? In this ground-breaking book, autism expert Chantal Sicile-Kira and her son Jeremy take on the challenge of planning for the full lifespan. Working together and drawing on the insights of others facing the same challenges, they offer real solutions to a host of difficult questions, including how young adults across the autism spectrum can: *negotiate adult life in this new economy where adult service resources are scarce *cope with the difficulties of living apart from the nuclear family *create and maintain a support network, including friends, support staff, and therapists *find and keep a job that provides meaning, stability and an income *discover the joys of fulfilling relationships"--
"Meet Annabelle! She loves to draw and play her ukulele. She also has Attention-Deficit Hyperactivity Disorder (ADHD). Annabelle is real and so are her experiences. Learn about her life in this illustrated narrative nonfiction picture book for elementary students"--
In 1991, Mark Osteen and his wife, Leslie, were struggling to understand why their son, Cameron, was so different from other kids. At age one, Cam had little interest in toys and was surprisingly fixated on books. He didn’t make baby sounds; he ignored other children. As he grew older, he failed to grasp language, remaining unresponsive even when his parents called his name. When Cam started having screaming anxiety attacks, Mark and Leslie began to grasp that Cam was developmentally delayed. But when Leslie raised the possibility of an autism diagnosis, Mark balked. Autism is so rare, he thought. Might as well worry about being struck by lightning. Since that time, awareness of autism has grown monumentally. Autism has received extensive coverage in the news media, and it has become a popular subject for film, television, and literature, but the disorder is frequently portrayed and perceived as a set of eccentricities that can be corrected with proper treatment. In reality, autism permanently wrecks many children’s chances for typical lives. Plenty of recent bestsellers have described the hardships of autism, but those memoirs usually focus on the recovery of people who overcome some or all of the challenges of the disorder. And while that plot is uplifting, it’s rare in real life, as few autistic children fully recover. The territory of severe autism—of the child who is debilitated by the condition, who will never be cured—has been largely neglected. One of Us: A Family’s Life with Autism tells that story. In this book, Mark Osteen chronicles the experience of raising Cam, whose autism causes him aggression, insomnia, compulsions, and physical sickness. In a powerful, deeply personal narrative, Osteen recounts the struggles he and his wife endured in diagnosing, treating, and understanding Cam’s disability, following the family through the years of medical difficulties and emotional wrangling. One of Us thrusts the reader into the life of a child who exists in his own world and describes the immense hardships faced by those who love and care for him. Leslie and Mark's marriage is sorely tested by their son's condition, and the book follows their progress from denial to acceptance while they fight to save their own relationship. By embracing the little victories of their life with Cam and by learning to love him as he is, Mark takes the reader down a road just as gratifying, and perhaps more moving, than one to recovery. One of Us is not a book about a child who overcomes autism. Instead, it’s the story of a different but equally rare sort of victory—the triumph of love over tremendous adversity.
One of the biggest fears of parents with children with autism is their looming adulthood and all that it entails. In this Second Edition of her lauded book Autism Adulthood, Susan Senator further tackles the challenges of adult life on the autism spectrum on the more severe end of the spectrum – those who cannot communicate for themselves, honestly discussing the complex decisions that await all parents and caregivers. To help parents find the guidance they need to provide fruitful lives for their autistic loved ones’ and the support they themselves need, Senator shares her own family’s personal story about her son, Nat, and his struggles and triumphs as an adult with severe autism. Autism Adulthood features interviews with parents, caregivers, researchers, and professionals. Each vignette reveals firsthand a family’s needs and goals—the circumstances, thought processes, and unique solutions. Sharing the wisdom that emerges from parents’ and self-advocates’ experiences, Senator adds her own observations and conclusions based on her long-term familiarity and understanding of autism. Told in Senator’s trademark warm, approachable style, Autism Adulthood, Second Edition paints a vivid and thought-provoking picture of many people grappling with grown-up, real-life autism. Senator’s is the only book of its kind, as real families share their stories and their creative solutions.
A life skills guide for individuals with autism and Asperger's syndrome discusses social skills and strategies needed for success in the adult world, including discussion of perspective-taking, nonverbal communication skills, and stress management.
Discovering that your child has a permanent pervasive developmental disorder is a shock to any parent. At first, it is hard to believe that the diagnosis is true. But quickly, you begin to immerse yourself in information to learn as much as you can, as quickly as you can. When the author's son was diagnosed with ASD at the age of four, she began collecting files of paperwork from doctors and therapists, test results, IEPs, and her own journal writings. She later combined it in chronological order and used it as a resource to explain her son to teachers, grandparents, caregivers, therapists, and other parents. The result is My Andrew, a heartfelt look into the first eight years of a family's journey to raise their son with autism. Presented in a journal format, this book presents what ASD means to a family's everyday life ? it highlights the ups and downs, the victories and the setbacks.
Award-winning autism expert Chantal Sicile-Kira presents a positive and empowering ?bill of rights? for every person with autism. From an award-winning author and advocate, Autism Life Skills presents a positive and empowering "bill of rights" for every person with autism, regardless of impairment level. With advice and reflections from autistic adults across the spectrum, as well as Sicile-Kira's own experience as an advocate and parent of an autistic teen, the book covers these ten essential life skills: Making Sense of the World * Communication * Safety * Self-Esteem * Pursuing Interests * Self-Regulation * Independence * Social Relationships * Self- Advocacy *Earning a Living Whether your child or student has Asperger's or is on the more severely impaired end of the autism spectrum, this action-oriented guide will provide hope and help -- so that every child has a chance to reach his or her full potential.
A young boy's understanding of his autistic brother, David, improves as a therapist works with the family to better interpret David's behavior, and with David to communicate through words.
