Research and innovation are integral parts of the global response to dementia. Yet, the Global status report on the public health response to dementia shows that despite some encouraging efforts most countries are far from reaching the adopted targets of the Global action plan on the public health response to dementia 2017–2025. This blueprint for dementia research summarizes the current state of dementia research across six broad themes, identifies existing knowledge gaps, and outlines 15 strategic goals with actions and timebound milestones to address these gaps. The blueprint also outlines drivers of research that together create an enabling research environment that is essential for accelerating dementia research globally. Going forward, the blueprint will guide policymakers, funders, and the research community on future activities in dementia research, and contribute to making dementia research more efficient, equitable, and impactful.
As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.
The text focuses on projects which have taken different approaches to working with people with dementia in research, including examining the process of interviewing people with dementia whose first language is not English and encouraging people with dementia to participate in the research analysis.
As baby boomers age, many will require long-term services and supports (LTSS) for dementia care. This blueprint outlines policy options and research directions to help decisionmakers improve the LTSS delivery system, workforce, and financing.
Embark on a transformative journey with "The Dementia Mastery Bible: Your Blueprint For Complete Dementia Management," a comprehensive guide that unravels the intricacies of dementia. In Chapter 1, readers delve into the fundamental understanding of dementia-its types, causes, and impact on daily life. Moving beyond, Chapter 2 navigates the medical management landscape, exploring medications, non-pharmacological interventions, and future directions in dementia research. Holistic approaches in Chapter 3 offer a spectrum from mindfulness to environmental modifications, providing a well-rounded foundation. "Customizable Plans and Self-Help Techniques" in Chapter 4 empower caregivers with personalized care plans and practical strategies for emotional regulation, communication, and memory enhancement. Chapter 5 explores evidence-based insights, promising therapies, and the evolving landscape of technology in dementia management, blending the latest research with ethical considerations and advocacy. This masterful blueprint not only equips caregivers with knowledge and tools but also empowers individuals with dementia. It addresses changing needs, promotes self-care for caregivers, and envisions a future shaped by compassionate care and cutting-edge research. A must-read for those navigating the challenges of dementia, offering hope and guidance on the journey to mastery.
Traditionally, the most preferred social research methods in dementia studies have been interviews, focus groups and non-participant observations. Most of these methods have been used for a long time by researchers in other social research fields, but their application to the field of dementia studies is a relatively new phenomenon. A ground-breaking book, Social Research Methods in Dementia Studies shows researchers how to adapt their methods of data collection to address the individual needs of someone who is living with dementia. With an editorial team that includes Ann Johnson, a trained nurse and person living with dementia, this enlightening volume mainly draws its contents from two interdisciplinary social research teams in dementia, namely the Center for Dementia Research [CEDER] at Linköping University in Norrköping, Sweden and the Dementia and Ageing Research Team [DART] at The University of Manchester in Manchester, UK. Case examples are shared in each of the main chapters to help ground the social research method(s) in a real-life context and provide direction as to how learning can be applied to other settings. Chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students, as well as postdoctoral researchers, interested in fields such as: Research Methods, Qualitative Methods and Dementia Studies.
What is dementia? How should we organize dementia care? This comprehensive book critically examines the main approaches to understanding dementia (bio-medical, social-psychological and socio-gerontological) and the main principles and ideologies of care. The book: • provides clarity on the gap between the utopian aspirations of care and the reality of care • opens up a series of questions about knowledge and treatment of dementia • argues for a transition from positions that place emphasis upon the individual or particular care services to the social, cultural and economic context Lively, informative and challenging, the book will be of interest to students of nursing, sociology of health & illness, social work and social gerontology. Anthea Innes teaches at the Dementia Services Development Centre, University of Stirling
There has been a considerable and welcome growth of publications about dementia care and Jessica Kingsley Publishers has certainly played a very useful part in this growth... we need more not less of this quality of work and writing if society is to include those with dementia as full citizens.' - Christian Council on Ageing 'The editors are to be congratulated on assembling a collection of contributions which make this book a milestone in the literature on dementia research and practice... [They] have collected papers on extraordinarily diverse issues and from a very diverse set of authors. Each of the chapters can be seen as an invaluable introduction to the topic area as well as addressing the main theme of the book. It is a milestone book because it manages to provide a snapshot of dementia studies at this moment in time and will, in my view, be widely quoted by policy makers, practice developers, researchers and trainers for the next few years... In such a treasure trove of approaches and issues it is hard to pick out the most striking... I would recommend this book: all readers of the journal will find chapters that they can use to improve dementia care.' - Journal of Dementia Care 'What makes this particularly notable is that Innes, Archibald and Murphy have harnessed such individual voices to address so cogently. Together they address the core issues, all too often neglected or marginalized, in dementia research and care. Sexuality, communication, risk taking, ethnicity, incontinence and practices within remote rural communities are all subjects that draw threads from the very fabric of our society, and it is indicative of how wide the spectrum has broadened that these historically dispirit strands can be tackled constructively.' - Signpost 'A diverse range of subjects are covered in a series of papers written by numerous professionals of standing from various disciplines... The subjects covered include ethnicity, spirituality, sexuality, dying with dementia (palliative care), faecal incontinence and risk-taking. There is a section addressing aspects of communicating with people with dementia and another covering the medical aspects of dementia that have not had much focus in recent years, such as hypertension and diabetes. Finally, there is a social science perspective, including discussing ways that people with dementia can be involved in the research process. I found the book easy to read and it is well written and clearly presented. Covering marginalized areas of practice, it offers food for thought for the reader and is a welcome addition to current literature'. - British Journal of Occupational Therapy 'This book provides invaluable research results and innovative thinking which professionals studying gerontology and dementia care will find very useful throughout their careers.' - London Centre for Dementia Care Newsletter 'The contributors to this volume examine the barriers to the consideration of social inclusion in the field of dementia studies and argue for the necessity of acknowledging the personhood of all individuals with dementia. The papers discuss the sexuality of people with dementia, communication and risk taking, and dementia care in remote rural communities, among other topics. The volume ends with suggestions for more inclusive values, service development, theory and research'. - Book News 'The book, commendably, tries to look at marginalized issues within dementia, such as death and dying, sexuality and faecal incontinence.' - Mental Health Today 'This is a book for the connoisseur. I wish I had contributed a paper. I wish I had read it even earlier. It will be appreciated by many people, from many backgrounds. This is the study of dementia and dementia-care grown to a new maturity. Chapters are original research papers, communicating new findings and analyses, set in the context of previous knowledge, well reviewed... Thanks to the editors and authors for this little gift. Let's be sure it is read widely.' - David Jolley, director of Dementiaplus Examining important issues in dementia research and care that are often neglected or marginalized, the contributors to this book provide fresh perspectives on current practice. The authors put dementia care into a socio-cultural framework, highlighting the impact of social change on dementia care over the last two decades and challenging current stereotypes. The contributors address the implications of power relationships between carers and people with dementia and discuss a broad spectrum of issues, including: * the sexuality of people with dementia * communication and risk taking * people with dementia from minority ethnic groups * faecal incontinence * dementia care and practice in remote rural communities. Taking an in-depth look at dementia research and service development, this book makes essential reading for practitioners, researchers and students working in the field of dementia care.
"As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia." --
