A Guide to Living with Hypermobility Syndrome

A Guide to Living with Hypermobility Syndrome

Author: Isobel Knight

Publisher: Singing Dragon

Published: 2011

Total Pages: 242

ISBN-13: 1848190689

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People with Hypermobility Syndrome (HMS), including Ehlers-Danlos type Hypermobility Syndrome, have a larger range of joint movement than is typical, which can cause pain and fatigue despite an outward appearance of good health. This book is the complete guide to living with and managing HMS, and ultimately enjoying a fulfilling life. The book covers everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis and managing its negative effects. The author, who has HMS herself, looks at how the condition affects children and adolescents, before moving on to explore pain management (including the use of physiotherapy, pilates and a selected range of complementary health therapies), pregnancy, physical and psychological aspects of the condition, and how it widely affects dancers and other performance artists. Wider conditions that encompass Hypermobility Syndrome are also touched upon, including Fibromyalgia and IBS. This book will be a must for anybody who suffers, or suspects they might be suffering from, Hypermobility Syndrome. It will also be of interest to their families and friends, and professionals working with the condition.


Hypermobility Without Tears

Hypermobility Without Tears

Author: Jeannie Di Bon

Publisher: Independently Published

Published: 2019-05-09

Total Pages: 144

ISBN-13: 9781096534983

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Hypermobility Without Tears is a step-by-step guide to help people with hypermobility and Ehler-Danlos Syndrome (EDS) learn how to move pain-free and effortlessly. A movement therapist and hypermobility specialist with over a decade of education, research, client practice and Pilates teaching, Jeannie is an expert in the field of movement. Her own experience of hypermobile EDS, leaves her uniquely qualified to guide people with hypermobility and EDS back to movement and a 'no pain, no strain' lifestyle. Having suffered through years of misdiagnosis and pain, Jeannie truly understands the 'hypermobile body' and her book offers empathetic guidance on how to listen to the body and learn to move without pain. Hypermobility Without Tears is arranged into six sections based on Jeannie's key principles of pain-free movement for the hypermobile body: breath, relaxation, proprioception, stability, balance and posture.


Living Life to the Fullest with Ehlers-Danlos Syndrome

Living Life to the Fullest with Ehlers-Danlos Syndrome

Author: Pt Kevin Muldowney

Publisher:

Published: 2015-07-17

Total Pages: 400

ISBN-13: 9781478758884

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"This book was written to teach people with Ehlers-Danlos Syndrome (EDS) how to systematically progress through an exercise program to allow their muscles to support many joint subluxations commonly associated with this genetic disorder. This will allow people living wih EDS to have less pain throughout their body."--Back cover.


A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type)

A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type)

Author: Isobel Knight

Publisher: Singing Dragon

Published: 2014-12-21

Total Pages: 314

ISBN-13: 0857011804

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Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.


The Eds and Hypermobility Syndrome Diet

The Eds and Hypermobility Syndrome Diet

Author: Lynne D M Noble

Publisher: Independently Published

Published: 2019-02

Total Pages: 62

ISBN-13: 9781795644198

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EDS and Hypermobility Syndrome are diseases of connective tissue. They impact the quality of life, relationships and earning ability, among many others as well as carrying with them severe, and often intractable, pain. Given that connective tissue is distributed throughout the body, poor quality connective tissue has the ability to affect, tendon, ligaments, bones, skin and gut. Good quality connective tissue requires the necessary collagen forming building blocks to be in place before it can be synthesised. Most of this - if the necessary materials are present - will take place in the body but sometimes defective genes and defective diets (which could ameliorate the effects of rogue genes) prevent this from happening.The author argues that the massive changes in our diets which have occurred since the post war years have produced an increase in certain diseases which are the result of poor nutritional status. Our current eating choices have largely done away with three of the four essential building blocks necessary to build strong connective tissue. The author explains how to eat to introduce these substances back into the diet which will not only help you to build healthy tissue, but will also aid sleep as well as reduce inflammation and build lean muscle mass.This is a sequel to The Journey: living with EDS and chronic pain


A Guide to Thriving with Mental Illness

A Guide to Thriving with Mental Illness

Author: Mequell Buck

Publisher: CreateSpace

Published: 2015-06-11

Total Pages: 258

ISBN-13: 9781511450539

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This light hearted book on a very serious topic will make you laugh out loud. It will give you a road map to success in getting diagnosed, finding doctors and working with medication. It will give you concrete ideas on ways to manage your cycles, emotions and energy to work smarter, not harder. It will help you prioritize so you can be happy and successful living your life exactly the way you want to live it. It will help you not only survive but thrive even with mental illness.


EDS Chronic Pain Journal

EDS Chronic Pain Journal

Author: A. D Awareness

Publisher:

Published: 2020-06-07

Total Pages: 120

ISBN-13:

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Are you suffering from Ehlers Danlos Syndrome? Are you looking for a tool that can help you manage the treatments you're trying? Do you want to record your daily thoughts and feelings about your illness? This EDS Chronic Pain Journal is perfect to help you get a handle on things and bring your illness to the best possible conclusion and live your healthiest life possible. This book includes: FOOD DIARY (Breakfast, Lunch, Dinner and Snacks) MONITOR PAIN LOCATION DOCTORS APPOINTMENTS SLEEP TRACKER INSPIRATIONAL QUOTES SYMPTOM TRACKERS ANXIETY, PAIN, FATIGUE AND MOOD TRACKERS DAILY ACTIVITIES MEDICATIONS & SUPPLEMENTS TAKEN HYDRATION (Water consumption) AND MORE... You can use this book to share with your doctor or specialist to help aid treatment methods or monitor any side effects you are experiencing. Your greatest wealth is health, and this diary could help you keep your health organized. TRACK IT AND TREASURE IT We at Ansart Design hope this journal is a great help and brings to clarity and quality to your life and well-being. Specifications: Cover Finish: Matte Dimensions: 6" x 9" (15.24 x 22.86 cm) Pages: 120 Please Use The Look Inside Feature To View The Interior To Ensure That It Meets Your Needs. Also Feel Free To Look At Our Other Items Available In Our Amazon Store


The Trifecta Passport: Tools for Mast Cell Activation Syndrome, Postural Orthostatic Tachycardia Syndrome and Ehlers-Danlos Syndrome

The Trifecta Passport: Tools for Mast Cell Activation Syndrome, Postural Orthostatic Tachycardia Syndrome and Ehlers-Danlos Syndrome

Author: Amber Walker

Publisher: Amber Walker

Published: 2021-01-27

Total Pages: 503

ISBN-13: 1733711732

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The “trifecta” refers to three conditions that commonly occur together: mast cell activation syndrome (MCAS), postural orthostatic tachycardia syndrome (POTS) and the hypermobile type of Ehlers-Danlos syndrome (hEDS). These three conditions are gradually becoming more recognized in the mainstream medical world as more and more patients find themselves struggling with debilitating and often mysterious symptoms. However, recognizing these conditions is only the first step on the healing journey. With the right approach and toolbox, patients can reverse many of these symptoms to find lasting vitality. Written by a Doctor of Physical Therapy who has additional certifications in functional medicine and nutrition and extensive experience in working with these conditions, this book serves as patient guide that empowers individuals to put all of the puzzle pieces together as part of an individualized healing plan. Part One (3 chapters) is an overview of the three trifecta conditions, and Part Two (9 chapters) outlines the important pillars of an essential plan to address any (or all) of these conditions holistically. The book wraps up with a chapter of patient case stories. Accompanying the purchase of this book is access to a free 20-page PDF document that serves as a customizable workbook for readers to use as they read along. The Trifecta Passport dives into topics such as nervous system regulation, mold and other biotoxins, nutrition, exercise, detoxification, mental/emotional health and trauma, structural/musculoskeletal issues and the many underlying root issues (related to hormones, bacterial/viral load, gut health, etc.) that can trigger or exacerbate these conditions. This resource unpacks many different tools and practical treatment options that should be on the radar of patients living with these (and other) chronic conditions. When faced with these labels, it can be overwhelming to weed through all the resources out there to figure out how to move forward with a comprehensive and personalized road map. By helping readers put it all together in an organized manner, this book is a great resource for any patient with chronic illness as well as the caregivers and doctors who support them.


Pilates Without Tears

Pilates Without Tears

Author: Jeannie Di Bon

Publisher:

Published: 2016-03-08

Total Pages: 126

ISBN-13: 9781523694174

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Foreword by New York Times Best Selling AuthorThere are many exercise books on the market today and we are well informed on the need and benefits to move and exercise more. This first book by Jeannie, Pilates Without Tears, came to my attention for a number of reasons. First the title caught my eye: from what I know of Pilates, this title really stood out and I was curious to learn what it meant. I have found out that this book is not the usual, traditional exercise manual - it is a lifestyle game changer.


Our Stories of Strength

Our Stories of Strength

Author: Kendra Neilsen Myles

Publisher:

Published: 2016-10-20

Total Pages: 214

ISBN-13: 9780997319620

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This listing is for the 7x10 full-color version of the paperback book. An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos syndrome. EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles founded Sisters Media, LLC with core values of giving back and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Sisters Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are #Stronger2Gether."