The Politics of Autism
The Politics of Autism

Author: Dr. Bryna Siegel

Publisher: Oxford University Press

Published: 2018-08-01

Total Pages: 353

ISBN-13: 0199361002

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The Politics of Autism investigates the truths and fictions of public understanding about autism, questioning apparent realities too sensitive or impolitic to challenge. Is there really more autism? How has the count expanded by diagnosing autism over other conditions? Have scientific methods in autism diagnosis gone hand-in-hand with autism increases? Are mild autism cases really a 'disorder,' rather than personality variant? Can autism be quiescent in childhood but truly first recognizable in adulthood? Why does popular media often portray people with autism as odd geniuses ignoring the kind of autism most have? Siegel tackles thorny issues and perennial questions: How do we weigh likely treatment gains with treatment costs? Why does our autism education persist in teaching academic subjects some never master? Why do we fail to plan realistically for autistic adulthood? Which parents get caught up in non-mainstream 'treatments' and fear of vaccines? Readers will see an insider's view of controversies in autism research. Siegel's views, sometimes iconoclastic, always frank and informed, challenge broad unexamined assumptions about our understanding of autism. Each chapter addresses different issues, data, and social policy recommendations. A chapter-by-chapter bibliography with URLs provides both popular media and scientific references.

We're Not Broken
We're Not Broken

Author: Eric Garcia

Publisher: Houghton Mifflin

Published: 2021

Total Pages: 309

ISBN-13: 1328587843

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"This book is a message from autistic people to their parents, friends, teachers, coworkers and doctors showing what life is like on the spectrum. It's also my love letter to autistic people. For too long, we have been forced to navigate a world where all the road signs are written in another language." With a reporter's eye and an insider's perspective, Eric Garcia shows what it's like to be autistic across America. Garcia began writing about autism because he was frustrated by the media's coverage of it; the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. His own life as an autistic person didn't look anything like that. He is Latino, a graduate of the University of North Carolina, and works as a journalist covering politics in Washington D.C. Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity, they don't need to be fixed. In We're Not Broken, Garcia uses his own life as a springboard to discuss the social and policy gaps that exist in supporting those on the spectrum. From education to healthcare, he explores how autistic people wrestle with systems that were not built with them in mind. At the same time, he shares the experiences of all types of autistic people, from those with higher support needs, to autistic people of color, to those in the LGBTQ community. In doing so, Garcia gives his community a platform to articulate their own needs, rather than having others speak for them, which has been the standard for far too long.

The Politics of Autism
The Politics of Autism

Author: John J. Pitney

Publisher: Rowman & Littlefield

Published: 2015-08-06

Total Pages: 191

ISBN-13: 1442249617

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In the first book devoted exclusively to the contentious politics of autism, noted political scientist and public policy expert John J. Pitney, Jr., explains how autism has evolved into a heated political issue disputed by scientists, educators, social workers, and families. Nearly everything about autism is subject to debate and struggle, including its measurement and definition. Organizational attempts to deal with autism have resulted in not a single “autism policy,” but a vast array of policies at the federal, state, and local levels, which often leave people with autism and their families frustrated and confused. Americans with autism are citizens, friends, coworkers, sons, daughters, fathers, and mothers. No longer simply the objects of public policy, they are active participants in current policy debates. Pitney’s fascinating look at how public policy is made and implemented offers networks of concerned parents, educators, and researchers a compass to navigate the current systems and hope for a path towards more regularized and effective policies for America’s autism community.

Autistic Community and the Neurodiversity Movement
Autistic Community and the Neurodiversity Movement

Author: Steven K. Kapp

Publisher: Springer Nature

Published: 2019-11-07

Total Pages: 335

ISBN-13: 9811384371

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This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment. The actions covered are legendary in the autistic community, including manifestos such as “Don’t Mourn for Us”, mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, a book, and advisory roles. These actions have shifted the landscape toward viewing autism in social terms of human rights and identity to accept, rather than as a medical collection of deficits and symptoms to cure.

We Walk
We Walk

Author: Amy S. F. Lutz

Publisher: Cornell University Press

Published: 2020-10-15

Total Pages: 148

ISBN-13: 1501751409

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In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience—the positive and the negative—as a mother of a now twenty-one-year-old son with severe autism. Lutz's human emotion drives through each page and challenges commonly held ideas that define autism either as a disease or as neurodiversity. We Walk is inspired by her own questions: What is the place of intellectually and developmentally disabled people in society? What responsibilities do we, as citizens and human beings, have to one another? Who should decide for those who cannot decide for themselves? What is the meaning of religion to someone with no abstract language? Exploring these questions, We Walk directly—and humanly—examines social issues such as inclusion, religion, therapeutics, and friendship through the lens of severe autism. In a world where public perception of autism is largely shaped by the "quirky geniuses" featured on television shows like The Big Bang Theory and The Good Doctor, We Walk demands that we center our debates about this disorder on those who are most affected by its impacts.

Towards an Ethic of Autism
Towards an Ethic of Autism

Author: Kristien Hens

Publisher: Open Book Publishers

Published: 2021-07-07

Total Pages: 194

ISBN-13: 1800642334

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Kristien Hens succeeds in weaving together experiential expertise of both people with autism and their parents, scientific insights and ethics, and does so with great passion and affection for people with autism (with or without mental or other disabilities). In this book she not only asks pertinent questions, but also critically examines established claims that fail to take into account the criticism and experiences of people with autism. Sam Peeters, author of Autistic Gelukkig (Garant, 2018) and Gedurfde vragen (Garant, 2020); blog @ Tistje.com What does it mean to say that someone is autistic? Towards an Ethics of Autism is an exploration of this question and many more. In this thoughtful, wide-ranging book, Kristien Hens examines a number of perspectives on autism, including psychiatric, biological, and philosophical, to consider different ways of thinking about autism, as well as its meanings to those who experience it, those who diagnose it, and those who research it. Hens delves into the history of autism and its roots in the work of Leo Kanner and Hans Asperger to inform a contemporary ethical analysis of the models we use to understand autism today. She explores the various impacts of a diagnosis on autistic people and their families, the relevance of disability studies, the need to include autistic people fully in discussions about (and research on) autism, and the significance of epigenetics to future work on autism. Hens weaves together a variety of perspectives that guide the reader in their own ethical reflections about autism. Rich, accessible, and multi-layered, this is essential reading for philosophers, educational scientists, and psychologists who are interested in philosophical-ethical questions related to autism, but it also has much to offer to teachers, allied health professionals, and autistic people themselves.

Love That Boy
Love That Boy

Author: Ron Fournier

Publisher: Harmony

Published: 2017-04-04

Total Pages: 242

ISBN-13: 0804140502

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"[A]n eloquent, brave, big-hearted book…about the timeless anxieties and emotions of parenthood, and the modern twists thereon.” —James Fallows, The Atlantic Love That Boy is a uniquely personal story about the causes and costs of outsized parental expectations. What we want for our children—popularity, normalcy, achievement, genius—and what they truly need—grit, empathy, character—are explored by National Journal’s Ron Fournier, who weaves his extraordinary journey to acceptance around the latest research on childhood development and stories of other loving-but-struggling parents.

In a Different Key
In a Different Key

Author: John Donvan

Publisher: Crown

Published: 2016-01-19

Total Pages: 690

ISBN-13: 0307985687

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PULITZER PRIZE FINALIST • NEW YORK TIMES BESTSELLER • “Sweeping in scope but with intimate personal stories, this is a deeply moving book about the history, science, and human drama of autism.”—Walter Isaacson, #1 New York Times bestselling author of The Code Breaker “Remarkable . . . A riveting tale about how a seemingly rare childhood disorder became a salient fixture in our cultural landscape.”—The Wall Street Journal (Ten Best Nonfiction Books of the Year) The inspiration for the PBS documentary, In a Different Key In 1938, Donald Triplett of Forest, Mississippi, became the first child diagnosed with autism. Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, from the civil rights battles waged by the families of those who have it to the fierce debates among scientists over how to define and treat it. Unfolding over decades, In a Different Key is a beautifully rendered history of people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many unsuccessful treatments; to stark disagreements about whether scientists should pursue a cure for autism; to compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death. By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability.

I Have Been Buried Under Years of Dust
I Have Been Buried Under Years of Dust

Author: Valerie Gilpeer

Publisher: HarperCollins

Published: 2021-04-06

Total Pages: 272

ISBN-13: 0062984365

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A remarkable memoir by a mother and her autistic daughter who’d long been unable to communicate—until a miraculous breakthrough revealed a young woman with a rich and creative interior life, a poet, who’d been trapped inside for more than two decades. “I have been buried under years of dust and now I have so much to say.” These were the first words twenty-five-year-old Emily Grodin ever wrote. Born with nonverbal autism, Emily’s only means of communicating for a quarter of a century had been only one-word responses or physical gestures. That Emily was intelligent had never been in question—from an early age she’d shown clear signs that she understood what was going on though she could not express herself. Her parents, Valerie and Tom, sought every therapy possible in the hope that Emily would one day be able to reveal herself. When this miraculous breakthrough occurred, Emily was finally able to give insight into the life, frustrations, and joys of a person with autism. She could tell her parents what her younger years had been like and reveal all the emotions and intelligence residing within her; she became their guide into the autistic experience. Told by Valerie, with insights and stories and poetry from Emily, I Have Been Buried Under Years of Dust highlights key moments of Emily’s childhood that led to her communication awakening—and how her ability rapidly accelerated after she wrote that first sentence. As Valerie tells her family’s story, she shares the knowledge she’s gained from working as a legal advocate for families affected by autism and other neurological disorders. A story of unconditional love, faith in the face of difficulty, and the grace of perseverance and acceptance, I Have Been Buried Under Years of Dust is an evocative and affecting mother-daughter memoir of learning to see each other for who they are.