Enabling People with Dementia: Understanding and Implementing Person-Centred Care

Enabling People with Dementia: Understanding and Implementing Person-Centred Care

Author: Pat Hobson

Publisher: Springer Nature

Published: 2019-09-04

Total Pages: 100

ISBN-13: 3030204790

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This new updated edition challenges the perceptions, beliefs and attitudes of professionals working in dementia care settings by drawing on the theory of person-centred care. It demonstrates the importance of this theory for interacting with and caring for people with dementia. It also provides an overview of the theory in relation to two other well-known theories on dementia, and stresses the need to consider the world from the perspective of people with dementia. Moreover, the book examines the importance of dementia care environments, positive interactions, meaningful activities and the concept of personhood, which are all essential to improving the health and wellbeing of people living with dementia. In closing, it underscores the need to remember that the focus of care should be on maximizing the person’s abilities, enabling them, and promoting person-centred care. Given its content and style, the book offers a resource that can be read and understood by health and social care professionals alike, as well as anyone else caring for someone with dementia, including family members and carers.


The Person in Dementia

The Person in Dementia

Author: Athena McLean

Publisher: University of Toronto Press

Published: 2007-01-01

Total Pages: 332

ISBN-13: 9781551116068

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"Students of many ilks will benefit from re-imagining Alzheimer's from the perspective of affected elders and their caregivers." - Peter Whitehouse, Case Western Reserve University


Loving Someone Who Has Dementia

Loving Someone Who Has Dementia

Author: Pauline Boss

Publisher: John Wiley & Sons

Published: 2011-06-24

Total Pages: 256

ISBN-13: 1118077288

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Research-based advice for people who care for someone with dementia Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.


When Your Loved One Has Dementia

When Your Loved One Has Dementia

Author: Joy A. Glenner

Publisher: JHU Press

Published: 2005-06-17

Total Pages: 152

ISBN-13: 0801898668

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The result is a guide that integrates the practicalities of caregiving with the human emotions that accompany it.


Dementia

Dementia

Author: Julian C. Hughes

Publisher: Oxford University Press, USA

Published: 2006

Total Pages: 326

ISBN-13: 019856614X

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This study juxtaposes philosophical analysis and clinical experience to present an overview of the issues surrounding dementia. It conveys a strong ethical message, arguing in favour of treating people with dementia with all the dignity they deserve as human beings.


Dementia Reconsidered

Dementia Reconsidered

Author: Tom Kitwood

Publisher: Open University Press

Published: 1997-04-01

Total Pages: 160

ISBN-13: 9780335198559

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"For some years now, Tom Kitwood's work on dementia care has stood out as the most important, innovative and creative development in a field that has for too long been neglected. This book is a landmark in dementia care; it brings together, and elaborates on, Kitwood's theory of dementia and of person-centred care in an accessible fashion, that will make this an essential source for all working and researching in the field of dementia care." Robert Woods, Professor of Clinical Psychology, University of Wales "Over the last ten years or so Tom Kitwood has made a truly remarkable contribution to our understanding of dementia, and to raising expectations of what can be achieved with empathy and skill. This lucid account of his thinking and work will communicate his approach to a yet wider audience. It is to be warmly welcomed." Mary Marshall, Director of the Dementia Services Development Centre, University of Stirling * What is the real nature of the dementing process? * What might we reasonably expect when dementia care is of very high quality? * What is required of organizations and individuals involved in dementia care? Tom Kitwood breaks new ground in this book. Many of the older ideas about dementia are subjected to critical scrutiny and reappraisal, drawing on research evidence, logical analysis and the author's own experience. The unifying theme is the personhood of men and women who have dementia - an issue that was grossly neglected for many years both in psychiatry and care practice. Each chapter provides a definitive statement on a major topic related to dementia, for example: the nature of 'organic mental impairment', the experience of dementia, the agenda for care practice, and the transformation of the culture of care. While recognizing the enormous difficulties of the present day, the book clearly demonstrates the possibility of a better life for people who have dementia, and comes to a cautiously optimistic conclusion. It will be of interest to all professionals involved in dementia care or provision, students on courses involving psychogeriatrics or social work with older people, and family carers of people with dementia. Key features: * One of the few attempts to present the whole picture. * Very readable - many real-life illustrations. * Offers a major alternative to the 'medical model' of dementia. * Tom Kitwood's work on dementia is very well known


When Someone You Know Is Living in a Dementia Care Community

When Someone You Know Is Living in a Dementia Care Community

Author: Rachael Wonderlin

Publisher: Johns Hopkins University Press

Published: 2016-11-01

Total Pages: 220

ISBN-13: 1421420651

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"When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident?An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.


Reducing the Impact of Dementia in America

Reducing the Impact of Dementia in America

Author: National Academies of Sciences Engineering and Medicine

Publisher:

Published: 2022-04-26

Total Pages:

ISBN-13: 9780309495035

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As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.


The Simplicity of Dementia

The Simplicity of Dementia

Author: Huub Buijssen

Publisher: Jessica Kingsley Publishers

Published: 2005-02-15

Total Pages: 178

ISBN-13: 1846420962

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This book offers an accessible and sympathetic introduction for relatives, carers and professionals looking after or training to work with people with dementia. Drawing on the two `laws of dementia', the author explains the causes of communication problems, mood disturbances and `deviant' behaviours, with particular emphasis on how these are experienced by dementia sufferers themselves. Case examples demonstrate the typical symptoms and progression of dementia, and clear guidance is provided on how to support dementia sufferers at every stage and help them deal with the challenges posed by their condition. Relatives and carers will find this book a source of essential information and encouragement to deal confidently with the difficulties posed by the condition both for people with dementia and those around them.


Dementia Reconsidered Revisited: The Person Still Comes First

Dementia Reconsidered Revisited: The Person Still Comes First

Author: Tom Kitwood

Publisher: McGraw-Hill Education (UK)

Published: 2019-01-07

Total Pages: 234

ISBN-13: 0335248039

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The original Dementia Reconsidered: The Person Comes First by Tom Kitwood was published by Open University Press in 1997. It was a seminal text in the field of dementia studies and is still cited and referenced as core reading on person-centred dementia care. Tom died unexpectedly, just 12 months after the book was published. This book continues to inspire many people to challenge simplistic paradigms about dementia. Since the original book was written, however, there have been many changes in our understanding of dementia. The editor of this new edition, Dawn Brooker was mentored by Tom Kitwood. She has drawn together a remarkable group of writers to provide a commentary on Kitwood’s work. This new edition reproduces the original chapters but provides extra content from subject experts to update the book to a contemporary level. Dementia Reconsidered Re-visited is an ideal main text or supplementary text for all those studying or working in nursing, medicine, psychiatry, psychology, occupational therapy, social work, adult education, gerontology and health and social care more generally. “This important book does three things. It brings to a new generation the insight and vision of Tom Kitwood. It highlights the remarkable progress we have made in recent years. But most important of all it reminds us what still needs to be done if we are to fully respect the rights of people with dementia and their family care-givers. Kitwood inspired Alzheimer’s Society to knit together research, care, and societal change. We are now re-inspired to make sure all progress is evidenced and evaluated for its impact. We must realise the enormous opportunities the digital age offers people affected by dementia but in doing so constantly listen to and learn from their many and varied voices across nations and cultures.” Jeremy Hughes CBE, Chief Executive, Alzheimer's Society, UK