The Ethics of Survivor Research

The Ethics of Survivor Research

Author: Alison Faulkner

Publisher: Policy Press

Published: 2004

Total Pages: 58

ISBN-13: 1861346417

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This guide is an accessible manual on ethical practice for research from the perspective of mental health service users and survivors. There is a distinction to be made between survivor controlled research and 'user/consumer involvement in research', and the focus of these guidelines is on the former. However, many of the ethical issues are common, making the guidelines valuable in the support of the Research Governance Framework (Dept of Health, 2001), which encourages the involvement of consumers in research. The guidelines are not intended as rules, but as helpful guidance on some of the difficult and important issues to be considered prior to a research project or research training programme. There are helpful hints and suggestions, as well as quotations and ideas reflecting the experience of people who were consulted for the development of the guidelines. Considerable time and space is given to such key ethical issues as informed consent and confidentiality with particular reference to mental health settings. However, the guidelines also address a number of less commonly discussed issues such as feedback to participants, dissemination and a commitment to change based on research findings.


This is Survivor Research

This is Survivor Research

Author: Angela Sweeney

Publisher: Pccs Books

Published: 2009

Total Pages: 0

ISBN-13: 9781906254148

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There has been a major development in social science research: it is now being carried out by people who had previously only been seen as its subjects. At the forefront are people with experience as mental health service users/survivors who have taken a lead in pioneering a new approach to research which is now commanding increasing attention and respect. "This is Survivor Research" for the first time details this important new approach to research. Written and edited by leaders in the field, the book explores the theory and practice of survivor research, provides practical examples of survivor research and offers guidance for people wishing to carry out such research themselves. This is a groundbreaking book for policy makers, researchers, educators, students, service users and practitioners in the mental health field and beyond, many of whom must address user involvement in their research.


Handbook of Service User Involvement in Mental Health Research

Handbook of Service User Involvement in Mental Health Research

Author: Jan Wallcraft

Publisher: John Wiley & Sons

Published: 2009-02-25

Total Pages: 280

ISBN-13: 9780470743140

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Service user involvement in mental health research poses specific challenges for both researchers and service users. The book describes the relevant background and principles underlying the concept of service user involvement in mental health research, providing relevant practical advice on how to engage with service users and how to build and maintain research collaboration on a professional level. It highlights common practical problems in service user involvement, based on experience from various countries with different social policies and suggests ways to avoid pitfalls and common difficulties. The book helps researchers decide which level of service user involvement will be adequate for their research activities and what will be feasible in view of the practicalities involved. It is also ideal for service users who are interested in becoming involved in research, providing relevant background information on the possibilities of involvement in professional research.


Qualitative Research Methods in Mental Health

Qualitative Research Methods in Mental Health

Author: Maria Borcsa

Publisher: Springer Nature

Published: 2021-06-30

Total Pages: 265

ISBN-13: 3030653315

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This book examines innovative approaches to the use of qualitative methods in mental health research. It describes the development and use of methods of data collection and analysis designed. These methods address contemporary and interdisciplinary research questions, such as how to access the voices of vulnerable populations, understand the relationship between experience and discourse, and identify processes and patterns that characterize institutional practices. The book offers insight into projects that reflect various cultural contexts and geographical locations as well as involve diverse research teams, ranging in their methodology from individual case studies to community-based interventions. Chapters address how research method selection needs to be tailored to specific contexts within which studies are carried out and how synthesizing diverse perspectives of different disciplines – such as psychology, sociology, linguistics, history, and art – make a research endeavor more fruitful. The book offers a clear framework in which to assess the research presented in the book as well as map future directions for qualitative methodology in mental health research. Key areas of coverage include projects that describe research with: • Individuals confronted with critical life events. • Former psychiatric patients. • Individual and couple psychotherapy clients. • Clients in a forensic setting. • Persons affected by psychosis. • Dementia patients. • People living with cancer. • Health care professionals. Qualitative Research Methods in Mental Health is a valuable resource for researchers, professors, and graduate students as well as therapists and other professionals in clinical and counseling psychology, psychotherapy, social work, and family therapy as well as all interrelated psychology and medical disciplines. Chapter 10, “Engraved in the Body: Ways of Reading Finnish People’s Memories of Mental Hospitals” is available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.


Key Concepts in Social Research Methods

Key Concepts in Social Research Methods

Author: Roger Gomm

Publisher: Bloomsbury Publishing

Published: 2009-04-30

Total Pages: 256

ISBN-13: 1137068760

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An in-depth glossary, this accessible book successfully introduces students to the key concepts and terms used in social research. Terms are organised alphabetically and fully cross-referenced for use of ease. Suggestions for further reading help to consolidate knowledge and aids understanding.


Handbook of Theory and Methods in Applied Health Research

Handbook of Theory and Methods in Applied Health Research

Author: Catherine Walshe

Publisher: Edward Elgar Publishing

Published: 2020-07-31

Total Pages: 381

ISBN-13: 1785363212

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This Handbook expertly instructs the reader on how to conduct applied health research across a number of disciplines. Particularly aimed at postgraduate health researchers and students of applied health research, it presents and explains a wide range of research designs and other contemporary issues in applied health research.


Moving Beyond Boundaries in Disability Studies

Moving Beyond Boundaries in Disability Studies

Author: Michele Moore

Publisher: Routledge

Published: 2013-09-13

Total Pages: 172

ISBN-13: 1135742960

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What challenges are posed by changing transnational trends, agendas and movements that affect disabled people’s lives, and what can disabled people, their representative organisations and their governments do to advance the agenda for self-determination and inclusion? This book draws together the writing of academics and activists to depict the experience and perspective of disabled people in relation to a range of contemporary social changes, with a focus firmly on ways in which disabled people and their allies can act to counter disabling policies and practices. Throughout the book there is an emphasis on disabled people’s own voices and activism as the critical driver of theoretical critique and practical change. Chapters address a wide range of cultural, institutional and personal arenas to explore and contest the boundaries that disabled people seek to move beyond, from cross-border labour movements in Korea to experience of day services in England, from continuing and long-lasting realities of wars in Lebanon, Cambodia and Somalia to the beauty of harmony in Navajo traditions for understanding disability, from collective activism to individual participation in the Olympics. This book is recommended reading for students, researchers and activists interested in Disability Studies and is directly relevant to policy makers and practitioners in a position to reshape rights, spaces and innovations in response to the priorities disabled people feel and articulate are important for their lives. It was originally published as a special issue of Disability & Society.


Applied Practice

Applied Practice

Author: Nick Rowe

Publisher: Bloomsbury Publishing

Published: 2017-08-10

Total Pages: 272

ISBN-13: 1474283845

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Applied Practice: Evidence and Impact in Theatre, Music and Art engages with a diversity of contexts, locations and arts forms – including theatre, music and fine art – and brings together theoretical, political and practice-based perspectives on the question of 'evidence' in relation to participatory arts practice in social contexts. This collection is a unique contribution to the field, focusing on one of the vital concerns for a growing and developing set of arts and research practices. It asks us to consider evidence not only in terms of methodology but also in the light of the ideological, political and pragmatic implications of that methodology. In Part One, Matthew Reason and Nick Rowe reflect on evidence and impact in the participatory arts in relation to recurring conceptual and methodological motifs. These include issues of purpose and obliquity; the relationship between evidence and knowledge; intrinsic and instrumental impacts, and the value of participatory research. Part Two explores the diversity of perspectives, contexts and methodologies in examining what it is possible to know, say and evidence about the often complex and intimate impact of participatory arts. Part Three brings together case studies in which practitioners and practice-based researchers consider the frustrations, opportunities and successes they face in addressing the challenge to produce evidence for the impact of their practice.


Research Ethics in the Real World

Research Ethics in the Real World

Author: Helen Kara

Publisher: Policy Press

Published: 2018-11-14

Total Pages: 212

ISBN-13: 144734474X

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Research ethics and integrity are growing in importance as academics face increasing pressure to win grants and publish, and universities promote themselves in the competitive HE market. Research Ethics in the Real World is the first book to highlight the links between research ethics and individual, social, professional, institutional, and political ethics. Drawing on Indigenous and Euro-Western research traditions, Helen Kara considers all stages of the research process, from the formulation of a research question to aftercare for participants, data and findings. She argues that knowledge of both ethical approaches is helpful for researchers working in either paradigm. Students, academics, and research ethics experts from around the world contribute real-world perspectives on navigating and managing ethics in practice. Research Ethics in the Real World provides guidance for quantitative, qualitative, and mixed-methods researchers from all disciplines about how to act ethically throughout your research work. This book is invaluable in supporting teachers of research ethics to design and deliver effective courses.