The Art of Caregiving in Fiction, Film, and Memoir
The Art of Caregiving in Fiction, Film, and Memoir

Author: Jeffrey Berman

Publisher: Bloomsbury Publishing

Published: 2020-10-29

Total Pages: 295

ISBN-13: 1350166596

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Bringing together the human story of care with its representation in film, fiction and memoir, this book combines an analysis of care narratives to inform and inspire ideas about this major role in life. Alongside analysis of narratives drawn from literature and film, the author sensitively interweaves the story of his wife's illness and care to illuminate perspectives on dealing with human decline. Examining texts from a diverse range of authors such as Leo Tolstoy, Edith Wharton and Alice Munro, and filmmakers such as Ingmar Bergman and Michael Haneke, it addresses questions such as why caregiving is a dangerous activity, the ethical problems of writing about caregiving, the challenges of reading about caregiving, and why caregiving is so important. It serves as a fire starter on the subject of how we can gain insight into the challenges and opportunities of caregiving through the creative arts.

The Art of Caregiving in Fiction, Film, and Memoir
The Art of Caregiving in Fiction, Film, and Memoir

Author: Jeffrey Berman

Publisher: Bloomsbury Publishing

Published: 2020-10-29

Total Pages: 295

ISBN-13: 135016657X

DOWNLOAD EBOOK

Bringing together the human story of care with its representation in film, fiction and memoir, this book combines an analysis of care narratives to inform and inspire ideas about this major role in life. Alongside analysis of narratives drawn from literature and film, the author sensitively interweaves the story of his wife's illness and care to illuminate perspectives on dealing with human decline. Examining texts from a diverse range of authors such as Leo Tolstoy, Edith Wharton and Alice Munro, and filmmakers such as Ingmar Bergman and Michael Haneke, it addresses questions such as why caregiving is a dangerous activity, the ethical problems of writing about caregiving, the challenges of reading about caregiving, and why caregiving is so important. It serves as a fire starter on the subject of how we can gain insight into the challenges and opportunities of caregiving through the creative arts.

Elder Rage
Elder Rage

Author: Jacqueline Marcell

Publisher:

Published: 2001

Total Pages: 370

ISBN-13: 9780967970318

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Elder Rage, or Take My Father... Please: How to Survive Caring for Aging Parents--is a riveting true story as well as an extensive self-help book, with solutions for effective management, medically and behaviorally, of challenging elders who resist care. Jacqueline Marcell's poignant and often-humorous story of caring for her challenging elderly father and sweet but frail mother, addresses issues like how to get an obstinate elder to: give up driving, accept a caregiver, see a different doctor, take medication, go to adult day care, move to a new residence, etc. Includes: Behavior Modification Guidelines, 25 Q&A's=How Do I Handle My Elderly Loved One Who...?, Long-Term Care Insurance, Ten Warning Signs of Alzheimer's, How is Alzheimer's Diagnosed, Three Stages of Alzheimer's, Startling Statistics, Other Diseases That Act Like Alzheimer's, Jacqueline's Top Ten Recommendations, Hope For The Future, The Search for the Cure, Valuable Resources, Recommended Reading. Internationally known dementia specialist, Rodman Shankle, MS MD, contributes the Addendum: A Physician's Guide to Treating Dementia. Over 50 endorsements include: Hugh Downs, Regis Philbin, Dr. Dean Edell, Duke University Center for Aging, Dr. Nancy Snyderman/ABC News, Leeza Gibbons, Senator John D. Rockefeller IV, Rudy Tanzi/Harvard Medical School, and The Johns Hopkins Memory Clinic. http://www.elderrage.com

Self-Portrait
Self-Portrait

Author: Celia Paul

Publisher: New York Review of Books

Published: 2020-11-10

Total Pages: 225

ISBN-13: 1681374838

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A rich, penetrating memoir about the author's relationship with a flawed but influential figure—the painter Lucian Freud—and the satisfactions and struggles of a life lived through art. One of Britain's most important contemporary painters, Celia Paul has written a reflective, intimate memoir of her life as an artist. Self-Portrait tells the artist's story in her own words, drawn from early journal entries as well as memory, of her childhood in India and her days as a art student at London's Slade School of Fine Art; of her intense decades-long relationship with the older esteemed painter Lucian Freud and the birth of their son; of the challenges of motherhood, the unresolvable conflict between caring for a child and remaining commited to art; of the "invisible skeins between people," the profound familial connections Paul communicates through her paintings of her mother and sisters; and finally, of the mystical presence in her own solitary vision of the world around her. Self-Portrait is a powerful, liberating evocation of a life and of a life-long dedication to art.

My Lovely Wife
My Lovely Wife

Author: Mark Lukach

Publisher: Bluebird

Published: 2018-06-26

Total Pages: 320

ISBN-13: 9781509805969

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Mark and Giulia's life together began as a storybook romance. They fell in love at eighteen, married at twenty-four, and were living their dream life in San Francisco. When Giulia was twenty-seven, she suffered a terrifying and unexpected psychotic break that landed her in the psych ward for nearly a month. One day she was vibrant and well-adjusted; the next she was delusional and suicidal, convinced that she was the devil and that her loved ones were not safe. All she wanted was to die. Eventually, Giulia fully recovered, and the couple had a son. But, soon after Jonas was born, Giulia had another breakdown, and then a third a few years after that. pushed to the edge of the abyss, everything the couple had once taken for granted was upended. A story of the fragility of the mind, and the tenacity of the human spirit, My Lovely Wife is, above all, a love story that raises profound questions: How do we care for the people we love? What and who do we live for? Breathtaking in its candor, radiant with compassion, and written with dazzling lyricism, Lukach's is an intensely personal odyssey through the harrowing years of his wife's mental illness, anchored by an abiding devotion to family that will affirm readers' faith in the power of love.

The Revised Fundamentals of Caregiving
The Revised Fundamentals of Caregiving

Author: Jonathan Evison

Publisher: Algonquin Books

Published: 2013-05-07

Total Pages: 304

ISBN-13: 161620317X

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In The Revised Fundamentals of Caregiving (releasing June 24, 2016 as a Netflix Original Film titled The Fundamentals of Caring, starring Paul Rudd and Selena Gomez), Jonathan Evison, author of the new novel This Is Your Life, Harriet Chance! and the New York Times bestseller West of Here, has crafted a novel of the heart, a story of unlikely heroes in a grand American landscape. For Ben Benjamin, all has been lost--his wife, his family, his home, his livelihood. Hoping to find a new direction, he enrolls in a night class called The Fundamentals of Caregiving, where he will learn to take care of people with disabilities. He is instructed about professionalism, about how to keep an emotional distance between client and provider, and about the art of inserting catheters while avoiding liability. But when Ben is assigned his first client--a tyrannical nineteen-year-old boy named Trevor, who is in the advanced stages of Duchenne muscular dystrophy--he soon discovers that the endless service checklists have done nothing to prepare him for the reality of caring for a fiercely stubborn, sexually frustrated teenager who has an ax to grind with the whole world. Over time, the relationship between Ben and Trev, which had begun with mutual misgivings, evolves into a close friendship, and the traditional boundaries between patient and caregiver begin to blur. The bond between them strengthens as they embark on a road trip to visit Trev’s ailing father--a journey rerouted by a series of bizarre roadside attractions that propel them into an impulsive adventure disrupted by one birth, two arrests, a freakish dust storm, and a six-hundred-mile cat-and-mouse pursuit by a mysterious brown Buick Skylark. By the end of that journey, Trev has had his first taste of love, and Ben has found a new reason to love life. Bursting with energy and filled with moments of absolute beauty, this big-hearted and inspired novel ponders life’s terrible surprises as well as what it takes to truly care for another human being.

The End of Eve
The End of Eve

Author: Ariel Gore

Publisher: Hawthorne Books

Published: 2014-02-17

Total Pages: 241

ISBN-13: 0989360415

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At age 39, Ariel Gore has everything she’s always wanted: a successful writing career, a long-term partnership, a beautiful if tiny home, a daughter in college and a son in preschool. But life’s happy endings don’t always last. If it’s not one thing, after all, it’s your mother. Her name is Eve. Her epic temper tantrums have already gotten her banned from three cab companies in Portland. And she’s here to announce that she’s dying. “Pitifully, Ariel,” she sighs. “You’re all I have.” Ariel doesn’t want to take care of her crazy dying mother, but she knows she will. It’s the right thing to do, isn’t it? And, anyway, how long could it go on? “Don’t worry,” Eve says. “If I’m ever a burden, I’ll just blow my brains out.” Amidst the chaos of clowns and hospice workers, pie and too much whiskey, Ariel’s own ten-year relationship begins to unravel. Darkly humorous and intimately human, The End of Eve redefines the meaning of family and everything we’ve ever been taught to call “love.”

In the Quick
In the Quick

Author: Kate Hope Day

Publisher: Random House Trade Paperbacks

Published: 2022-06-21

Total Pages: 273

ISBN-13: 052551127X

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GOOD MORNING AMERICA BUZZ PICK • A young, ambitious female astronaut’s life is upended by a love affair that threatens the rescue of a lost crew in this brilliantly imagined novel “with echoes of Station Eleven, The Martian, and, yes, Jane Eyre” (Observer). NAMED ONE OF THE BEST BOOKS OF THE YEAR BY VULTURE AND SHE READS • “The female astronaut novel we never knew we needed.”—Entertainment Weekly June is a brilliant but difficult girl with a gift for mechanical invention who leaves home to begin grueling astronaut training at the National Space Program. Younger by two years than her classmates at Peter Reed, the school on campus named for her uncle, she flourishes in her classes but struggles to make friends and find true intellectual peers. Six years later, she has gained a coveted post as an engineer on a space station—and a hard-won sense of belonging—but is haunted by the mystery of Inquiry, a revolutionary spacecraft powered by her beloved late uncle’s fuel cells. The spacecraft went missing when June was twelve years old, and while the rest of the world seems to have forgotten the crew, June alone has evidence that makes her believe they are still alive. She seeks out James, her uncle’s former protégé, also brilliant, also difficult, who has been trying to discover why Inquiry’s fuel cells failed. James and June forge an intense intellectual bond that becomes an electric attraction. But the relationship that develops between them as they work to solve the fuel cell’s fatal flaw threatens to destroy everything they’ve worked so hard to create—and any chance of bringing the Inquiry crew home alive. A propulsive narrative of one woman’s persistence and journey to self-discovery, In the Quick is an exploration of the strengths and limits of human ability in the face of hardship, and the costs of human ingenuity. This edition includes a bonus chapter.

Already Toast
Already Toast

Author: Kate Washington

Publisher: Beacon Press

Published: 2021-03-16

Total Pages: 224

ISBN-13: 0807011754

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The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.

Living with the Dying
Living with the Dying

Author: Amanda Neveu

Publisher:

Published: 2021-06-15

Total Pages: 152

ISBN-13: 9781737331209

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Have you thought about your future end-of-life journey? What does it look like, feel like, what are your desires and concerns? Join the Executive Director of the Schenectady Community Home Inc., Amanda Neveu, as she sheds light on the dynamic and groundbreaking mission of a non-profit comfort home and urges us all to consider our end-of-life wishes through compelling, powerful testimonies and insightful journaling. Living with the Dying explores the journey of a not-for-profit comfort home in Scotia, New York designed to support those most in need at the end of life while challenging the current end-of-life healthcare system and end-of-life perspectives. This moving and inspiring book will change the way you view death and dying and spark a newfound motivation to give back to your community.