Families of Children with Developmental Disabilities
Families of Children with Developmental Disabilities

Author: David W. Carroll

Publisher: Amer Psychological Assn

Published: 2013

Total Pages: 237

ISBN-13: 9781433813290

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Parents of children with disabilities confront a number of challenges and may be at risk for depressive or trauma-related symptoms. Changes in family roles and routines can cause stress for parents, siblings, and extended family alike as they confront multiple issues, including behavioural problems and frequent healthcare needs. Despite such challenges, many families derive a sense of meaning from facing their difficulties in a positive way. This book surveys the most recent empirical research on families of children with disabilities and provides guidelines and strategies for the developmental and family psychologists who support these clients. The book follows a developmental progression, first examining the immediate effects that a child's disability can have on his or her family and looking at the changes that occur as the child grows and faces new challenges. In doing so, the author examines studies employing a variety of methodologies, including quantitative research, meta-analyses, and qualitative methods such as narrative analysis. The book also describes cognitive behavioural interventions and programs that train parents to more effectively manage child behavioural problems and thereby improve family well-being.

Parenting Matters
Parenting Matters

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2016-11-21

Total Pages: 525

ISBN-13: 0309388570

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Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Parents with Intellectual Disabilities
Parents with Intellectual Disabilities

Author: Gwynnyth Llewellyn

Publisher: John Wiley & Sons

Published: 2010-02-18

Total Pages: 290

ISBN-13: 9780470660409

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The first international, cross-disciplinary book to explore and understand the lives of parents with intellectual disabilities, their children, and the systems and services they encounter Presents a unique, pan-disciplinary overview of this growing field of study Offers a human rights approach to disability and family life Informed by the newly adopted UN Convention on the Rights of Persons with Disabilities (2006) Provides comprehensive research-based knowledge from leading figures in the field of intellectual disability

The Essentials
The Essentials

Author: Pamela Brillante

Publisher: Essentials series

Published: 2017

Total Pages: 160

ISBN-13: 9781938113291

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Introduction to the core concepts of teaching and supporting children with disabilities alongside their peers will help teachers ensure that all children meet their potential.

Neurological, Psychiatric, and Developmental Disorders
Neurological, Psychiatric, and Developmental Disorders

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2001-01-01

Total Pages: 458

ISBN-13: 0309170931

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Brain disordersâ€"neurological, psychiatric, and developmentalâ€"now affect at least 250 million people in the developing world, and this number is expected to rise as life expectancy increases. Yet public and private health systems in developing countries have paid relatively little attention to brain disorders. The negative attitudes, prejudice, and stigma that often surround many of these disorders have contributed to this neglect. Lacking proper diagnosis and treatment, millions of individual lives are lost to disability and death. Such conditions exact both personal and economic costs on families, communities, and nations. The report describes the causes and risk factors associated with brain disorders. It focuses on six representative brain disorders that are prevalent in developing countries: developmental disabilities, epilepsy, schizophrenia, bipolar disorder, depression, and stroke. The report makes detailed recommendations of ways to reduce the toll exacted by these six disorders. In broader strokes, the report also proposes six major strategies toward reducing the overall burden of brain disorders in the developing world.

Supporting Families of Children With Developmental Disabilities
Supporting Families of Children With Developmental Disabilities

Author: Mian Wang

Publisher: Oxford University Press

Published: 2016-02-11

Total Pages: 377

ISBN-13: 0190494425

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Supporting Families of Children with Developmental Disabilities: Evidence-based and Emerging Practices provides a comprehensive review of the empirical evidence on interventions for families of individuals - ranging from post-preschool age to adulthood - with developmental disabilities. The book presents both narrative and meta-analytic syntheses of a large body of research to evaluate which interventions meet contemporary standards as evidence based practices. The body of studies reviewed in the book has not previously been gathered into one volume, nor evaluated as a whole for the quality and extent of the evidence. The research is presented in the context of contemporary social policy and practices aimed at maximizing the development of children with disabilities while increasing the quality of life of their families. The criteria and procedures followed for identifying, reviewing, evaluating, and categorizing the studies are articulated in line with other major professional standards. Individual chapters focus on several different schools of practice, including: group psycho-educational interventions, behavioral parent training, multiple component interventions, supportive interventions for families of children with autism, home- and school-based practices, self-help groups, and advocacy programs. Supporting Families of Children with Developmental Disabilities is an important tool for moving the disability field forward for future research, practice, and social policy.

Opportunities for Improving Programs and Services for Children with Disabilities
Opportunities for Improving Programs and Services for Children with Disabilities

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2018-08-06

Total Pages: 351

ISBN-13: 0309472245

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Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.

Life Planning for Adults with Developmental Disabilities
Life Planning for Adults with Developmental Disabilities

Author: Judith Greenbaum

Publisher: New Harbinger Publications

Published: 2007

Total Pages: 214

ISBN-13: 1572244518

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A Comprehensive Guide for Parents and Caregivers As any parent or caregiver of an individual with developmental disabilities can tell you, planning for the future of an adult with intellectual disabilities, Cerebral Palsy, severe autism, or another such condition requires hard work and good advice. While complete independence and self-reliance is out of reach for many adults with developmental disabilities, a productive, stable, and enjoyable life is certainly possible. But government and private support for parents and disabled individualsis scattered and difficult to negotiate. This book is a comprehensive guide to resources you can use to help an adult child or other individual with developmental disabilities for whom you care. The book begins by assessing the quality of life of the adult with a disability. It offers a wealth of suggestions for making that person's life even better. The book then focuses on long-term planning for the individual with a disability and helps answer the question, Who will take care of my child after I'm gone? Learn effective ways to: Assess a disabled individual's strengths and need for support services Develop a plan to for building a busy and productive life Locate good housing and employment opportunities Gather a supportive team of caregivers Advocate for a disabled individual with community agencies

Handbook of Disability Studies
Handbook of Disability Studies

Author: Gary L. Albrecht

Publisher: SAGE

Published: 2001

Total Pages: 868

ISBN-13: 9780761928744

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This path-breaking international handbook of disability studies signals the emergence of a vital new area of scholarship, social policy and activism. Drawing on the insights of disability scholars around the world and the creative advice of an international editorial board, the book engages the reader in the critical issues and debates framing disability studies and places them in an historical and cultural context. Five years in the making, this one volume summarizes the ongoing discourse ranging across continents and traditional academic disciplines. To provide insight and perspective, the volume is divided into three sections: The shaping of disability studies as a field; experiencing disability; and, disability in context. Each section, written by world class figures, consists of original chapters designed to map the field and explore the key conceptual, theoretical, methodological, practice and policy issues that constitute the field. Each chapter provides a critical review of an area, positions and literature and an agenda for future research and practice. The handbook answers the need expressed by the disability community for a thought provoking, interdisciplinary, international examination of the vibrant field of disability studies. The book will be of interest to disabled people, scholars, policy makers and activists alike. The book aims to define the existing field, stimulate future debate, encourage respectful discourse between different interest groups and move the field a step forward.