Stories in Chronic Illness and Disability
Stories in Chronic Illness and Disability

Author: Esther Chang

Publisher: Elsevier Health Sciences

Published: 2023-12-27

Total Pages: 156

ISBN-13: 0729589056

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As nurses and health professionals increasingly care for people with chronic diseases and disability, it has never been more important for students to gain the knowledge, skills and understanding they need to provide quality care.Stories in Chronic Illness & Disability will help you understand the lived experience of the people you look after. Intended as a companion to the Living with Chronic Illness & Disability textbook, also by Esther Chang and Amanda Johnson, it offers real-life case studies of the most common conditions you are likely to encounter in your work.The stories are accompanied by concise and engaging videos, with related activities to help you reflect on the everyday experiences of people you are caring and adjusting your approach accordingly. This resource is perfect for undergraduate nursing students on clinical placements, right through to registered nurses wanting to enhance their insights and understanding of chronic disease and disability - Print + interactive eBook with 29 videos embedded to bring case stories to life - Transcripts provided for all video interviews - Builds on the core theory presented in Living with Chronic Illness & Disability (4e) text which can be used in conjunction with the main textbook or as standalone - Scaffolded approach to learning, suitable for students with Certificate, Diploma, Bachelor and Post Graduate degrees across nursing, individual support and disability - Reflection, Inquiry and Action framework for teaching and learning around each story

Coping with Chronic Illness and Disability
Coping with Chronic Illness and Disability

Author: Erin Martz

Publisher: Springer Science & Business Media

Published: 2007-09-23

Total Pages: 437

ISBN-13: 0387486704

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This book synthesizes the expanding literature on coping styles and strategies by analyzing how individuals with CID face challenges, find and use their strengths, and alter their environment to fit their life-changing realities. The book includes up-to-date information on coping with high-profile conditions, such as cancer, heart disease, diabetes, arthritis, spinal cord injuries, and traumatic brain injury, in-depth coverage of HIV/AIDS, chronic pain, and severe mental illness, and more.

Unfitting Stories
Unfitting Stories

Author: Valerie Raoul

Publisher: Wilfrid Laurier Univ. Press

Published: 2007-03-30

Total Pages: 375

ISBN-13: 1554581214

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Unfitting Stories: Narrative Approaches to Disease, Disability, and Trauma illustrates how stories about ill health and suffering have been produced and received from a variety of perspectives. Bringing together the work of Canadian researchers, health professionals, and people with lived experiences of disease, disability, or trauma, it addresses central issues about authority in medical and personal narratives and the value of cross- or interdisciplinary research in understanding such experiences. The book considers the aesthetic dimensions of health-related stories with literary readings that look at how personal accounts of disease, disability, and trauma are crafted by writers and filmmakers into published works. Topics range from psychiatric hospitalization and aestheticizing cancer, to father-daughter incest in film. The collection also deals with the therapeutic or transformative effect of stories with essays about men, sport, and spinal cord injury; narrative teaching at L’Arche (a faith-based network of communities inclusive of people with developmental disabilities); and the construction of a “schizophrenic” identity. A final section examines the polemical functions of narrative, directing attention to the professional and political contexts within which stories are constructed and exchanged. Topics include ableist limits on self-narration; drug addiction and the disease model; and narratives of trauma and Aboriginal post-secondary students. Unfitting Stories is essential reading for researchers using narrative methods or materials, for teachers, students, and professionals working in the field of health services, and for concerned consumers of the health care system. It deals with practical problems relevant to policy-makers as well as theoretical issues of interest to specialists in bioethics, gender analysis, and narrative theory. Read the chapter “Social Trauma and Serial Autobiography: Healing and Beyond” by Bina Freiwald on the Concordia University Library Spectrum Research Repository website.

The Psychological and Social Impact of Chronic Illness and Disability
The Psychological and Social Impact of Chronic Illness and Disability

Author: Irmo Marini, PhD, DSc, CRC, CLCP

Publisher: Springer Publishing Company

Published: 2023-08-09

Total Pages: 665

ISBN-13: 0826151116

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Reflects the most significant and fundamental shifts in the experience of disability in human history With the release of its eighth edition, this bestselling text remains the most comprehensive and current text addressing the psychological and social issues dealt with by persons with disabilities. The new edition is almost completely rewritten and expanded by expert voices in disability and rehabilitation policy, research, and lived experience. It presents many new chapters covering topics such as disability identity, the impact of US laws and policies, the impact of micro-aggressions and discrimination, applications of well-being and positive psychology, and mental health implications of social media usage for people with disabilities. The eighth edition also includes new Personal Perspectives from individuals with various disabilities. The text provides an informed, critical, and engaging exploration of the impact of chronic illness and disability (CID) for a wide range of students, educators, and professionals who work with this population. It delivers a comprehensive understanding of CID topics ranging from the impact of law and policies, social justice issues, personal and professional rehabilitation, and the psychosocial experiences of CID. The book continues to investigate a diverse range of topics, from the historical and cultural perspectives on illness and disability to the personal, familial, and social impacts of disability. Chapters include Learning Objectives, Pre-reading Questions, Class Activities, and Case Studies with accompanying Discussion Questions to promote engagement. Instructors will also have access to the Instructor Manual, Test Bank, and chapter PowerPoints. Extensively rewritten and updated with expert voices in disability and rehabilitation policy and research Brand new chapters on disability identity, the impact of US laws and policies, the impact of micro-aggressions and discrimination, and more New Personal Perspectives from persons who have lived with various disabilities New Class Activities to help reinforce content Key Features: Presents the most comprehensive and diverse coverage of psychosocial aspects of disability of any text Addresses how people with CID have been viewed and treated throughout history and examines the changes and developments over the past decade Provides a bridge between theory and practice with abundant narratives Includes Learning Objectives, Pre-reading Questions, and Case Studies with Discussion Questions to enhance learning Delivers a comprehensive instructor package including Instructor Manual, Test Bank, and chapter PowerPoints

Unbreakable: Overcoming Chronic Illness with Strength and Resilience
Unbreakable: Overcoming Chronic Illness with Strength and Resilience

Author: Amy Epting, MA, RD, CSG, LDN

Publisher: Amy Epting, MA, RD, CSG, LDN, Certified Confidence Coach

Published: 2023-08-08

Total Pages: 103

ISBN-13:

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Having a chronic disease is a frustrating, sometimes painful process, especially if those around you don't support you. I myself have chronic diseases-autoimmune diseases such as lupus, Sjogren's syndrome, and Scleroderma. I also have fibromyalgia. I know what it's like to have flare ups and others around you do not understand. It is not surprising that many people suffering with chronic diseases have anxiety and depression. I hope you find this book helpful and I wish you all the best!

Chronic Illness
Chronic Illness

Author: S. Kay Toombs

Publisher: Indiana University Press

Published: 1995-07-22

Total Pages: 250

ISBN-13: 9780253113559

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"…excellent…" -- Choices - Choice on Dying Newsletter "Toombs, Barnard, and Carson have organized and edited a valuable series of papers that provide a rare perspective on the impact of chronic illness. Beginning with the person who is experiencing the chronic condition, they are able to weave an important blend of personal, social, and policy themes." -- Choice "This volume of collected essays is a solid contribution to the medical humanities literature on chronic illness... the contributors have produced a cohesive, systematic, and sensitive examination of issues in chronic illness and disability." -- Medical Humanities Review "Although it may seem to be intended largely for health care providers, this thought-provoking volume has much that will interest a wider lay audience." -- Medical and Health Annual An often moving exploration of the human, moral, and policy aspects of a health issue that affects each of us. Through first-person accounts and the perspectives of literature, medicine, philosophy, and religion, this book explores what it means to live with chronic illness and the implications of this experience for social policy, health care, bioethics, and the professions.

Disabled Mothers: Stories and Scholarship By and About Mother with Disabilities
Disabled Mothers: Stories and Scholarship By and About Mother with Disabilities

Author: Gloria Filax

Publisher: Demeter Press

Published: 2014-03-01

Total Pages: 382

ISBN-13: 1927335795

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This collection of 18 scholarly works and personal accounts from Canada, the U.S., and Australia explores and analyzes issues of parenting by mothers with a variety of physical and mental disabilities. The book delves into pregnancy, birth, adoption, child custody, discrimination, and disability politics. Noticing dominant ideas, meanings, and narratives about mothering and disability, as the contributors of this book do, exposes how the actual lives and experiences of mothers with disabilities are key to challenging cultural norms and therefore discrimination.

After Stories
After Stories

Author: Irina Carlota Silber

Publisher: Stanford University Press

Published: 2022-08-23

Total Pages: 302

ISBN-13: 1503632180

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This book builds upon Irina Carlota [Lotti] Silber's nearly 25 years of ethnographic research centered in Chalatenango, El Salvador, to follow the trajectories—geographic, temporal, storied—of several extended Salvadoran families. Traveling back and forth in time and across borders, Silber narrates the everyday unfolding of diasporic lives rich with acts of labor, love, and renewed calls for memory, truth, and accountability in El Salvador's long postwar. Through a retrospective and intimate ethnographic method that examines archives of memories and troubles the categories that have come to stand for "El Salvador" such as alarming violent numbers, Silber considers the lives of young Salvadorans who were brought up in an everyday radical politics and then migrated to the United States after more than a decade of peace and democracy. She reflects on this generation of migrants—the 1.5 insurgent generation born to forgotten former rank-and-file militants—as well as their intergenerational, transnational families to unpack the assumptions and typical ways of knowing in postwar ethnography. As the 1.5 generation sustains their radical political project across borders, circulates the products of their migrant labor through remittances, and engages in collective social care for the debilitated bodies of their loved ones, they transform and depart from expectations of the wounded postwar that offer us hope for the making of more just global futures.

The Psychological and Social Impact of Illness and Disability
The Psychological and Social Impact of Illness and Disability

Author: Irmo Marini, PhD, DSc, CRC, CLCP

Publisher: Springer Publishing Company

Published: 2017-12-28

Total Pages: 600

ISBN-13: 0826161626

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Praise for the Sixth Edition: "Adds an important international perspective on illness and disability. The personal narratives help bring the real world of people who are [survivors] to the forefront of the scientific discourse." —Doody's Medical Reviews Now in its seventh edition, this bestselling classic continues to be the most comprehensive and diverse text available on the psychosocial aspects of illness and disability. It is substantially revised to reflect the growing disparity between the haves and the have-nots and incorporates social justice issues throughout the text. In addition to new and updated information integrated throughout the book, the seventh edition features two new chapters addressing social justice in regards to depression and disability, and the psychosocial aspects of grief, death, and dying. Additionally, the text now includes an Instructor’s Manual and PowerPoint slides. Combining a mix of seminal work from rehabilitation counseling legends with current theoretical and treatment approaches, the book provides a practical, real-life perspective and offers broad and inclusive coverage of the day-to-day challenges of working with a diverse and marginalized population. Additionally, the text analyzes barriers to enabling patients with disabilities and improving their quality of life. Chapter objectives, review questions, and personal narratives in each chapter facilitate in-depth learning. New to the Seventh Edition: Completely updated to incorporate social justice issues, from the medical and psychosocial aspects of combat trauma to the impact of mental and physical disabilities on immigrants, refugees and asylum-seekers, throughout Includes two new chapters addressing Social Justice/Depression and Disability and the Psychosocial Aspects of Grief, Death, and Dying Includes an Instructor’s Manual and PowerPoint slides Enhanced coverage of topics concerning diverse and marginalized populations, including Women with Disabilities, Sexuality and Disabilities, LBGTQ Issues, Aging with Disabilities, Trauma, and more Key Features: Presents the most comprehensive and diverse coverage of psychosocial aspects of disability of any text Emphasizes the negative impact of societal attitudes and treatment of disabled individuals on their psychological adjustment to disability Examines both seminal and current thinking and treatment approaches Provides a bridge between theory and practice with abundant narratives Includes objectives and reviews questions in each chapter

Disability in American Life [2 volumes]
Disability in American Life [2 volumes]

Author: Tamar Heller

Publisher: Bloomsbury Publishing USA

Published: 2018-12-07

Total Pages: 1104

ISBN-13:

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Disability—as with other marginalized topics in social policy—is at risk for exclusion from social debate. This multivolume reference work provides an overview of challenges and opportunities for people with disabilities and their families at all stages of life. Once primarily thought of as a medical issue, disability is now more widely recognized as a critical issue of identity, personhood, and social justice. By discussing challenges confronting people with disabilities and their families and by collecting numerous accounts of disability experiences, this volume firmly situates disability within broader social movements, policy, and areas of marginalization, providing a critical examination into the lived experiences of people with disabilities and how disability can affect identity. A foundational introduction to disability for a wide audience—from those intimately connected with a person with a disability to those interested in the science behind disability—this collection covers all aspects of disability critical to understanding disability in the United States. Topics covered include characteristics of disability; disability concepts, models, and theories; important historical developments and milestones for people with disabilities; prominent individuals, organizations, and agencies; notable policies and services; and intersections of disability policy with other policy.