Special Needs Parenting: From Coping to Thriving offers emotional and spiritual resources for the journey of special needs parenting. Sharing personal insights as a theologian and the parent of an adult son with special needs, Rev. Dr. Lorna Bradley offers seven encouraging and practical tools to help the reader: o gain a deeper, grace-filled understanding of God's presenceo process deeply held feelings of grief and guilto discover strategies for patience, self-care, and healthy relationshipso find hope and healingPowerful for the individual reader, the built-in reflection and discussion questions make Special Needs Parenting an ideal, real-life resource for small groups. Special Needs Parenting is a must read for family members, pastors, and any person who works with special needs families. Dr. Bradley explores their challenges, grief, and joy with deep sensitivity, theological depth, and practical advice. A blessing to all who read it and allow their lives to be touched by wisdom born of personal experience and biblical scholarship
“Every day is joyful. Every day is a gift. Every day I can thank God from the bottom of my heart.” Kelly Mantoan wasn’t always able to say these words. As a mother of five children, two with profound disabilities, all her energy and attention was focused on her children’s diagnoses and round the clock care. Drained and struggling, Kelly wondered if she had what it took to be the kind of parent they needed. She craved support as a Catholic mother with special-needs children, but felt lost and alone when she tried to rely on secular support groups or well-meaning friends and family who had no experience in the special-needs community. If you can relate to Kelly’s story, Better Than OK: Finding Joy with Special- Needs Children is the hope-filled book you need today. In her down-to-earth way, Kelly shares the steps parents need to take to shift their focus away from the negatives of a diagnosis and towards acceptance, renewed faith, and joy. This book is a must-read for special-needs parents, but I would recommend it to any parent who needs a dose of wisdom and encouragement. — Jen Fulwiler, bestselling author and standup comic Sometimes special-needs parents need practical tips. Sometimes we need prayers. And sometimes we just need to know that we're not alone. ... This engaging new book is a true gift to the parents of kids with special needs. — Bonnie L. Engstrom, mom of eight and author of 61 Minutes to a Miracle This book is a gem for all special-needs parents, by turns funny, poignant, and always honest. It's the book I wish my parents could've had when I was diagnosed with cystic fibrosis in the 90s. — Emily M. DeArdo, author of Living Memento Mori: My Journey Along the Way of the Cross A truly important book for Catholic parents of special-needs children, and for family members, friends, and members of parish communities who want to better understand and more effectively support them. — Kendra Tierney, author of The Catholic All Year Compendium ABOUT THE AUTHOR Kelly Mantoan is the founder of Accepting the Gift, an online apostolate that provides resources and support to Catholic special-needs parents. She also blogs at This Ain’t the Lyceum about homeschooling, special-needs parenting, and Catholic family life. She enjoys creating useful posts and resources for her followers and speaking to groups about how God’s plan for our lives is often much better than anything we can imagine.
Sometimes life throws you a curveball. Andrew and Rachel Wilson know what it means to live a life they never expected. As the parents of two children with special needs, their story mingles deep pain with deep joy in unexpected places. With raw honesty, they share about the challenges they face on a daily basis—all the while teaching what it means to weep, worship, wait, and hope in the Lord. Offering encouragement rooted in God's Word, this book will help you cling to Jesus and fight for joy when faced with a life you never expected.
Dr. Robert A. Naseef, a psychologist and father of a son with autism, details the daily blessings and challenges of raising a child with disabilities, offering sensitive, real-world advice along the way.
How do two parents who are blind take their children to the park? How is a mother with dwarfism treated when she walks her child down the street? How do Deaf parents know when their baby cries in the night? When writer and musician Eliza Hull was pregnant with her first child, like most parents-to-be she was a mix of excited and nervous. But as a person with a disability, there were added complexities. She wondered: Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? More than 15 per cent of Australian households have a parent with a disability, yet their stories are rarely shared, their experiences almost never reflected in parenting literature. In We’ve Got This, twenty-five parents who identify as Deaf, disabled or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people’s attitudes. The result is a moving, revelatory and empowering anthology. As Rebekah Taussig writes, ‘Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit – disabled parents exist.’ Contributors include Jacinta Parsons, Kristy Forbes, Graeme Innes, Jessica Smith, Jax Jacki Brown, Nicole Lee, Elly May Barnes, Neangok Chair, Renay Barker-Mulholland, Micheline Lee and Shakira Hussein. We’ve Got This will appeal to readers of Growing Up Disabled in Australia and other titles in the Growing Up series.
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Parents of children with special needs face unique emotional and practical challenges that are seldom addressed by the medical community. In Special Kids Need Special Parents, Judith Loseff Lavin -- herself the parent of a child with special needs -- draws on interviews with health care professionals, nationally recognized authorities, and other parents to give readers the answers, advice, and comfort they crave.-- Coping with chronic pain, sleep problems, and frequent hospitalizations -- Dealing with feelings of grief and anger -- Choosing a therapist -- Finding suitable, reliable childcare -- How to cope with teasing -- The impact a special needs child can have on a marriage, siblings, and grandparents -- Finding cosmetic, prosthetic, and orthotic help -- and more.
There’s no such thing as a bad kid. That’s what a lifetime of experience has taught Dr. Stuart Shanker. No matter how difficult, out of control, distracted, or exhausted a child might seem, there’s a way forward: self-regulation. Overturning decades of conventional wisdom, this radical new technique allows children and the adults who care for them to regain their composure and peace of mind. Self-Reg is a groundbreaking book that presents an entirely new understanding of your child’s emotions and behavior and a practical guide for parents to help their kids engage calmly and successfully in learning and life. Grounded in decades of research and working with children and parents by Dr. Shanker, Self-Reg realigns the power of the parent-child relationship for positive change. Self-regulation is the nervous system’s way of responding to stress. We are seeing a generation of children and teens with excessively high levels of stress, and, as a result, an explosion of emotional, social, learning, behavior, and physical health problems. But few parents recognize the “hidden stressors” that their children are struggling with: physiological as well as social and emotional. An entrenched view of child rearing sees our children as lacking self-control or willpower, but the real basis for these problems lies in excessive stress. Self-regulation can dramatically improve a child’s mood, attention, and concentration. It can help children to feel empathy, and to cultivate the sorts of virtues that most parents know are vital for their child’s long-term wellbeing. Self-regulation brings about profound and lasting transformation that continues throughout life. Dr. Shanker translates decades of his findings from working with children into practical, prescriptive advice for parents, giving them concrete ways to develop their self-regulation skills and teach their children to do the same and engage successfully with life for optimal learning, social, and emotional growth.
Uncommon Voyage, first published in 1996, documented Laura Shapiro Kramer’s search for alternative treatments for her son Seth’s cerebral palsy in the face of an uncomprehending medical establishment. In this revised and expanded edition, the author redefines the main complementary therapies discussed earlier and explores new solutions she and Seth have discovered.
When his oldest son was diagnosed with severe autism, pastor Jason Hague found himself trapped, stuck between perpetual sadness and a lower, safer kind of hope. This is the common struggle for those of us walking through the Land of Unanswered Prayer. Life doesn’t look the way we expected, so we seek to protect ourselves from further disappointment. But God has a third path for us, beyond sadness or resignation: the way of aching joy. Christ himself is with us here, beckoning us toward the treasures hidden in the darkness. Aching Joy is an honest psalm of hope for those walking between pain and promise: the aching of a broken world and the beauty of a loving God. In this place, rather than trying to dodge the pain, we choose to feel it all—and to see where Jesus is in the midst of struggle. And because we make that choice, we feel all the good that comes with it, too. This is Jason’s story. This is your story. Come, find your joy within the aching.
