Rare Patients in the Waiting Room

Rare Patients in the Waiting Room

Author: Emmanuelle Lepetit

Publisher: Fleurus

Published: 2012-12-19T00:00:00+01:00

Total Pages: 13

ISBN-13: 221512217X

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Bye-bye boredom! 1 illustrated story to make time fly while you wait! Do you hate waiting? So does Gus! And waiting to have a vaccination is the worst wait of all! Except when you’re in the company of a mammoth with a cold... Join Gus in the waiting room and see what happens. This story is from the collected volume Bye-bye boredom - Dinosaurs, Stories to Help Pass the Time, also available in digital format.


Rare Diseases and Orphan Products

Rare Diseases and Orphan Products

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2011-04-03

Total Pages: 442

ISBN-13: 0309158060

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Rare diseases collectively affect millions of Americans of all ages, but developing drugs and medical devices to prevent, diagnose, and treat these conditions is challenging. The Institute of Medicine (IOM) recommends implementing an integrated national strategy to promote rare diseases research and product development.


The Power of Rare

The Power of Rare

Author: Victoria Jackson

Publisher: Simon and Schuster

Published: 2017-09-26

Total Pages: 272

ISBN-13: 0692928995

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"The Power of Rare is equal parts science and inspiration. In her urgent drive to help her daughter, Victoria Jackson not only transformed the competitive world of biomedical research, but also created a new medical model for generations to come." —Arianna Huffington Victoria Jackson revolutionized the beauty industry in the 1980s and '90s with her "no make-up" approach to make-up and ultimately made Victoria Jackson Cosmetics into a billion-dollar global brand. But her greatest test of the power of rare didn't come until her daughter, Ali, was diagnosed with neuromyelitis optica, or NMO—a rare, life-threatening autoimmune disease—and Victoria, driven by a mother's love, set out to find a cure for her daughter. Within days of hearing Ali's diagnosis in 2008, Victoria began the Guthy-Jackson Charitable Foundation to fund medical research into this often misdiagnosed orphan disease. Her "blueprint" called for breaking down the so-called silos of traditional medical research and bringing together some of the greatest minds to collaborate and share their findings. She hadn't expected to galvanize how medical research works, but within only a few years, that's just what she did. By focusing on the "rare" in each of us, the foundation has catalyzed breakthroughs in NMO in record time. These advances are also opening new doors to solving MS, lupus, and other autoimmune diseases—plus diseases that are not so rare, including cancer, infection, aging, and more. It has been Victoria's guiding philosophy that if she can do it, anyone can. With The Power of Rare, she shares how the foundation harnessed the power of rare to speed discoveries that help patients. Through her business savvy, wit, and heart, she offers real-world advice and inspiration for others to tap into "rare" to empower their own breakthroughs.


A Mind So Rare

A Mind So Rare

Author: Merlin Donald

Publisher: W. W. Norton & Company

Published: 2002

Total Pages: 396

ISBN-13: 9780393323191

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Donald (psychology, Queen's University, Canada) challenges the prevailing view that seeks to explain away human consciousness and presents a theory on the origins of the modern mind. He describes the cultural and neuronal forces that power human modes of awareness, and proposes that the human mind is a hybrid product of the interweaving of the brain with an invisible symbolic web of culture to form a "distributed" cognitive network. Using evidence from brain and behavioral studies of humans and animals, he explains how an expansion of consciousness transcends the limitations of the mammalian mind, and elaborates the foundations of self-evaluation and self-reflection. c. Book News Inc.


The Waiting Room

The Waiting Room

Author: Emily Bleeker

Publisher: Lake Union Publishing

Published: 2018

Total Pages: 0

ISBN-13: 9781503900882

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"Ever since her husband's death collided with the birth of her daughter, postpartum depression has taken hold of Veronica Shelton. She can't sleep, can't work, and can't bear to touch her beautiful baby girl. Her emotional state is whispering lies in Veronica's ear: You're a bad mother. Your baby would be better off without you. But not everything can be reasoned away by Veronica's despair--can it?"--Dust jacket flap.


I’Ll Take My Disease Rare Please

I’Ll Take My Disease Rare Please

Author: Rebecca Lalk

Publisher: WestBow Press

Published: 2015-09-15

Total Pages: 112

ISBN-13: 1512707384

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In 2002, diagnosed with an extremely rare and life-threatening diseasefibrosing mediastinitisat the age of twenty-seven, author Rebecca Lalk was told the average life expectancy with this condition was ten years. Doctors knew very littlethere was no cure, and limited treatment options were available. In Ill Take My Disease Rare, Please, she shares her journey dealing with the diagnosis and the disease that affects only 600 hundred people in the United States. She narrates how her illness began to attack with a vengeance leaving her to fight extreme fatigue, chest pressure, memory loss, head rushes, along with the chronic cough that began to overtake her life. She looked healthy, but nobody listened or took her seriously about the severity of her symptoms. This memoir tells Lalks story full of perseverance and determination. Ill Take My Disease Rare, Please describes how the diagnosis led to a new spiritual awakening, and how she was spurred to push forward with faith, family, and her sense of humor. Lalks determination also led her to one doctor who was able to help her and who told her to go live her life. With Gods grace, Lalk has done just that. She has since outlived that diagnosis by three years and has been referred to as a walking miracle.


Rare Birds

Rare Birds

Author: Jeff Miller

Publisher: Union Square & Co.

Published: 2023-01-31

Total Pages: 248

ISBN-13: 1454945060

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Jeff Miller’s heartbreaking, coming-of-age middle-grade novel—inspired by his personal experience living through his own parent’s heart transplant—invites readers into the world of a twelve-year-old birdwatcher looking for a place to call home and a way to save his mother, even if it means venturing deep into Florida swampland. Twelve-year-old Graham Dodds is no stranger to hospital waiting rooms. Sometimes, he feels like his entire life is one big waiting room. Waiting for the next doctor to tell them what’s wrong with his mom. Waiting to find out what city they’re moving to next. Waiting to see if they will finally get their miracle—a heart transplant to save his mom’s life. When Graham gets stuck in Florida for the summer, he meets a girl named Lou at the hospital, and he finds a friend who needs a distraction as much as he does. She tells him about a contest to find the endangered Snail Kite, which resides in the local gator-filled swamps. Together they embark on an adventure, searching for the rare bird . . . and along the way, Graham might just find something else—himself. Jeff Miller crafts a heartfelt story about what it means to live in this unforgettable middle-grade novel. Rare Birds is a rare find that will resonate with fans of the Carl Hiassen’s Hoot and Melissa Savage’s Lemon. For readers looking for novels with literary appeal and classic themes of family, friendship, and the meaning of life, Rare Birds is a perfect pick. Hardcover with dust jacket; 288 pages; 5.5 x 8.3 in.


Advances in Patient Safety

Advances in Patient Safety

Author: Kerm Henriksen

Publisher:

Published: 2005

Total Pages: 526

ISBN-13:

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v. 1. Research findings -- v. 2. Concepts and methodology -- v. 3. Implementation issues -- v. 4. Programs, tools and products.


The Rare Stamp Mystery

The Rare Stamp Mystery

Author: Mary Adrian

Publisher: Wildside Press LLC

Published: 2016-10-31

Total Pages: 68

ISBN-13: 1479423939

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Eleven-year-old Chris and ten-year olds Skeet and Gail are enthusiastic collectors. With equal avidity they collect animals and rare stamps. When their eccentric neighbor, Mr. Doolittle, appears to be the victim of a stamp theft at the same time their white opossum is stolen, the kids turn to sleuthing. "A lively mystery which imparts much incidental information on the hobby and science of stamp collecting. No gore, just good fun and excitement." -- Kirkus