Health Care Transition

Health Care Transition

Author: Albert C. Hergenroeder

Publisher: Springer

Published: 2018-05-03

Total Pages: 386

ISBN-13: 3319728687

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This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.


The Future of Disability in America

The Future of Disability in America

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2007-10-24

Total Pages: 619

ISBN-13: 0309104726

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The future of disability in America will depend on how well the U.S. prepares for and manages the demographic, fiscal, and technological developments that will unfold during the next two to three decades. Building upon two prior studies from the Institute of Medicine (the 1991 Institute of Medicine's report Disability in America and the 1997 report Enabling America), The Future of Disability in America examines both progress and concerns about continuing barriers that limit the independence, productivity, and participation in community life of people with disabilities. This book offers a comprehensive look at a wide range of issues, including the prevalence of disability across the lifespan; disability trends the role of assistive technology; barriers posed by health care and other facilities with inaccessible buildings, equipment, and information formats; the needs of young people moving from pediatric to adult health care and of adults experiencing premature aging and secondary health problems; selected issues in health care financing (e.g., risk adjusting payments to health plans, coverage of assistive technology); and the organizing and financing of disability-related research. The Future of Disability in America is an assessment of both principles and scientific evidence for disability policies and services. This book's recommendations propose steps to eliminate barriers and strengthen the evidence base for future public and private actions to reduce the impact of disability on individuals, families, and society.


Investing in the Health and Well-Being of Young Adults

Investing in the Health and Well-Being of Young Adults

Author: National Research Council

Publisher: National Academies Press

Published: 2015-01-27

Total Pages: 431

ISBN-13: 0309309980

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Young adulthood - ages approximately 18 to 26 - is a critical period of development with long-lasting implications for a person's economic security, health and well-being. Young adults are key contributors to the nation's workforce and military services and, since many are parents, to the healthy development of the next generation. Although 'millennials' have received attention in the popular media in recent years, young adults are too rarely treated as a distinct population in policy, programs, and research. Instead, they are often grouped with adolescents or, more often, with all adults. Currently, the nation is experiencing economic restructuring, widening inequality, a rapidly rising ratio of older adults, and an increasingly diverse population. The possible transformative effects of these features make focus on young adults especially important. A systematic approach to understanding and responding to the unique circumstances and needs of today's young adults can help to pave the way to a more productive and equitable tomorrow for young adults in particular and our society at large. Investing in The Health and Well-Being of Young Adults describes what is meant by the term young adulthood, who young adults are, what they are doing, and what they need. This study recommends actions that nonprofit programs and federal, state, and local agencies can take to help young adults make a successful transition from adolescence to adulthood. According to this report, young adults should be considered as a separate group from adolescents and older adults. Investing in The Health and Well-Being of Young Adults makes the case that increased efforts to improve high school and college graduate rates and education and workforce development systems that are more closely tied to high-demand economic sectors will help this age group achieve greater opportunity and success. The report also discusses the health status of young adults and makes recommendations to develop evidence-based practices for young adults for medical and behavioral health, including preventions. What happens during the young adult years has profound implications for the rest of the life course, and the stability and progress of society at large depends on how any cohort of young adults fares as a whole. Investing in The Health and Well-Being of Young Adults will provide a roadmap to improving outcomes for this age group as they transition from adolescence to adulthood.


Promoting Adolescent Health

Promoting Adolescent Health

Author: Thomas J. Coates

Publisher: Academic Press

Published: 2013-10-22

Total Pages: 517

ISBN-13: 1483276325

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Promoting Adolescent Health: A Dialog on Research and Practice is a collection of essays that discusses the insights provided by professionals into the problems of encouraging adolescent health. The book presents the open dialog between the views of pediatrics, cardiologists, psychologists, health educators, sociologists, and nutrition scientists. The text gives discussions from a variety of perspectives on each of six problem areas: smoking, drugs and alcohol, sexuality, coronary risk factors, health-risk eating behaviors, and chronic disease. It also discusses the factors influential in smoking onset and describes the examination of health education and health promotion, adolescent medicine, developmental psychology, education, and research methodology. The book will provide valuable insights for anthropologists, psychiatrists, sociologists, students, and researchers in the field of adolescent behaviors.


Adolescent Health Services

Adolescent Health Services

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2008-12-03

Total Pages: 366

ISBN-13: 0309185513

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Adolescence is a time of major transition, however, health care services in the United States today are not designed to help young people develop healthy routines, behaviors, and relationships that they can carry into their adult lives. While most adolescents at this stage of life are thriving, many of them have difficulty gaining access to necessary services; other engage in risky behaviors that can jeopardize their health during these formative years and also contribute to poor health outcomes in adulthood. Missed opportunities for disease prevention and health promotion are two major problematic features of our nation's health services system for adolescents. Recognizing that health care providers play an important role in fostering healthy behaviors among adolescents, Adolescent Health Services examines the health status of adolescents and reviews the separate and uncoordinated programs and services delivered in multiple public and private health care settings. The book provides guidance to administrators in public and private health care agencies, health care workers, guidance counselors, parents, school administrators, and policy makers on investing in, strengthening, and improving an integrated health system for adolescents.


Workshop on Disability in America

Workshop on Disability in America

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2006-03-27

Total Pages: 293

ISBN-13: 0309100909

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Beginning in late 2004, the IOM began a project to take a new look at disability in America. It will review developments and progress since the publication of the 1991 and 1997 Institute reports. For technical contracting reasons, the new project was split into two phases. During the limited first phase, a committee appointed by IOM planned and convened a 1-day workshop to examine a subset of topics as background for the second phase of project. As was agreed upon with the sponsor of the workshop, the Centers for Disease Control and Prevention (CDC), the topics were: methodological and policy issues related to the conceptualization, definition, measurement, and monitoring of disability and health over time; trends in the amount, types, and causes of disability; disability across the age spectrum and in the context of normal aging; and secondary health conditions. The phase-one workshop was held in Washington, D.C. on August 1, 2005. Its participants included researchers, clinicians, social service professionals, policy experts, and consumer representatives and advocates. The meeting agenda and list of participants are included in Appendix A. Workshop on Disability in America: A New Look- Summary and Background Papers summarizes the workshop presentations and discussions. The background papers prepared for the workshop are included in Appendixes B through O. Some papers were submitted and circulated in advance of the meeting, whereas others were first presented at the meeting. The analyses, definitions, and views presented in the papers are those of the paper authors and are not necessarily those of the IOM committee. Likewise, the discussion summary is limited to the views of the workshop participants.


Transitions Theory

Transitions Theory

Author: Afaf I. Meleis, PhD, DrPS (hon), FAAN

Publisher: Springer Publishing Company

Published: 2010-02-17

Total Pages: 664

ISBN-13: 0826105351

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"It is very exciting to see all of these studies compiled in one book. It can be read sequentially or just for certain transitions. It also can be used as a template for compilation of other concepts central to nursing and can serve as a resource for further studies in transitions. It is an excellent addition to the nursing literature." Score: 95, 4 Stars. --Doody's "Understanding and recognizing transitions are at the heart of health care reform and this current edition, with its numerous clinical examples and descriptions of nursing interventions, provides important lessons that can and should be incorporated into health policy. It is a brilliant book and an important contribution to nursing theory." Kathleen Dracup, RN, DNSc Dean and Professor, School of Nursing University of California San Francisco Afaf Meleis, the dean of the University of Pennsylvania School of Nursing, presents for the first time in a single volume her original "transitions theory" that integrates middle-range theory to assist nurses in facilitating positive transitions for patients, families, and communities. Nurses are consistently relied on to coach and support patients going through major life transitions, such as illness, recovery, pregnancy, old age, and many more. A collection of over 50 articles published from 1975 through 2007 and five newly commissioned articles, Transitions Theory covers developmental, situational, health and illness, organizational, and therapeutic transitions. Each section includes an introduction written by Dr. Meleis in which she offers her historical and practical perspective on transitions. Many of the articles consider the transitional experiences of ethnically diverse patients, women, the elderly, and other minority populations. Key Topics Discussed: Situational transitions, including discharge and relocation transitions (hospital to home, stroke recovery) and immigration transitions (psychological adaptation and impact of migration on family health) Educational transitions, including professional transitions (from RN to BSN and student to professional) Health and illness transitions, including self-care post heart failure, living with chronic illness, living with early dementia, and accepting palliative care Organization transitions, including role transitions from acute care to collaborative practice, and hospital to community practice Nursing therapeutics models of transition, including role supplementation models and debriefing models


Opportunities for Improving Programs and Services for Children with Disabilities

Opportunities for Improving Programs and Services for Children with Disabilities

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2018-08-06

Total Pages: 351

ISBN-13: 0309472245

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Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.


Health Promotion for People with Intellectual and Developmental Disabilities

Health Promotion for People with Intellectual and Developmental Disabilities

Author: Laurence Taggart

Publisher: McGraw-Hill Education (UK)

Published: 2014-01-16

Total Pages: 250

ISBN-13: 0335246958

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People with learning disabilities are affected by significantly more health problems than the general population and are much more likely to have significant health risks. Yet evidence suggests they are not receiving the same level of health education and health promotion opportunities as other members of society. This important, interdisciplinary book is aimed at increasing professional awareness of the importance of health promotion activities for people with intellectual and developmental disabilities. Written by an international board of experts, it is a thorough and comprehensive guide for students, professionals and carers. The book considers a variety of challenges faced by those with intellectual disabilities, from physical illnesses such as diabetes, epilepsy and sexual health issues, through to issues such as addiction, mental health and ageing. Contributors: Jim Blair, Penny Blake, Malin Broberg, Michael Brown, Eddie Chaplin, Bob Davies, Gillian Eastgate, Paul Fleming, Dora Fisher, Linda Goddard, Tamar Heller, John Heng, Thanos Karatzias, Mike Kerr, Nick Lennox, Tadhg MacIntyre, Beth Marks, Jane McCarthy,Judith Moyle,Karen Nankervis,Ruth Northway, Joseph O'Grady, Renee Proulx, Janet Robertson, Cathy Ross, Jasmina Sisirak, Eamonn Slevin, David S Stewart, William F. Sullivan, Beverley Temple, Hana Válková , Henny van Schrojenstein Lantman-de Valk. "I highly recommend this book to anyone working directly with people with an intellectual disability as well as professionals, academics and students who strive to promote issues and improve the lives of people with intellectual disabilities and their families." Agnes Lunny OBE, Chief Executive of Positive Futures, Northern Ireland "The editors and authors have done practitioners a great favour in bringing together in one volume a comprehensive account of how children and adults with intellectual disabilities can be supported to lead healthier lives." Roy McConkey, Professor of Developmental Disabilities, University of Ulster, Northern Ireland "This timely and important book synthesises current knowledge about health promotion interventions for people with intellectual disabilities. Written by leading researchers and practitioners, it should be on the bookshelves of everyone concerned with addressing the stark inequalities in health experienced by people with intellectual disabilities around the world." Eric Emerson, Professor of Disability Population Health, University of Sydney, Australia and Emeritus Professor of Disability and Health Research, Lancaster University, UK "This book is current and different from other textbooks I have used before. The book is pitched at a very easy to understand level and any healthcare professional or student working with people with intellectual and developmental disabilities can use it. The content is very up to date and relevant. The use of comprehensive authors with differing backgrounds demonstrates the textbook has a wide range of expertise and knowledge packed into it that makes the book very relevant learning disabilities practice. I will definitely be recommending this textbook to undergraduate nursing students in Learning Disabilities." Dorothy Kupara – Lecturer in Learning Disabilities Nursing, University of West London.