The Dread Disease

The Dread Disease

Author: James T. PATTERSON

Publisher: Harvard University Press

Published: 2009-06-30

Total Pages: 397

ISBN-13: 0674041933

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Relates the cultural history of cancer and examines society's reaction to the disease through a century of American life.


An Ungovernable Foe

An Ungovernable Foe

Author: Natalie B. Aviles

Publisher: Columbia University Press

Published: 2024-01-23

Total Pages: 553

ISBN-13: 0231551770

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In American politics, medical innovation is often considered the domain of the private sector. Yet some of the most significant scientific and health breakthroughs of the past century have emerged from government research institutes. The U.S. National Cancer Institute (NCI) is tasked with both understanding and eradicating cancer—and its researchers have developed a surprising expertise in virus research and vaccine development. An Ungovernable Foe examines seventy years of federally funded scientific breakthroughs in the laboratories of the NCI to shed new light on how bureaucratic organizations nurture innovation. Natalie B. Aviles analyzes research and policy efforts around the search for a viral cause of leukemia in the 1960s, the discovery of HIV and the development of AIDS drugs in the 1980s, and the invention of the HPV vaccine in the 1990s. She argues that the NCI transformed generations of researchers into innovative public servants who have learned to balance their scientific and bureaucratic missions. These “scientist-bureaucrats” are simultaneously committed to conducting cutting-edge research and stewarding the nation’s investment in cancer research, and as a result they have developed an unparalleled expertise. Aviles demonstrates how the interplay of science, politics, and administration shaped the NCI into a mission-oriented agency that enabled significant breakthroughs in cancer research—and in the process, she shows how organizational cultures indelibly stamp scientific work.


The Politics of Knowledge

The Politics of Knowledge

Author: Lily M. Hoffman

Publisher: SUNY Press

Published: 1989-01-01

Total Pages: 308

ISBN-13: 9780887069482

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In this book the author examines the question of the compatibility of politics, policy-making, and professional work. Based on nineteen case studies of organizations, Hoffman looks at "what happened" as doctors and planners set out to redistribute services to minorities and the poor between 1960 and 1980.


Common Enemies

Common Enemies

Author: Rachel Kahn Best

Publisher: Oxford University Press

Published: 2019-07-01

Total Pages: 273

ISBN-13: 019091842X

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For over a hundred years, millions of Americans have joined together to fight a common enemy by campaigning against diseases. In Common Enemies, Rachel Kahn Best asks why disease campaigns have dominated a century of American philanthropy and health policy and how the fixation on diseases shapes efforts to improve lives. Combining quantitative and qualitative analyses in an unprecedented history of disease politics, Best shows that to achieve consensus, disease campaigns tend to neglect stigmatized diseases and avoid controversial goals. But despite their limitations, disease campaigns do not crowd out efforts to solve other problems. Instead, they teach Americans to give and volunteer and build up public health infrastructure, bringing us together to solve problems and improve our lives.


The Politics of Breast Cancer

The Politics of Breast Cancer

Author: Maureen Hogan Casamayou

Publisher: Georgetown University Press

Published: 2001-03-26

Total Pages: 212

ISBN-13: 9781589014572

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Between 1990 and 1993, breast cancer activism became a significant political movement. The issue began to receive extensive media attention, and federal funding for breast cancer research jumped dramatically. Describing the origins of this surge in interest, Maureen Hogan Casamayou attributes it to the emergence of politically potent activism among breast cancer survivors and their supporters. Exploring the creation and development of the National Breast Cancer Coalition (NBCC), she shows how many of its key leaders were mobilized by their own traumatic experiences with the disease and its treatments. Casamayou details the NBCC’s meteoric rise and impressive lobbying efforts, explaining how—in contrast to grassroots movements founded by dedicated individuals—the coalition grew from the simultaneous efforts of a network of women who invested their time, energy, money, and professional skills in the fight for increased funding for breast cancer research. This multiple leadership—or collective entrepreneurialism, says Casamayou—was crucial to the NBCC’s success framing the issue in the minds of the public and policymakers alike.


Molecular Politics

Molecular Politics

Author: Susan Wright

Publisher: University of Chicago Press

Published: 1994-10-17

Total Pages: 615

ISBN-13: 0226910660

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The promise of genetic engineering in the early 1970s to profoundly reshape the living world activated a variety of social interests in its future promotion and control. With public safety, gene patents, and the future of genetic research at stake, a wide range of interest groups competed for control over this powerful new technology. In this comparative study of the development of regulatory policy for genetic engineering in the United States and the United Kingdom, Susan Wright analyzes government responses to the struggles among corporations, scientists, universities, trade unions, and public interest groups over regulating this new field. Drawing on archival materials, government records, and interviews with industry executives, politicians, scientists, trade unionists, and others on both sides of the Atlantic, Molecular Politics provides a comprehensive account of a crucial set of policy decisions and explores their implications for the political economy of science. By combining methods from political science and the history of science, Wright advances a provocative interpretation of the evolution of genetic engineering policy and makes a major contribution to science and public policy studies.


The Political Implications Of Human Genetic Technology

The Political Implications Of Human Genetic Technology

Author: Robert H. Blank

Publisher: Routledge

Published: 2019-06-26

Total Pages: 239

ISBN-13: 1000304604

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Human genetic technology has advanced rapidly in recent years to the point where amniocentesis is commonplace and in vitro fertilization has been successful. On the horizon looms the specter of human cloning and genetic engineering, raising a storm of new moral and ethical questions. These questions, asserts the author, are not the only ones to be considered; the impact and role of public policy are equally critical. What part should the state play in human genetic intervention? To what extent does a democratic society have the duty to take steps to reduce genetic disease and improve the quality of life through genetic engineering? If society has such responsibility, at what stage does societal good preempt individual rights? What is society's obligation toward future generations and is genetic manipulation justifiable on these grounds? After surveying the state of the art, the author grapples with these questions, contending that decisions ultimately will not be based on ethical and moral grounds –they will be fought out in the political arena.


Biomedicine in the Twentieth Century: Practices, Policies, and Politics

Biomedicine in the Twentieth Century: Practices, Policies, and Politics

Author: C. Hannaway

Publisher: IOS Press

Published: 2008-02-11

Total Pages: 388

ISBN-13: 1607503085

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Biomedicine in the Twentieth Century: Practices, Policies, and Politics is a testimony to the growing interest of scholars in the development of the biomedical sciences in the twentieth century and to the number of historians, social scientists and health policy analysts now working on the subject. The book is comprised of essays by noted historians and social scientists that offer insights on a range of subjects that should be a significant stimulus for further historical investigation. It details the NIH’s practices, policies and politics on a variety of fronts, including the development of the intramural program, the National Institute of Mental Health and mental health policy, the politics and funding of heart transplantation and the initial focus of the National Cancer Institute. Comparisons can be made with the development of other American and British institutions involved in medical research, such as the Rockefeller Institute and the Medical Research Council. Discussions of the larger scientific and social context of United States’ federal support for research, the role of lay institutions in federal funding of virus research, the consequences of technology transfer and patenting, the effects of vaccine and drug development and the environment of research discoveries all offer new insights and suggest questions for further exploration.