This book is written through the lens of patients, caregivers, healthcare representatives and families, highlighting new models of interaction between providers and patients and what people would like in their healthcae experience. It will envision a new kind of healthcare system that recommends on how/why providers must connect to patients and families using HIT, as well as suggestions about new kinds of HIT capabilities and how they would redesign systems of care if they could. The book will emphasize best practices, and case studies, drawing conclusions about new models of care from the stories and input of patients and their families reienforced with clinical research.
Participatory Health through Social Media explores how traditional models of healthcare can be delivered differently through social media and online games, and how these technologies are changing the relationship between patients and healthcare professionals, as well as their impact on health behavior change. The book also examines how the hospitals, public health authorities, and inspectorates are currently using social media to facilitate both information distribution and collection. Also looks into the opportunities and risks to record and analyze epidemiologically relevant data retrieved from the Internet, social media, sensor data, and other digital sources. The book encompasses topics such as patient empowerment, gamification and social games, and the relationships between social media, health behavior change, and health communication crisis during epidemics. Additionally, the book analyzes the possibilities of big data generated through social media. Authored by IMIA Social Media working group, this book is a valuable resource for healthcare researchers and professionals, as well as clinicians interested in using new media as part of their practice or research. - Presents a multidisciplinary point of view providing the readers with a broader perspective - Brings the latest case studies and technological advances in the area, supported by an active international community of members who actively work in this area - Endorsed by IMIA Social Media workgroup, guaranteeing trustable information from the most relevant experts on the subject - Examines how the hospitals, public health authorities, and inspectorates are currently using social media to facilitate both information distribution and collection
This groundbreaking resource explores core issues in participatory health research (PHR) and traces its global emergence as a force for improving health and well-being, healthcare services, and quality of life. The PHR approach is defined as including community members, health practitioners, and decision-makers as co-researchers, using local knowledge to reduce disparities in care, advocate for responsive health policy, and accelerate positive change in society as a whole. The book’s first half surveys themes essential to the development of the field, including evaluating PHR projects, training professionals in conducting PHR, and the ambitious work of the International Collaboration for Participatory Health Research. International perspectives showcase the varied roles of PHR in addressing urgent local health problems in their specific public health and sociocultural contexts. Among the topics covered: Demonstrating impact in participatory health research Reviewing the effectiveness of participatory health research: challenges and possible solutions Kids in Action—participatory health research with children Participatory health research: an Indian perspective Participatory health research in Latin America: scientific production on chronic diseases Participatory health research in North America: from community engagement to evidence-informed practice Participatory Health Research benefits those teaching and learning about participatory health research at institutions of higher education and in community settings, addressing diverse fields including health promotion and disease prevention, medicine and public health, quality of life, social work, and community development.
Participatory Action Research in Healthcare provides a guide to participatory action research in the community health setting. It draws upon the authors' experiences working, researching and engaging with people utilising collaborative, participatory approaches. The authors position participatory action research as a vital, dynamic and relevant approach that can be engaged by practitioners and health service providers. It is argued that participating with people is the way to move forward toward sustainable services that evoke human flourishing. Participatory Action Research in Healthcare explores the key issues surrounding participatory action research, and examines the benefits of this approach for community development and health promotion. It includes detailed guidelines on data generation and analysis.
Minkler and Wallerstein have pulled together a fantastic set of contributions from the leading researchers in the field. In addition to a fine collection of case studies, this book puts the key issues for researchers and practitioners in a historical, philosophical, and applied, practical context
This thoroughly revised and updated second edition of Methods for Community-Based Participatory Research for Health provides a step-by-step approach to the application of participatory approaches to quantitative and qualitative data collection and data analysis. With contributions from a distinguished panel of experts, this important volume shows how researchers, practitioners, and community partners can work together to establish and maintain equitable partnerships using a Community-Based Participatory Research (CBPR) approach to increase knowledge and improve the health and well-being of the communities involved. Written for students, practitioners, researchers, and community members, the book provides a comprehensive presentation of innovative partnership structures and processes, and covers the broad spectrum of methods needed to conduct CBPR in the widest range of research areas—including social determinants of health, health inequities, health promotion, community interventions, disease management, health services, and environmental health. The contributors examine effective methods used within the context of a CBPR approach including survey questionnaire, in-depth interview, focus group interview, ethnography, exposure assessment, and geographic information system mapping. In addition, each chapter describes a case study of the application of the method using a CBPR approach. The book also contains examples of concrete tools and measurement instruments that may be adapted by others involved in CBPR efforts.
Written by distinguished experts in the field, this book shows how researchers, practitioners, and community partners can work together to establish and maintain equitable partnerships using a Community-Based Participatory Research (CBPR) approach to increase knowledge and improve health and well-being of the communities involved. CBPR is a collaborative approach to research that draws on the full range of research designs, including case study, etiologic, longitudinal, experimental, and nonexperimental designs. CBPR data collection and analysis methods involve both quantitative and qualitative approaches. What distinguishes CBPR from other approaches to research is the active engagement of all partners in the process. This book provides a comprehensive and thorough presentation of CBPR study designs, specific data collection and analysis methods, and innovative partnership structures and process methods. This book informs students, practitioners, researchers, and community members about methods and applications needed to conduct CBPR in the widest range of research areas—including social determinants of health, health disparities, health promotion, community interventions, disease management, health services, and environmental health.
"An engaging introduction to an exciting multidisciplinary field where positive impact depends less on technology than on understanding and responding to human motivations, specific information needs, and life constraints." -- Betsy L. Humphreys, former Deputy Director, National Library of Medicine This is a book for people who want to design or promote information technology that helps people be more active and informed participants in their healthcare. Topics include patient portals, wearable devices, apps, websites, smart homes, and online communities focused on health. Consumer Healthcare Informatics: Enabling Digital Health for Everyone educates readers in the core concepts of consumer health informatics: participatory healthcare; health and e-health literacy; user-centered design; information retrieval and trusted information resources; and the ethical dimensions of health information and communication technologies. It presents the current state of knowledge and recent developments in the field of consumer health informatics. The discussions address tailoring information to key user groups, including patients, consumers, caregivers, parents, children and young adults, and older adults. For example, apps are considered as not just a rich consumer technology with the promise of empowered personal data management and connectedness to community and healthcare providers, but also a domain rife with concerns for effectiveness, privacy, and security, requiring both designer and user to engage in critical thinking around their choices. This book’s unique contribution to the field is its focus on the consumer and patient in the context of their everyday life outside the clinical setting. Discussion of tools and technologies is grounded in this perspective and in a context of real-world use and its implications for design. There is an emphasis on empowerment through participatory and people-centered care.
