Responsible Research
Responsible Research

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2003-02-06

Total Pages: 313

ISBN-13: 0309084881

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When 18-year-old Jesse Gelsinger died in a gene transfer study at the University of Pennsylvania, the national spotlight focused on the procedures used to ensure research participants' safety and their capacity to safeguard the well-being of those who volunteer for research studies. Responsible Research outlines a three-pronged approach to ensure the protection of every participant through the establishment of effective Human Research Participant Protection Programs (HRPPPs). The approach includes: Improved research review processes, Recognition and integration of research participants' contributions to the system, and Vigilant maintenance of HRPPP performance. Issues addressed in the book include the need for in-depth, complimentary reviews of science, ethics, and conflict of interest reviews; desired qualifications for investigators and reviewers; the process of informed consent; federal and institutional oversight; and the role of accreditation. Recommendations for areas of key interest include suggestions for legislative approaches, compensation for research-related injury, and the refocusing of the mission of institutional review boards. Responsible Research will be important to anyone interested in the issues that are relevant to the practice of using human subjects as research participants, but especially so to policy makers, research administrators, investigators, and research sponsorsâ€"but also including volunteers who may agree to serve as research participants.

Protecting Individual Privacy in the Struggle Against Terrorists
Protecting Individual Privacy in the Struggle Against Terrorists

Author: National Research Council

Publisher: National Academies Press

Published: 2008-09-26

Total Pages: 376

ISBN-13: 0309134447

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All U.S. agencies with counterterrorism programs that collect or "mine" personal data-such as phone records or Web sites visited-should be required to evaluate the programs' effectiveness, lawfulness, and impacts on privacy. A framework is offered that agencies can use to evaluate such information-based programs, both classified and unclassified. The book urges Congress to re-examine existing privacy law to assess how privacy can be protected in current and future programs and recommends that any individuals harmed by violations of privacy be given a meaningful form of redress. Two specific technologies are examined: data mining and behavioral surveillance. Regarding data mining, the book concludes that although these methods have been useful in the private sector for spotting consumer fraud, they are less helpful for counterterrorism because so little is known about what patterns indicate terrorist activity. Regarding behavioral surveillance in a counterterrorist context, the book concludes that although research and development on certain aspects of this topic are warranted, there is no scientific consensus on whether these techniques are ready for operational use at all in counterterrorism.

Legislating Privacy
Legislating Privacy

Author: Priscilla M. Regan

Publisher: Univ of North Carolina Press

Published: 1995

Total Pages: 340

ISBN-13: 9780807822265

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This book explores the dynamics of congressional policy formulation on privacy issues and explains why legislation has lagged so far behind technological development.

New Technologies for Human Rights Law and Practice
New Technologies for Human Rights Law and Practice

Author: Molly K. Land

Publisher: Cambridge University Press

Published: 2018-04-19

Total Pages: 333

ISBN-13: 1316843874

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New technological innovations offer significant opportunities to promote and protect human rights. At the same time, they also pose undeniable risks. In some areas, they may even be changing what we mean by human rights. The fact that new technologies are often privately controlled raises further questions about accountability and transparency and the role of human rights in regulating these actors. This volume - edited by Molly K. Land and Jay D. Aronson - provides an essential roadmap for understanding the relationship between technology and human rights law and practice. It offers cutting-edge analysis and practical strategies in contexts as diverse as autonomous lethal weapons, climate change technology, the Internet and social media, and water meters. This title is also available as Open Access.

Monthly Catalog of United States Government Publications
Monthly Catalog of United States Government Publications

Author: United States. Superintendent of Documents

Publisher:

Published: 1985

Total Pages:

ISBN-13:

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February issue includes Appendix entitled Directory of United States Government periodicals and subscription publications; September issue includes List of depository libraries; June and December issues include semiannual index