Can You Help Me?
Can You Help Me?

Author: Thomas D. Bird

Publisher:

Published: 2019

Total Pages: 289

ISBN-13: 0190684224

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Can You Help Me?: Living in the Turbulent World of Huntington Disease shares the surprising, insightful, challenging, and even encouraging stories of patients and their families who live with Huntington Disease. Having seen patients for more than 40 years, Dr Thomas Bird, a pioneer neurogeneticist, adds a human touch to this genetic brain disease that devastates persons during mid-life when they can least afford it. With a brief history of Huntington Disease and the occasional scientific detail, the true heart of the book is the human experience of the disorder: � The man who cannot stay out of prison because he is addicted to being a burglar. � Another man shoots and kills his roommate while watching television and cannot explain why he did it. � The woman with Huntington Disease copes with her depression by using Texas line dancing. � A twelve year old girl with juvenile Huntington Disease who can barely walk and talk, but her classmates rally around with touching and heartfelt support. � And the 72 year old man with late onset Huntington Disease and severe depression is made worse by ECT, but improved (for a while) with Transcranial Magnetic Stimulation. These are just some of the compelling stories of people of all ages and in all walks of life who feel trapped by a progressive degenerative brain disease from which there is no escape.

Caregiver's Handbook
Caregiver's Handbook

Author: DK

Publisher: Penguin

Published: 2013-09-01

Total Pages: 226

ISBN-13: 1465417443

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The Caregiver's Handbook is a definitive guide to caring for a sick or disabled person of any age. Whether it be adults looking after parents, partners looking after each other, parents looking after children, or young caregivers looking after their parents, the Caregiver's Handbook addresses both the needs of the caregiver, and person who needs care. The Caregiver's Handbook offers emotional support and practical advice on a wide range of topics, enabling individuals to provide the best care possible-whatever the requirements. Everyday concerns, including healthy eating, personal care, and rest and sleep, are addressed alongside topics such as safe movement and handling, choosing the right stability aids, or even how to maneuver a wheelchair for the first time. Features also include a look at how either at the needs of the caregiver, or how the requirement of specific conditions-such as dementia or physical impairment-can affect the way a task can be approached. The Caregiver's Handbook is a comprehensive, compassionate, and indispensable resource that all caregivers will want to have on hand at all times - it is essential reading for anyone caring for someone at home.

Huntington's Disease
Huntington's Disease

Author: Oliver Quarrell

Publisher:

Published: 1999

Total Pages: 164

ISBN-13: 9780192629302

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Huntington's Disease is a genetically inherited condition, the result of severe nerve-cell damage in the brain. Due to the recent identification of the gene involved, and the debilitating nature of the disease, a great many more people are now affected either directly or indirectly (familiesand carers) by this condition. The majority of people develop the disease between the ages of 35 and 55, so for those that are aware of a genetic inheritance, there are enormous problems to confront - should you carry on life as normal? Should you start a family? In this, the first book onHuntington's disease written for sufferers and their families, advice is given on living with this disabling illness. Written as much for carers as for the patients themselves, the book aims to answer some of the questions that both sufferer and carer might have. With the identification of theresponsible gene, genetic counselling is now available for those at risk of developing the disease. Though some may wish not to use these services, the book clearly explains the role of the counsellor, and what help is additionally available from the various patient organisations worldwide.

Patient 1
Patient 1

Author: Charlotte Raven

Publisher: Jonathan Cape

Published: 2021-11-04

Total Pages: 0

ISBN-13: 9781787332331

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Charlotte Raven had never heard of Huntington's Disease when, in her mid-thirties, she discovered that her father was suffering from the illness. Life for her and her young family would never be the same again. Patient 1 is her brutally candid account of coming to terms with this inherited neurodegenerative disease, which can manifest at any time in life for people who carry the faulty gene. As the illness began to take hold of Raven's body, mind and memory, she began to write. She wrote like her life depended on it -- and in many ways she believed it did. Frank and fearless, Patient 1 is an act of self-preservation and a kind of reckoning -- with the illness, with the person she once was, with the person she is now. In an afterword, Raven's doctor Ed Wild explains how doctors and patients like Charlotte are working together in the hope of one day eliminating this disease altogether.

Disease-Proof
Disease-Proof

Author: David L. Katz, M.D.

Publisher: Penguin

Published: 2013-09-26

Total Pages: 229

ISBN-13: 0698137116

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“If you want to build better health and a better future, this book makes an excellent tool kit.”—David A. Kessler, MD, author of The End of Overeating and former commissioner of the FDA It sometimes seems as if everyone around us is being diagnosed with a chronic illness—and that we might soon join them. In Disease-Proof, leading specialist in preventive medicine Dr. David Katz draws upon the latest scientific evidence and decades of clinical experience to explain how we can slash our risk of every major chronic disease—heart disease, cancer, stroke, diabetes, dementia, and obesity—by an astounding 80%. Dr. Katz arms us with skillpower: a proven, user-friendly set of tools that helps us make simple behavioral changes that have a tremendous effect on our health and well-being. Inspiring, groundbreaking, and prescriptive, Disease-Proof proves making lasting lifestyle changes is easier than we think.

Assessing Genetic Risks
Assessing Genetic Risks

Author: Institute of Medicine

Publisher: National Academies Press

Published: 1994-01-01

Total Pages: 353

ISBN-13: 0309047986

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Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.

Rules for 50/50 Chances
Rules for 50/50 Chances

Author: Kate McGovern

Publisher: Farrar, Straus and Giroux (BYR)

Published: 2015-11-24

Total Pages: 351

ISBN-13: 0374301603

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Seventeen-year-old Rose Levenson has a decision to make: Does she want to know how she's going to die? Because when Rose turns eighteen, she can take the test that tells her if she carries the genetic mutation for Huntington's disease, the degenerative condition that is slowly killing her mother. With a fifty-fifty shot at inheriting her family's genetic curse, Rose is skeptical about pursuing anything that presumes she'll live to be a healthy adult-including her dream career in ballet and the possibility of falling in love. But when she meets a boy from a similarly flawed genetic pool and gets an audition for a dance scholarship across the country, Rose begins to question her carefully laid rules.