Explore the complexities of Chronic Fatigue Syndrome (CFS) with 'Living with Chronic Fatigue Syndrome: Understanding, Managing, and Thriving.' This comprehensive guide delves into every aspect of CFS, from its historical roots and diagnostic challenges to the latest research and innovative treatments. Discover practical strategies for managing daily life, coping with the emotional impact, and building a supportive network. Each chapter offers in-depth insights, personal stories, and expert advice to help patients, caregivers, and healthcare professionals navigate the often misunderstood world of CFS. Whether you're newly diagnosed or have been living with CFS for years, this book provides the knowledge and tools to thrive despite the limitations. Join us in shedding light on CFS and advocating for a future filled with hope and progress.
“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.
Invisible chronic illness (ICI) can manifest itself in chronic fatigue, chronic pain, and many other miseries that are often perceived and dismissed negatively, even by doctors. This book offers "an invaluable source of help and comfort" (Katharina Dalton, M.D.) to those who suffer from ICI. "Today" feature.
Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.
This life-affirming, instructive, and thoroughly inspiring book is a must-read for anyone who is - or who might one day be - sick. It can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or life-threatening illness. Authentic and graceful, How to be Sick reminds us of our limitless inner freedom, even under high degrees of suffering and pain. The author - who became ill while a university law professor in the prime of her career - tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice - and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. And whether we ourselves are ill or not, we can learn these vital arts from Bernhard's generous wisdom in How to Be Sick.
"With case studies drawn from anthropological investigations of chronic pain sufferers and pain clinics in the northeastern United States, the authors attempt to invent new ways of writing about this language-resistant human experience. Focused on substantive issues in the study of chronic pain, their work explores the great divide between the culturally shaped language of suffering and the traditional language of medical and psychological theorizing. They argue that the representation of experience in local social worlds is a central challenge to the human sciences and to ethnographic writing, and that meeting that challenge is also crucial to the refiguring of pain in medical discourse and health policy debates. Anthropologists, scholars from the medical social sciences and humanities, and many general readers will be interested in Pain as Human Experience. In addition, behavioral medicine and pain specialists, psychiatrists, and primary care practitioners will find much that is relevant to their work in this book."--Jacket.
Combining a self-help manual, personal histories of chronic fatigue sufferers and a dictionary of symptoms and treatments, this comprehensive volume details every facet of the disease and thoroughly discusses every treatment currently available--from diagnosis to symptoms to traditional and alternative therapies to support groups.
Exercises and strategies for long-term emotional well-being in the face of physical difficulties. Why are we seeing growing numbers of people suffering from debilitating chronic symptoms of pain, fatigue, inflammation and cognitive impairment that medicine is failing to resolve? A new paradigm is needed where we understand the mind and body as an interconnected flowing system. This paradigm embraces the self-healing, self-correcting, and self-creating natures of our connected mind-body system. Physical symptoms are simply a sign of disharmony and energetic imbalance, a “tap on the shoulder” from our intelligent body that is trying to get our attention. This “tap” on the shoulder can become debilitating symptoms over time. When we pay attention, and understand this communication, we can take the steps to facilitate our own self-healing. This book explains the origins of chronic symptoms and outlines the road to recovery. Readers are offered life-changing principles and practices to regain harmony in their lives and bodies, whether they suffer from chronic fatigue syndrome, fibromyalgia, adrenal fatigue, trauma, depression, or anxiety. It explains how we can learn to heal ourselves from the inside out by reconceptualizing the relationships among our bodies, minds, and emotions, embracing the full importance of the mind-body connection, and tapping our natural restorative capacities. Here, readers will find ways to maximize the connections between optimum health, peace of mind, and fulfilling life experiences, all emerging when we are aligned with our “true self.”
Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest! But You LOOK Good gets to the heart of why our friends and family have difficulty with understanding ongoing illness and pain. It serves as a tool to help explain to loved ones how extreme fatigue, pain, dizziness, cognitive impairments and other symptoms can be limiting, even though the person may not look sick or in pain. Moreover, it gives them simple, pragmatic ways to truly be an encouragement, what to say, what not to say and how to help. Often loved ones are enlightened as to why their well-meaning advice is not always well-received. It is cherished by both those living with illness or injury, as well as those who love them!
Called the “invisible disease,” fibromyalgia is estimated to impact more than 10 million Americans. And yet, so much is still misunderstood about this chronic disorder. Mayo Clinic Guide to Fibromyalgia is an invaluable resource for understanding fibromyalgia and its debilitating symptoms. Those living with fibromyalgia know it is an invasive disorder, one that can cause overwhelming fatigue, joint stiffness, sleep problems, migraines, digestive problems, and troubles with memory and concentration, a symptom so common it is often referred to as “fibrofog.” While it's believed that humans have suffered from fibromyalgia for hundreds, even thousands, of years, a delay in medical research means many people living with fibromyalgia are still in the dark, confused by their symptoms and what causes the painful disorder. By drawing upon decades of advanced research in studying and treating fibromyalgia, Mayo Clinic Guide to Fibromyalgia combines anecdotes from real cases with expertise from Mayo Clinic’s rheumatology and chronic pain experts to provide an all-encompassing guide for understanding one of the most common chronic illnesses affecting Americans today. This book also offers reasonable, proven strategies—like worksheets to help readers craft a personalized daily plan—for managing common fibromyalgia symptoms, while serving as a comforting guide for those who may feel alone in their journey with fibromyalgia. This book breaks down what fibromyalgia is—and isn’t—in 4 separate sections: · Section 1 introduces fibromyalgia, the history and modern discoveries of fibromyalgia research, as well as common myths and misconceptions associated with the condition · Section 2 outlines the different treatment options available to those who suffer from fibromyalgia, including prescription medications, therapies, and forms of integrative medicine · Section 3 offers helpful tips for managing—and improving—chronic pain through diet, exercise, sleep, and stress management · Finally, Section 4 explains how to find guidance and support from your family, friends, and physicians to help you live a life unhindered by fibromyalgia If you’re struggling to advance past your painful fibromyalgia symptoms, get the book Publisher’s Weekly described as “the first [book] a newly diagnosed patient should consult.”
