This volume is a result of four days in July 2005, where historians, health economists, medical doctors and nurses, anthropologists, writers, sociologists and many more travelled to Oxford, England for the fourth annual 'Making Sense of Health, Illness and Disease' conference organised by Inter-Disciplinary.Net.
The study of health care brings one into contact with many disciplines and perspectives, including those of the provider and the patient. There are also multiple academic lenses through which one can view health, illness and disease. This book brings together scholars from around the world who are interested in developing new conversations intended to situate health in broader social and cultural contexts. This book is the outcome of the second global conference on “Making Sense of: Health, Illness and Disease,” held at St Hilda's College, Oxford, in July 2003. The selected papers pursue a range of topics and incorporate perspectives from the humanities, social sciences and clinical sciences. This volume will be of interest to researchers and health care practitioners who wish to gain insight into other ways of understanding health, illness and disease.
This book is a critical disability studies examination of the lived experience of chronic pain, engaging with and making a significant contribution to crip theory and the concept of ‘crip time’. Exploring experiences of pain and fatigue for people who live with chronic pain and based on narratives told through in-depth detailed interviews interwoven with theory at the cutting edge of critical disability studies, it demonstrates that our knowledge and understanding of chronic pain is incomplete without a critical disability studies approach. Through conceptualizing the concept of ‘crip time’ via participants’ narratives of living with chronic pain, chronic fatigue, and variable disabilities, this book demonstrates how thinking about chronic pain and fatigue with ‘crip time’ exposes normative, ableist, assumptions underlying both how pain and the ideas of cure and recovery are understood. It will be of interest to all academics and students working in the fields of disability studies, critical disability studies, crip theory, medical sociology, sexuality, and studies of embodiment, corporeality, and temporality more generally.
Over the past fifty years, design and branding have become omnipotent in the market and have made their way to other domains as well. Given their potential to divide humans into categories and label their worth and value, design and branding can wield immense but currently unharnessed powers of social change. Groups designed as devalued can be undesigned, redesigned and rebranded to seamlessly and equivalently participate in community, work and civic life. This innovative book argues that disability as a concept and category is created, reified, and segregated through current design and branding that begs for creative change. Transcending models of disability that locate it either as an embodied medical condition or as a socially constructed entity, this book challenges the very existence and usefulness of the category itself. Proposing and illustrating creative and responsible design, DePoy and Gilson include thinking and action strategies that are useful and potent for "undesigning", redesigning, and rebranding to meet the full range of human needs and to enhance full participation in local through global communities. Divided into two parts, the first section presents a critical examination of disability as a designed and branded phenomenon, exploring what exactly is being designed and branded and how. The second part investigates the redesign of disability and provides principles for redesign and rebranding illustrated with examples from high-tech to place-based sustainable strategies. The book provides a unique and contemporary framework for thinking about disability as well as providing relevant design and branding guidance to designers and engineers interested in embodiment issues.
Even as life expectancies increase, increasing numbers of people are living with chronic illness and pain than ever before. Long-term self-management of chronic conditions involves negotiating the intersections of personal life choices, community and workplace structures, and family roles. Medical Humanism, Chronic Illness, and the Body in Pain: An Ecology of Wholeness proposes an ecological model of wholeness, which envisions wholeness in the dialogic engagement of the philosophical orientations of the biomedical and traditional medical systems. Vinita Agarwal proposes an integrative premise of being whole through revising the fundamental definitions of humanism, rethinking the self/body/environment, and thereby recognizing alternative ways of organizing knowledge and human experience as this model pushes the intersections of patient-centered care and sustainable health ethics. It is in the spaces of such intersections, Agarwal argues, that we accomplish healing as an integrative relationship of the individual with the multiple cultural logics underlying chronic conditions and the competing medical worldviews of our contemporary landscape. Scholars of communication, health, and medical humanities, along with practitioners working with patients who have chronic conditions, will find this book particularly useful.
This book brings together ancient spiritual wisdom and modern science and philosophy to address age-old questions regarding our existence, free will and the nature of conscious awareness. Stuart Hameroff MD Professor, Anesthesiology and Psychology, and Director, Center for Consciousness Studies The University of Arizona, Tucson, Arizona This book presents a rich, broad-ranging overview of contemporary research and scholarship into consciousness and the self.... It is ... to their credit that the editors have assembled a highly stimulating set of scholars whose expertise cover all the relevant areas. I strongly recommend the book to anyone with an interest in understanding the directions in which contemporary thinking about the nature of consciousness is headed. B. Les Lancaster Emeritus Professor of Transpersonal Psychology Liverpool John Moores University, UK This volume is a collection of 23 essays that contribute to the emerging discipline of consciousness studies with particular focus on the concept of the self. The essays together argue that to understand consciousness is to understand the self that beholds consciousness. Two broad issues are addressed in the volume: the place of the self in the lives of humans and nonhuman primates; and the interrelations between the self and consciousness, which contribute to the understanding of cognitive functions, awareness, free will, nature of reality, and the complex experiential and behavioural attributes of consciousness. The book presents cutting-edge and original work from well-known authors and scholars of philosophy, psychiatry, behavioural sciences and physics. This is a pioneering attempt to present to the reader multiple ways of conceptualizing and thus understanding the relation between consciousness and self in a nuanced manner.
Global Handbook on Noncommunicable Diseases and Health Promotion David V. McQueen, editor A scan of health challenges around the globe readily brings to mind a range of infectious illnesses, from HIV to influenza. Yet chronic non-contagious conditions--heart disease, asthma, diabetes, cancer--are more prevalent, and their rates soaring, across the developed and developing worlds. The Global Handbook on Noncommunicable Diseases and Health Promotion is an important resource for understanding and approaching chronic illnesses and their prevention. This timely text balances theory and strategies to provide an integrative context for health-affecting behaviors regarding tobacco use, food choices, and physical activity. Coverage expands on current medical/clinical public health perspectives, arguing that closer attention to social context is crucial to better use of health resources and more relevant preventive efforts. Possible roles for hospitals, the workplace, government agencies, NGOs, and other institutions are analyzed, as is the potential for addressing larger underlying health factors (e.g., inequities and poverty) at the societal level. Topics covered include: The nature of causality: beyond traditional evidence Learning from the social sciences in chronic disease health promotion Contextual factors in health and illness Understanding and applying a social determinants of health framework for addressing NCDs Public health, NCDs, health promotion and business partnering NCDs and civil society: a history and a roadmap As the authors of the Global Handbook on Noncommunicable Diseases and Health Promotion make abundantly clear, opportunities are as numerous as the issues, and researchers and graduate students in global public health, health promotion, and chronic disease epidemiology will find these chapters positive and realistic.p>
What makes a disease real? Why is it that patients with chronic fatigue syndrome or fibromyalgia are doubted when they say they are in pain, and cannot access the same benefits of patient-hood that others can? What defines the limits of our belief and, ultimately, compassion, when it comes to disease? These are the questions approached in this book, which draws upon patients’ experiences and situates them among a diverse set of literatures, from the history and philosophy of medicine to the sociology of health and disease. The question of a patient’s identity and their understanding of disease is often assumed to emerge from their relationship with healthcare, but the case is made here that other, inter-personal factors are more salient. What a patient with a contested illness comes up against is not simply a medical categorisation – it is a prevailing notion of disease across society, and one they struggle to assimilate themselves into. Contested Illness in Context will appeal to students and researchers interested in fields such as the history and philosophy of medicine, the sociology of health and illness, medical anthropology, or disease and illness generally. It may also interest patients and doctors who struggle with difficult medical cases.
This conference proceeding provides an attempt to extend the conversation on pain; the boundaries of the word painA are characteristically blurred by connotations of suffering and trauma. The variety of papers in this collection transgress these boundaries knowingly, inviting a more expansive rather than narrow definition of pain.