We've Got This

We've Got This

Author: Eliza Hull

Publisher: Black Inc.

Published: 2022-03-01

Total Pages: 234

ISBN-13: 1743822243

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How do two parents who are blind take their children to the park? How is a mother with dwarfism treated when she walks her child down the street? How do Deaf parents know when their baby cries in the night? When writer and musician Eliza Hull was pregnant with her first child, like most parents-to-be she was a mix of excited and nervous. But as a person with a disability, there were added complexities. She wondered: Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? More than 15 per cent of Australian households have a parent with a disability, yet their stories are rarely shared, their experiences almost never reflected in parenting literature. In We’ve Got This, twenty-five parents who identify as Deaf, disabled or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people’s attitudes. The result is a moving, revelatory and empowering anthology. As Rebekah Taussig writes, ‘Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit – disabled parents exist.’ Contributors include Jacinta Parsons, Kristy Forbes, Graeme Innes, Jessica Smith, Jax Jacki Brown, Nicole Lee, Elly May Barnes, Neangok Chair, Renay Barker-Mulholland, Micheline Lee and Shakira Hussein. We’ve Got This will appeal to readers of Growing Up Disabled in Australia and other titles in the Growing Up series.


Helping Children with Ill Or Disabled Parents

Helping Children with Ill Or Disabled Parents

Author: Julia Segal

Publisher: Readers Digest

Published: 1996

Total Pages: 258

ISBN-13: 9781853024092

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The authors explore the range of issues that can arise when a parent falls ill or becomes disabled, focusing on what children need to know; issues of dependency and separation; the role of teachers and schools; the child's sense of responsibility; and how to help children cope with their feelings. Annotation copyright by Book News, Inc., Portland, OR


Changed by a Child

Changed by a Child

Author: Barbara Gill

Publisher: Harmony

Published: 1998-08-17

Total Pages: 338

ISBN-13: 0385482434

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Raising a child with a disability can often be more isolating and frustrating than any parent ever imagines. Finally, here is a book that honestly describes the inner needs and range of issues parents with disabled children face. Changed by a Child invites parents to take a moment for themselves. Each of the brief readings offers comfort and hope as they capture the unique challenges and joys of raising a disabled child.


Parenting Matters

Parenting Matters

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2016-11-21

Total Pages: 525

ISBN-13: 0309388570

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Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.


A Different Dream for My Child

A Different Dream for My Child

Author: Jolene Philo

Publisher:

Published: 2009

Total Pages: 0

ISBN-13: 9781572933071

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Devotional meditations for parents of critically or chronically ill children.Author Jolene Philo shares lessons from her own life, as well as the stories of other parents.


Dying and Disabled Children

Dying and Disabled Children

Author: Harold M. Dick

Publisher: Routledge

Published: 2014-02-25

Total Pages: 170

ISBN-13: 1317773713

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In this sensitive and compassionate look at terminally ill and disabled children, professionals from the medical community examine the stresses faced by their parents and siblings. They address the crucial element of communication--within a family and between health care providers and family members--in dealing with a child’s serious illness. Ethical decision making, learning to recognize the child’s suffering, and talking to children about death are honestly and clearly discussed. Experts offer direct interventions to help family members through the grieving process once a child has died.


Special Brothers and Sisters

Special Brothers and Sisters

Author: Monica McCaffrey

Publisher: Jessica Kingsley Publishers

Published: 2005-08-15

Total Pages: 97

ISBN-13: 1846421454

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Special Brothers and Sisters is a collection of real-life accounts from the brothers and sisters of children with special needs, disability or serious illness, ranging in age from 3 to 18 years. They explain, in their own words, what it's like to live with their siblings. There is a lot of advice available for parents of a child with a disability or illness, but very little about the important issue of educating their siblings about how they feel, and why they may behave differently from other children. These stories - from 40 different families - come with related tips to help siblings deal with some of the things that happen in their family lives. The book also provides a helpful glossary to explain, in child-friendly language, the disabilities and medical conditions mentioned, including: * ADHD * autism * cerebral palsy * cystic fibrosis * Down syndrome Special Brothers and Sisters is an engaging and educational collection that will enable young people and adults to share in the extraordinary experience of being a sibling of a child with special needs, a disability or serious illness.


When Your Child Has a Disability

When Your Child Has a Disability

Author: Mark L. Batshaw

Publisher:

Published: 2001

Total Pages: 0

ISBN-13: 9781557664723

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With even more practical information and direct answers to families' questions, the second edition of this easy-to-read guide is a proven resource for helping parents meet the demands of raising a child with a disability. You'll get updated, expert advice on a wide range of medical and educational issues as well as detailed coverage of the daily and long-term care requirements of specific disabilities, including mental retardation autism hearing impairment Down syndrome visual impairment communication disorders seizure disorders spina bifida ADHD cerebral palsy genetic syndromes New to this edition are chapters exploring nutrition, dental care, legal rights and benefits, and the transition to adulthood, as well as information on development and commonly used medications. Answers to frequently asked questions follow the chapters, addressing common parent concerns like sleep, behavior, medication, and potential complications.


Unlocking the Treasure

Unlocking the Treasure

Author: Bev Roozeboom

Publisher: WestBow Press

Published: 2011-05-25

Total Pages: 136

ISBN-13: 1449715982

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Has your child been given a heart-wrenching diagnosis such as bipolar disorder, Down syndrome, autism, Asperger syndrome, ADHD, or reactive attachment disorder? Was your child born with physical or intellectual disabilities? Then you’re not just the mother of a special-needs child, you’re a special-needs mom! If your child struggles with physical, emotional, mental, or behavioral difficulties and you find yourself disillusioned and disheartened, this study is for you. Written by a mom who is also walking this journey, “Unlocking the Treasure” offers hope and encouragement in the midst of daily battles and extraordinary challenges. As the pages of Scripture are opened, you will uncover the treasure of a heavenly Father who deeply loves His children. This journey will bring you into the heart of Scripture where you will discover God’s lavish love and gentle compassion. You will learn what it means to trust God with yourself and your child. You will discover the God of hope and uncover the promises of peace and contentment. Finally, you will bring to light the hope of an abundant and joy-filled life, even on this side of heaven! Moms of children with special needs often feel alone, wondering if anyone understands their heart. As you complete this study, walls of isolation will crumble as you meet other women who share similar struggles. “Unlocking the Treasure” includes real-life stories from several moms who are also on this journey called “special needs”...a journey not of their choosing, but one uniquely designed for them by the Creator of all life.