Dying in America

Dying in America

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2015-03-19

Total Pages: 470

ISBN-13: 0309303133

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For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.


Fast Facts for the Hospice Nurse

Fast Facts for the Hospice Nurse

Author: Patricia Moyle Wright, PhD, MBA, MSN, CRNP, ACNS-BC, CHPN, CNE, FPCN

Publisher: Springer Publishing Company

Published: 2017-01-28

Total Pages: 209

ISBN-13: 0826131999

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An on-the-go reference for hospice nurses and those interested in end-of-life care, this practical guide covers the essential elements in the compassionate and holistic care of terminally ill patients and their families. Nurses care for patients facing end-of-life issues in every practice specialty and, as the U.S. population continues to age, the need for proficiency in end-of-life skills will become increasingly important. Fast Facts for the Hospice Nurse: A Concise Guide to End-of-Life Care is an invaluable resource that provides emotional, administrative, and palliative support, whether in a hospice, long-term care facility, or acute care setting. This vital go-to text clearly and concisely lays out not only how to care for patients facing end-of-life issues, but also how to engage in self-care and cope with occupational stress. Beginning with an overview of hospice care, including its history and philosophy, this book offers a timeline of the growth of the hospice movement in the United States. Subsequent sections include up-to-date information on the clinical responsibilities of the hospice nurse in addressing the physical, psychological, and spiritual needs of terminally ill patients and their families in a culturally sensitive way. This book also outlines the administrative duties of the hospice nurse, including hospice documentation, a review of hospice regulations, and quality management. The closing section focuses on occupational stress in hospice nursing and how to engage in self-care. This text can serve as a useful clinical resource and also as a reference for nurses seeking hospice certification from the Hospice and Palliative Credentialing Center. Key Features Organized within the context of the scope and standards of practice of the Hospice and Palliative Nurses Association. Addresses key points about issues unique to hospice nursing and highlights evidence-based interventions Addresses important Medicare regulations and reimbursement Offers numerous clinical resources to assist with hospice nursing practice Serves as a concise study resource for hospice nursing certification


Approaching Death

Approaching Death

Author: Committee on Care at the End of Life

Publisher: National Academies Press

Published: 1997-10-30

Total Pages: 457

ISBN-13: 0309518253

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When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."


Hospice Coordinator

Hospice Coordinator

Author: National Learning Corporation

Publisher: Career Examination

Published: 2017

Total Pages: 0

ISBN-13: 9780837330341

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The Hospice Coordinator Passbook(R) prepares you for your test by allowing you to take practice exams in the subjects you need to study. It provides hundreds of questions and answers in the areas that will likely be covered on your upcoming exam.


Palliative Day Care

Palliative Day Care

Author: Ronald Fisher

Publisher: CRC Press

Published: 1996-03-29

Total Pages: 259

ISBN-13: 9780340625217

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There has been a steady growth in the provision of day care services for people with life-threatening illnesses who live at home. This book includes details of the range of therapies and services that a multi-disciplinary team can provide to address the physical, emotional, psycho-social and spiritual needs of these patients and their families, thus enabling them to remain in their own homes.


Hospice Nursing

Hospice Nursing

Author: Margaret R. Crawford

Publisher:

Published: 2017-08-29

Total Pages: 178

ISBN-13: 9781546702252

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Hospice nursing is not for the fainthearted. As Margaret R. Crawford, BSN, touches on in her new guide to this particular specialty, it takes inner strength to be able to walk up to a hospice patient's door every day. Crawford stresses that it isn't simply the technical aspects of hospice nursing that make it challenging, but the emotional attachments and anxieties that may emerge. In Hospice Nursing, Crawford covers the reasons someone would choose hospice nursing; the importance of self-care; the day-to-day routine of a hospice nurse; the admission conversation; different ways to treat and comfort patients with small children or patients with addictions; the complex relationships between nurses, patients, their families, and coworkers; the need to recognize and plan for burnout; and other basic challenges nurses must face. While hospice care may be demanding, Crawford is also quick to say that it can also be incredibly rewarding. As a nurse or caretaker, you are committed to making a difference in someone's life. Hospice care allows you to help alleviate the suffering of others. If this is something you are interested in pursuing, Crawford has all the information you need to get started.


Improving Palliative Care for Cancer

Improving Palliative Care for Cancer

Author: National Research Council

Publisher: National Academies Press

Published: 2001-10-19

Total Pages: 344

ISBN-13: 0309074029

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In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.


Innovations in Hospice Architecture

Innovations in Hospice Architecture

Author: Stephen Verderber

Publisher: Taylor & Francis

Published: 2003-09-02

Total Pages: 364

ISBN-13: 1134338279

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Providing much-needed focus on hospice projects in the context of unprecedented rates of societal ageing, this new reference book presents an overview of major recent developments in this rapidly evolving building type. The authors present an overview of the historical origins of the contemporary hospice and the diverse variations on the basic premise of hospice care, and offer a series of case studies of exemplary hospices. The most innovative work in this area over the past decade has been in Japan, the US, Canada and the UK, and the authors describe and analyze examples both as individual projects and as comparable yet differing approaches. Hospice Architecture will be essential reading for anyone involved in the planning, design and construction of hospices.


Hospice Care for Patients with Advanced Progressive Dementia

Hospice Care for Patients with Advanced Progressive Dementia

Author: Ladislav Volicer, MD, PhD

Publisher: Springer Publishing Company

Published: 2004-01-01

Total Pages: 320

ISBN-13: 0826117414

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This volume demonstrates how hospice care leads to improved quality of life for patients with terminal dementia and their families. Much of the information is based on the successful 10-year experience of the E.N. Rogers Memorial Hospital, where the first palliative care program for the management of patients with advanced dementia was developed. The book discusses Alzheimer's and other progressive dementias and reviews the clinical problems encountered, including infections, eating difficulties, and behavioral problems. It further addresses how to implement hospice care programs for these patients and the ethical aspects involved. This volume will be of compelling importance to nurses, physicians, and social workers involved in hospice or home care of patients at the last stages of dementia.