This monograph articulates eight key elements of a family-centered approach to policy and practice for children needing specialized health and developmental services. An introductory section reviews the development of the first edition of the monograph in 1987 and its widespread dissemination and acceptance since that time. Each of the following eight chapters then addresses one of the following elements: (1) recognition that the family is the constant in the child's life, while the service systems and support personnel within those systems fluctuate; (2) facilitation of family/professional collaboration at all levels of hospital, home, and community care; (3) exchange of complete and unbiased information between families and professionals in a supportive manner; (4) respect for cultural diversity within and across all families including ethnic, racial, spiritual, social, economic, educational, and geographic diversity; (5) recognition of different methods of coping and promotion of programs providing developmental, educational, emotional, environmental, and financial supports to families; (6) encouragement of family-to-family support and networking; (7) provision of hospital, home, and community service and support systems that are flexible, accessible, and comprehensive in meeting family-identified needs; and (8) appreciation of families as families, recognizing their wide range of strengths, concerns, emotions, and aspirations beyond their need for specialized health and developmental services and support. Checklists for evaluating these elements are attached. (Contains 160 references.) (DB)
Presents a family-focused, culturally sensitive, and systems-coordinated approach for the provision of effective service delivery and care to HIV/AIDS children and their families. Replete with in-depth clinical case examples, it describes an array of modalities, including family, individual, and group treatment, as well as hypnotherapeutic techniques for nonpharmacologic pain management.
Thousands of HIV-positive women give birth every year. Further, because many pregnant women are not tested for HIV and therefore do not receive treatment, the number of children born with HIV is still unacceptably high. What can we do to eliminate this tragic and costly inheritance? In response to a congressional request, this book evaluates the extent to which state efforts have been effective in reducing the perinatal transmission of HIV. The committee recommends that testing HIV be a routine part of prenatal care, and that health care providers notify women that HIV testing is part of the usual array of prenatal tests and that they have an opportunity to refuse the HIV test. This approach could help both reduce the number of pediatric AIDS cases and improve treatment for mothers with AIDS. Reducing the Odds will be of special interest to federal, state, and local health policymakers, prenatal care providers, maternal and child health specialists, public health practitioners, and advocates for HIV/AIDS patients. January
This book examines the impact of pediatric HIV on children, adolescents, and their families. Beginning with an overview of pediatric HIV epidemiology, it traces the medical, psychological, and social dimensions of HIV through the trajectory of childhood and youth. It examines the latest research on a wide range of topics, including treatment adherence, cultural, legal, and ethical issues, and HIV stigma and its reduction. Chapters offer expert recommendations for clinicians working with children with HIV as well as researchers studying pediatric HIV. In addition, the book also discusses daily concerns associated with pediatric HIV, such as disease management, coping, access to services, risk prevention, and health promotion. Topics featured in this book include: The impact of pediatric HIV on families. Psychosocial considerations for children and adolescents with HIV. HIV prevention and intervention in the school setting. HIV disclosure in pediatric populations. How to design effective evidence-based HIV risk-reduction programs for adolescents. A Clinical Guide to Pediatric HIV is a must-have resource for researchers, clinicians, and graduate students in child and school psychology, social work, and public health as well as pediatric medicine, nursing, epidemiology, anthropology, and other related disciplines.
This Global Plan provides the foundation for country-led movement towards the elimination of new HIV infections among children and keeping their mothers alive. The Global Plan was developed through a consultative process by a high level Global Task Team convened by UNAIDS and co-chaired by UNAIDS Executive Director Michel Sidibe and United States Global AIDS Coordinator Ambassador Eric Goosby. It brought together 25 countries and 30 civil society, private sector, networks of people living with HIV and international organizations to chart a roadmap to achieving this goal by 2015."
Pediatric Home Care is a practice-based text perfect for either students or for supporting pediatric nurses practicing in a home-care setting. The text includes a variety of nursing information required for this type of care across a large spectrum of physiologic categories and acuity levels. The Third Edition has been completely revised and updated to reflect the most current practice and technology and includes a new focus on evidence based practice.