How Do Families Cope With Chronic Illness?
How Do Families Cope With Chronic Illness?

Author: Robert E. Cole

Publisher: Routledge

Published: 2013-05-13

Total Pages: 238

ISBN-13: 113476930X

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Because chronic disorder is becoming an ordinary feature of family life and development, understanding its impact has become critical. This volume, and the conference proceedings it reports, represents a major effort to examine the family's response to chronic physical or psychopathological illness in one or more of its members. Recent data are revising our notions of chronic illness. Evidence is mounting that chronic psychiatric disorders reflect, in part, abnormalities of brain structure and function. In this sense, they are, in part, medical disorders. On the other hand, a number of traditionally labeled medical disorders produce a broad range of psychological symptoms and are exquisitely sensitive to psychosocial influences. Families undergo a complex process of adaptation during which their response to stress and their fundamental beliefs about learning and parenting change. These beliefs endure and are difficult to alter. By examining the processes in a wide range of chronic conditions, this volume helps to identify the common, underlying processes of adaptation. The first three chapters concern the families' responses to disorders that are distinctly medical; the next three focus on families' responses to "grey zone" disorders or anomalies that appear early in life, minor physical anomalies, and communication handicaps; and one chapter focuses exclusively on schizophrenia. The last chapter reflects an effort to develop a model based on the experience of researchers with both psychiatric and medical illness.

Families Living with Chronic Illness and Disability
Families Living with Chronic Illness and Disability

Author: Paul W. Power

Publisher: Springer Publishing Company

Published: 2004-07-20

Total Pages: 308

ISBN-13: 9780826155818

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To help families manage an intense medical-related event, Power and Dell Orto propose that a family-oriented life and living perspective should be combined with a family intervention philosophy. Stressing acknowledgment of the adverse effects of the illness and an affirmation approach to family struggle and opportunities, the authors explore issues relevant to treatment, family adaptation, quality of life, and family survival. A unique feature of the text includes the organization of the chapters around thought-provoking personal statements followed by questions/experiential tasks designed to stimulate thought and discussion. This book is must reading for health and allied health professionals including physicians, nurses, rehabilitation counselors, social workers, psychologists, and family advocates and will serve as a useful textbook for professionals-in-training.

Handbook of Health Social Work
Handbook of Health Social Work

Author: Sarah Gehlert

Publisher: John Wiley & Sons

Published: 2006-03-20

Total Pages: 769

ISBN-13: 0471758884

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The Handbook of Health Social Work provides a comprehensive and evidence-based overview of contemporary social work practice in health care. Written from a wellness perspective, the chapters cover the spectrum of health social work settings with contributions from a wide range of experts. The resulting resource offers both a foundation for social work practice in health care and a guide for strategy, policy, and program development in proactive and actionable terms. Three sections present the material: The Foundations of Social Work in Health Care provides information that is basic and central to the operations of social workers in health care, including conceptual underpinnings; the development of the profession; the wide array of roles performed by social workers in health care settings; ethical issues and decision - making in a variety of arenas; public health and social work; health policy and social work; and the understanding of community factors in health social work. Health Social Work Practice: A Spectrum of Critical Considerations delves into critical practice issues such as theories of health behavior; assessment; effective communication with both clients and other members of health care teams; intersections between health and mental health; the effects of religion and spirituality on health care; family and health; sexuality in health care; and substance abuse. Health Social Work: Selected Areas of Practice presents a range of examples of social work practice, including settings that involve older adults; nephrology; oncology; chronic diseases such as diabetes, heart disease, and HIV/AIDS; genetics; end of life care; pain management and palliative care; and alternative treatments and traditional healers. The first book of its kind to unite the entire body of health social work knowledge, the Handbook of Health Social Work is a must-read for social work educators, administrators, students, and practitioners.

In the Shadow of Illness
In the Shadow of Illness

Author: Myra Bluebond-Langner

Publisher: Princeton University Press

Published: 2020-06-30

Total Pages: 321

ISBN-13: 0691214700

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A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.

Chronic Illness
Chronic Illness

Author: Ilene Morof Lubkin

Publisher: Jones & Bartlett Publishers

Published: 2013

Total Pages: 738

ISBN-13: 0763799661

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The newest edition of best-selling Chronic Illness continues to focus on the various aspects of chronic illness that influence both patients and their families. Topics include the sociological, psychological, ethical, organizational, and financial factors, as well as individual and system outcomes. This book is designed to teach students about the whole client or patient versus the physical status of the client with chronic illness. The study questions at the end of each chapter and the case studies help the students apply the information to real life. Evidence-based practice references are included in almost every chapter.

Helping Couples and Families Navigate Illness and Disability
Helping Couples and Families Navigate Illness and Disability

Author: John S. Rolland

Publisher: Guilford Publications

Published: 2018-04-20

Total Pages: 417

ISBN-13: 1462534953

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Couples and families face daunting challenges as they cope with serious illness and disability. This book gives clinicians a roadmap for helping affected individuals and their loved ones live well with a wide range of child, adult, and later-life conditions. John S. Rolland describes ways to intervene with emerging challenges over the course of long-term or life-threatening disorders. Using vivid case examples, he illustrates how clinicians can help families harness their strengths for positive adaptation and relational growth. Rolland's integrated systemic approach is useful for preventive screening, consultations, brief counseling, more intensive therapy, and multifamily groups, across health care settings and disciplines. This book significantly advances the clinical utility of Rolland?s earlier landmark volume, Families, Illness, and Disability.

Understanding Psychosocial Adjustment to Chronic Illness and Disability
Understanding Psychosocial Adjustment to Chronic Illness and Disability

Author: Fong Chan, PhD, CRC

Publisher: Springer Publishing Company

Published: 2009-06-16

Total Pages: 605

ISBN-13: 0826123872

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Rehabilitation practitioners face the difficult task of helping clients adjust to chronic illness or disability. This can be a long and trying process for both practitioner and client. With this handbook, however, practitioners and students can gain a wealth of insight into the critical issues clients face daily. This book presents the dominant theories, models, and evidence-based techniques necessary to help the psychosocial adjustment of chronically ill or disabled persons. Each chapter is written from an evidence-based practice (EBP) perspective, and explores how important issues (i.e., social stigma, social support, sexuality, family, depression, and substance abuse) affect persons adjusting to chronic illness and disability. Key features include: A review of psychopharmacological treatment options for depression, anxiety, and other disorders coinciding with rehabilitation The effect of rehabilitation on the family, including key family intervention strategies Strategies for using positive psychology and motivational interviewing in rehabilitation Multiculturalism and the effect of culture on the adjustment process Ancillary materials including an instructor's manual with a syllabus, examination items, PowerPoint presentation, and answers to class exercises By incorporating research-based knowledge into clinical rehabilitation practice, health care professionals can ensure that people with chronic illness and disability receive only the best treatment.

Coping with Chronic Illness and Disability
Coping with Chronic Illness and Disability

Author: Erin Martz

Publisher: Springer Science & Business Media

Published: 2007-09-23

Total Pages: 437

ISBN-13: 0387486704

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This book synthesizes the expanding literature on coping styles and strategies by analyzing how individuals with CID face challenges, find and use their strengths, and alter their environment to fit their life-changing realities. The book includes up-to-date information on coping with high-profile conditions, such as cancer, heart disease, diabetes, arthritis, spinal cord injuries, and traumatic brain injury, in-depth coverage of HIV/AIDS, chronic pain, and severe mental illness, and more.

Coping with Physical Illness
Coping with Physical Illness

Author: Rudolf H. Moos

Publisher: Springer Science & Business Media

Published: 2012-12-06

Total Pages: 431

ISBN-13: 1461590892

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This book discusses how human beings cope with serious physical ill ness and injury. A conceptual model for understanding the process of coping with the crisis of illness is provided, and basic adaptive tasks and types of coping skills are identified. The major portion of the book is organized around various types of physical illness. These physical illnesses, which almost all people face either in themselves or their family members, raise common relevant coping issues. The last few sections cover "the crisis of treatment," emphasizing the importance of unusual hospital environments and radical new medical treatments, of stresses on professional staff, and of issues related to death and the fear of dying. The material highlights the fact that people can successfully cope with life crises such as major ill ness and inj ury, rather than the fact that severe symptoms and/or breakdowns sometimes occur. The importance of support from professional care-givers, such as physicians, nurses, and social workers, and from family, friends, and other sources of help in the community, is emphasized. Many of the selections include case examples which serve to illustrate the material. Coping with Physical Illness has been broadly conceived to meet the needs of a diverse audience. There is substantial information about how human beings cope with illness and physical disability, but this material has never been collected in one place.

Families Caring for an Aging America
Families Caring for an Aging America

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2016-12-08

Total Pages: 367

ISBN-13: 0309448069

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Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.