In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
The demand for health information continues to increase, but the ability of health professionals to provide it clearly remains variable. The aim of this book is (1) to summarize and synthesize research on the selection and presentation of data pertinent to public health, and (2) to provide practical suggestions, based on this research summary and synthesis, on how scientists and other public health practitioners can better communicate data to the public, policy makers, and the press in typical real-world situations. Because communication is complex and no one approach works for all audiences, the authors emphasize how to communicate data "better" (and in some instances, contrast this with how to communicate data "worse"), rather than attempting a cookbook approach. The book contains a wealth of case studies and other examples to illustrate major points, and actual situations whenever possible. Key principles and recommendations are summarized at the end of each chapter. This book will stimulate interest among public health practitioners, scholars, and students to more seriously consider ways they can understand and improve communication about data and other types of scientific information with the public, policy makers, and the press. Improved data communication will increase the chances that evidence-based scientific findings can play a greater role in improving the public's health.
The demand for health information continues to increase, but the ability of health professionals to provide it clearly remains variable. The aim of this book is (1) to summarize and synthesize research on the selection and presentation of data pertinent to public health, and (2) to provide practical suggestions, based on this research summary and synthesis, on how scientists and other public health practitioners can better communicate data to the public, policy makers, and the press in typical real-world situations. Because communication is complex and no one approach works for all audiences, the authors emphasize how to communicate data "better" (and in some instances, contrast this with how to communicate data "worse"), rather than attempting a cookbook approach. The book contains a wealth of case studies and other examples to illustrate major points, and actual situations whenever possible. Key principles and recommendations are summarized at the end of each chapter. This book will stimulate interest among public health practitioners, scholars, and students to more seriously consider ways they can understand and improve communication about data and other types of scientific information with the public, policy makers, and the press. Improved data communication will increase the chances that evidence-based scientific findings can play a greater role in improving the public's health.
Written by an award-winning researcher and professor whose work straddles the fields of communication and healthcare, Talking About Health explores the importance of health communication in the 21st century, and how it affects us all. Organized around six key questions about health and communication: How ‘Normal’ am I? What are My ‘Risk’ Factors? Why Don’t We Get ‘Care’? Is the Public Good ‘Good’ for Me? Who Profits from My Health? and What’s Politics Got to Do with It? Provides readers with specific tools which which to better navigate the healthcare system Translates what we know about communication and health into useful guidelines for everyday practice Includes discussions of politics and healthcare, genetic testing, and alternative care The author's blog http://whyhealthcommunication.com/whc_blog/ focuses on why communicating about health can make a difference in our health and our quality of life
Designed for master’s level study, Public Health Communication: Critical Tools and Strategies will prepare new graduates for any entry level position in public health policy/advocacy, health communication, health promotion, social marketing, or community health education. Filled with practical examples, the book is also a valuable resource for those preparing for the CPH or CHES exams. Students will learn core concepts for planning a communication framework as well key strategies for educating the public about health issues including understanding and reporting science, communicating for policy and advocacy, and health literacy and numeracy. The book thoroughly explores classic theories of persuasion in communication such as Extended Parallel Process Model, Inoculation, Sensation Value, and Cognitive Value. The most current forms of digital/multimedia/interactive channels of communication are examined.
Recent research in health decision making has shown that many patients, even those with a college education, have difficulties grasping a host of numerical concepts, including percentages and probabilities. Yet, basic numeracy and graph literacy are essential for understanding information relevant to making decisions about health, such as the incidence and prevalence of different diseases, risk reductions from medical screenings and treatments, and risk increases from side effects of treatments and unhealthy behaviors. Patients who have problems understanding such numerical concepts are often prone to errors in risk perception and medical choices. Importantly, informed medical decision making, heavily reinforced these days by the legal requirement for informed consent, depends critically on communication of quantitative medical information. Meeting the challenge of effectively communicating medical information to patients with different levels of numeracy and graph literacy has become more important than ever. Transparent Communication of Health Risks describes a series of cross-cultural studies investigating how people in countries with different medical and educational systems understand numerical and graphical information, what they know about existing medical treatments and screenings, which presentation formats help them better understand the relevant information, and how they use the data to make medical decisions. Focusing on the careful measurement of necessary knowledge and skills, the book also includes validated numeracy and graph literacy scales in English, Spanish, and German. Some of the topics covered in the book are: numeracy and graph literacy for health; measuring risk comprehension in educated samples; communicating information about medical treatment and screening; reducing the effect of framed messages about health; the effect of individual differences on shared decision making; and transparent health information in the media. Transparent Communication of Health Risks emphasizes the importance and value of working toward the development of tailored risk communication interventions and clarifies the tasks ahead for health psychologists, public health professionals, pharmaceutical and medical education companies, medical physicists, and nurses.
This volume provides an essential roster of primary research methods as they apply to health communication inquiry. Editor Bryan B. Whaley brings together key health communication researchers to write about their primary methodological areas. Their chapters offer guidance and insights for a variety of approaches to answering research questions. The methods included here cover: Exploration and Description: interview/focus groups, case study, ethnography, and surveys; Examining Messages and Interpersonal Exchanges: narrative analysis, conversational analysis, analyzing physician-patient interactions, social network analysis, and content analysis; Causal Explication: experimental research, meta-analysis, and meta-synthesis; and Cultural, Population, and Critical Concerns: rhetorical methods and criticism, and methodological issues when investigating stigmatized populations, and groups with health disparities. Chapters cite or use examples from allied health areas -- nursing, public health, sociology, medicine -- to demonstrate the breadth of health communication studies. This work highlights the importance of methodology in health communication research in multiple contexts. Developed to provide a fundamental reference for investigating health communication, this volume will serve as an invaluable tool for researchers and students across the social science and health disciplines.
