Tells the stories of deaf and hearing-impaired children, discusses modern treatments, and compares speech, oral, and total communication approaches to the education of the deaf.
Weaving together lyrical history and personal memoir, Virdi powerfully examines society’s—and her own—perception of life as a deaf person in America. At the age of four, Jaipreet Virdi’s world went silent. A severe case of meningitis left her alive but deaf, suddenly treated differently by everyone. Her deafness downplayed by society and doctors, she struggled to “pass” as hearing for most of her life. Countless cures, treatments, and technologies led to dead ends. Never quite deaf enough for the Deaf community or quite hearing enough for the “normal” majority, Virdi was stuck in aural limbo for years. It wasn’t until her thirties, exasperated by problems with new digital hearing aids, that she began to actively assert her deafness and reexamine society’s—and her own—perception of life as a deaf person in America. Through lyrical history and personal memoir, Hearing Happiness raises pivotal questions about deafness in American society and the endless quest for a cure. Taking us from the 1860s up to the present, Virdi combs archives and museums to understand the long history of curious cures: ear trumpets, violet ray apparatuses, vibrating massagers, electrotherapy machines, airplane diving, bloodletting, skull hammering, and many more. Hundreds of procedures and products have promised grand miracles but always failed to deliver a universal cure—a harmful legacy that is still present in contemporary biomedicine. Blending Virdi’s own experiences together with her exploration into the fascinating history of deafness cures, Hearing Happiness is a powerful story that America needs to hear. Praise for Hearing Happiness “In part a critical memoir of her own life, this archival tour de force centers on d/Deafness, and, specifically, the obsessive search for a “cure”. . . . This survey of cure and its politics, framed by disability studies, allows readers—either for the first time or as a stunning example in the field—to think about how notions of remediation are leveraged against the most vulnerable.” —Public Books “Engaging. . . . A sweeping chronology of human deafness fortified with the author’s personal struggles and triumphs.” —Kirkus Reviews “Part memoir, part historical monograph, Virdi’s Hearing Happiness breaks the mold for academic press publications.” —Publishers Weekly “In her insightful book, Virdi probes how society perceives deafness and challenges the idea that a disability is a deficit. . . . [She] powerfully demonstrates how cures for deafness pressure individuals to change, to “be better.” —Washington Post
A mother whose child has had a cochlear implant tells Laura Mauldin why enrollment in the sign language program at her daughter’s school is plummeting: “The majority of parents want their kids to talk.” Some parents, however, feel very differently, because “curing” deafness with cochlear implants is uncertain, difficult, and freighted with judgment about what is normal, acceptable, and right. Made to Hear sensitively and thoroughly considers the structure and culture of the systems we have built to make deaf children hear. Based on accounts of and interviews with families who adopt the cochlear implant for their deaf children, this book describes the experiences of mothers as they navigate the health care system, their interactions with the professionals who work with them, and the influence of neuroscience on the process. Though Mauldin explains the politics surrounding the issue, her focus is not on the controversy of whether to have a cochlear implant but on the long-term, multiyear undertaking of implantation. Her study provides a nuanced view of a social context in which science, technology, and medicine are trusted to vanquish disability—and in which mothers are expected to use these tools. Made to Hear reveals that implantation has the central goal of controlling the development of the deaf child’s brain by boosting synapses for spoken language and inhibiting those for sign language, placing the politics of neuroscience front and center. Examining the consequences of cochlear implant technology for professionals and parents of deaf children, Made to Hear shows how certain neuroscientific claims about neuroplasticity, deafness, and language are deployed to encourage compliance with medical technology.
For twenty-two years, Katherine Bouton had a secret that grew harder to keep every day. An editor at The New York Times, at daily editorial meetings she couldn't hear what her colleagues were saying. She had gone profoundly deaf in her left ear; her right was getting worse. As she once put it, she was "the kind of person who might have used an ear trumpet in the nineteenth century." Audiologists agree that we're experiencing a national epidemic of hearing impairment. At present, 50 million Americans suffer some degree of hearing loss—17 percent of the population. And hearing loss is not exclusively a product of growing old. The usual onset is between the ages of nineteen and forty-four, and in many cases the cause is unknown. Shouting Won't Help is a deftly written, deeply felt look at a widespread and misunderstood phenomenon. In the style of Jerome Groopman and Atul Gawande, and using her experience as a guide, Bouton examines the problem personally, psychologically, and physiologically. She speaks with doctors, audiologists, and neurobiologists, and with a variety of people afflicted with midlife hearing loss, braiding their stories with her own to illuminate the startling effects of the condition. The result is a surprisingly engaging account of what it's like to live with an invisible disability—and a robust prescription for our nation's increasing problem with deafness. A Kirkus Reviews Best Nonfiction Book of 2013
Introduction to American Deaf Culture provides a fresh perspective on what it means to be Deaf in contemporary hearing society. The book offers an overview of Deaf art, literature, history, and humor, and touches on political, social and cultural themes.
From the seventeenth century to the early years of the twentieth, the population of Martha’s Vineyard manifested an extremely high rate of profound hereditary deafness. In stark contrast to the experience of most deaf people in our own society, the Vineyarders who were born deaf were so thoroughly integrated into the daily life of the community that they were not seen—and did not see themselves—as handicapped or as a group apart. Deaf people were included in all aspects of life, such as town politics, jobs, church affairs, and social life. How was this possible? On the Vineyard, hearing and deaf islanders alike grew up speaking sign language. This unique sociolinguistic adaptation meant that the usual barriers to communication between the hearing and the deaf, which so isolate many deaf people today, did not exist.