Dr. Robert A. Naseef, a psychologist and father of a son with autism, details the daily blessings and challenges of raising a child with disabilities, offering sensitive, real-world advice along the way.
"Carolyn is in a wheelchair, but she doesn't let that stop her! She can do almost everything the other kids can, even if sometimes she has to do it a little differently"--
Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.
Meet the learning needs and preferences of all students using Children with Disabilities: Reading and Writing the Four-Blocks(R) Way for students in grades 1–3. This 144-page book provides a glimpse into an inclusion special-education classroom that uses the Four-Blocks(R) Literacy Model. This wonderful collection of ideas, strategies, and resources includes information on Self-Selected Reading, Guided Reading, Writing, and Working with Words. It also includes strategies for reading and writing success in special-education classrooms, variations for students with disabilities, teacher's checklists, IEP goal suggestions, examples of assistive technology, and answers to commonly asked questions. The book supports the Four-Blocks(R) Literacy Model and provides a list of children's literature that can be used in lessons.
... A book of information and ideas for all who are concerned about the well-being of disabled children. It is especially for those who live in rural areas where resources are limited ... Written by [the author] with the help of disabled persons and pioneers in rehabilitation in many countries, this book ... gives a wealth of clear, simple, but detailed information concerning most common disabilities of children: many different physical disabilities, blindness, deafness, fits, behavior problems, and developmental delay. It gives suggestions for simplified rehabilitation, low-cost aids, and ways to help disabled children find a role and be accepted in the community. Above all, the book helps us to realize that most of the answers for meeting these children's needs can be found within the community, the family, and in the children themselves. It discusses ways of starting small community rehabilitation centers and workshops run by disabled persons or the families of disabled children.-Back cover.
Introduction to the core concepts of teaching and supporting children with disabilities alongside their peers will help teachers ensure that all children meet their potential.
"I simply could not put this book down! It is very well written and makes me feel like I am sitting in Press and Gena's living room talking about their experiences. I love the Chapter Take Aways and the stories from other families. Readers will feel inspired with new direction. I only wish this was available years ago as our family began our journey caring for our son with autism." Didi Zaryczny Chairperson, disAbility Resource Network "As a parent of a disabled child, I find this book to be an immensely valuable resource. The Barnhills offer practical help for navigating the emotional and relational pitfalls common to those in our situation. Their advice is concrete, realistic, and encouraging." Andrew Dunks Pastor and father of a teenage son with brittle-bone disease
This book introduces current theories and research on disability, and builds on the premise that disability has to be understood from the dialectical dynamics of biology, psychology, and culture over time. Based on the newest empirical research on children with disabilities, the book overcomes the limitations of the medical and social models of disability by arguing for a dialectical biopsychosocial model. The proposed model builds on Vygotsky’s cultural-historical ideas of developmental incongruence, implying that the disability emerges from the misfit between individual abilities and the cultural-historical activity settings in which the child with impairments participates. The book is a theoretical contribution to an updated understanding of disability from a psychological and educational perspective. It focuses on the first years of the life of the child with impairment, and travels through infancy, toddler, preschool and early school age, to track the developmental trajectories of disability through the dialectical processes of cultural, social, individual, and biological processes. It discusses a number of themes that are relevant for the early development and support for children with various types and degrees of disability through the lens of Vygotsky’s cultural-historical developmental theories. Some of the themes discussed are inclusion, mental health, communication, aids and family life.
With even more practical information and direct answers to families' questions, the second edition of this easy-to-read guide is a proven resource for helping parents meet the demands of raising a child with a disability. You'll get updated, expert advice on a wide range of medical and educational issues as well as detailed coverage of the daily and long-term care requirements of specific disabilities, including mental retardation autism hearing impairment Down syndrome visual impairment communication disorders seizure disorders spina bifida ADHD cerebral palsy genetic syndromes New to this edition are chapters exploring nutrition, dental care, legal rights and benefits, and the transition to adulthood, as well as information on development and commonly used medications. Answers to frequently asked questions follow the chapters, addressing common parent concerns like sleep, behavior, medication, and potential complications.