Salt in My Soul

Salt in My Soul

Author: Mallory Smith

Publisher: Random House

Published: 2019-03-12

Total Pages: 336

ISBN-13: 1984855433

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The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.


Cystic Fibrosis

Cystic Fibrosis

Author: Stephanie Duggins Davis

Publisher: Springer Nature

Published: 2020-05-21

Total Pages: 525

ISBN-13: 3030423824

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This book provides a comprehensive overview of the multisystem disease, cystic fibrosis, for both pediatric and adult patients. Written by experts in the field, the text outlines the progressive nature of CF as well as the impact of this autosomal recessive disease on the respiratory, gastrointestinal, endocrine, rheumatologic, and renal systems, as well as the patient’s mental health. The book begins with a chapter describing the history of cystic fibrosis and how the face of this life-shortening disease has changed over the past several decades. The following chapters elucidate the pathophysiology of how cystic fibrosis impacts each organ system. Current management and therapeutics are detailed with step-by-step guidelines for clinicians. This book is unique in that it highlights the entire person, not just the respiratory system, with detailed inclusion of the patient perspectives throughout, informing practice standards and considerations. This is an ideal guide for pediatric and adult physicians who care for patients with cystic fibrosis, as well as respiratory therapists, physical therapists, nurses, nutritionists, and pharmacists who care for these patients.


Alex

Alex

Author: Frank Deford

Publisher: Open Road Media

Published: 2015-02-24

Total Pages: 115

ISBN-13: 1504007336

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A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal. Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girl—going to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight. Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughter’s birth. Deford kept a journal of Alex’s courageous stand against the disease, documenting his family’s struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal. Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying “I love you” so her brother could listen to her whenever he wanted, and as heartrending as the young girl’s tragic, dawning realization of her own very tenuous mortality, and her parents’ difficulty in trying to explain why. Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl.


Breath

Breath

Author: Donna Jo Napoli

Publisher: Simon and Schuster

Published: 2010-05-11

Total Pages: 235

ISBN-13: 1439132224

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Salz is a boy afflicted with cystic fibrosis -- though in the Middle Ages in Saxony no one can identify it as such. Instead he is an outcast, living with his unfeeling father and superstitious brothers in a hovel outside Hameln. His grandmother has kept Salz alive by having him avoid the mead and beer commonly drunk by all and by teaching him how to clear his lungs. When the townsfolk of Hameln are affected by a mold that grows on the hops -- poisoning their mead and beer -- Salz is one of the few who are unaffected. The mold's effect is hallucinogenic, and soon Hameln is in the grips of a plague of madness, followed by a plague of rats. It is only Salz who can proclaim the truth -- although it might cost him his life.


Caesar's Last Breath

Caesar's Last Breath

Author: Sam Kean

Publisher: Little, Brown

Published: 2017-07-18

Total Pages: 355

ISBN-13: 0316381632

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The Guardian's Best Science Book of 2017: the fascinating science and history of the air we breathe. It's invisible. It's ever-present. Without it, you would die in minutes. And it has an epic story to tell. In Caesar's Last Breath, New York Times bestselling author Sam Kean takes us on a journey through the periodic table, around the globe, and across time to tell the story of the air we breathe, which, it turns out, is also the story of earth and our existence on it. With every breath, you literally inhale the history of the world. On the ides of March, 44 BC, Julius Caesar died of stab wounds on the Senate floor, but the story of his last breath is still unfolding; in fact, you're probably inhaling some of it now. Of the sextillions of molecules entering or leaving your lungs at this moment, some might well bear traces of Cleopatra's perfumes, German mustard gas, particles exhaled by dinosaurs or emitted by atomic bombs, even remnants of stardust from the universe's creation. Tracing the origins and ingredients of our atmosphere, Kean reveals how the alchemy of air reshaped our continents, steered human progress, powered revolutions, and continues to influence everything we do. Along the way, we'll swim with radioactive pigs, witness the most important chemical reactions humans have discovered, and join the crowd at the Moulin Rouge for some of the crudest performance art of all time. Lively, witty, and filled with the astounding science of ordinary life, Caesar's Last Breath illuminates the science stories swirling around us every second.


Breath

Breath

Author: James Nestor

Publisher: Penguin

Published: 2020-05-26

Total Pages: 306

ISBN-13: 0735213631

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A New York Times Bestseller A Washington Post Notable Nonfiction Book of 2020 Named a Best Book of 2020 by NPR “A fascinating scientific, cultural, spiritual and evolutionary history of the way humans breathe—and how we’ve all been doing it wrong for a long, long time.” —Elizabeth Gilbert, author of Big Magic and Eat Pray Love No matter what you eat, how much you exercise, how skinny or young or wise you are, none of it matters if you’re not breathing properly. There is nothing more essential to our health and well-being than breathing: take air in, let it out, repeat twenty-five thousand times a day. Yet, as a species, humans have lost the ability to breathe correctly, with grave consequences. Journalist James Nestor travels the world to figure out what went wrong and how to fix it. The answers aren’t found in pulmonology labs, as we might expect, but in the muddy digs of ancient burial sites, secret Soviet facilities, New Jersey choir schools, and the smoggy streets of São Paulo. Nestor tracks down men and women exploring the hidden science behind ancient breathing practices like Pranayama, Sudarshan Kriya, and Tummo and teams up with pulmonary tinkerers to scientifically test long-held beliefs about how we breathe. Modern research is showing us that making even slight adjustments to the way we inhale and exhale can jump-start athletic performance; rejuvenate internal organs; halt snoring, asthma, and autoimmune disease; and even straighten scoliotic spines. None of this should be possible, and yet it is. Drawing on thousands of years of medical texts and recent cutting-edge studies in pulmonology, psychology, biochemistry, and human physiology, Breath turns the conventional wisdom of what we thought we knew about our most basic biological function on its head. You will never breathe the same again.


Mallory's 65 Roses

Mallory's 65 Roses

Author: Diane Shader Smith

Publisher:

Published: 1997-01-01

Total Pages: 24

ISBN-13: 9780970035301

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Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."


Salt to the Sea

Salt to the Sea

Author: Ruta Sepetys

Publisher: Penguin

Published: 2017-08-01

Total Pages: 450

ISBN-13: 0142423629

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#1 New York Times bestseller and winner of the Carnegie Medal! "A superlative novel . . . masterfully crafted."--The Wall Street Journal Based on "the forgotten tragedy that was six times deadlier than the Titanic."--Time Winter 1945. WWII. Four refugees. Four stories. Each one born of a different homeland; each one hunted, and haunted, by tragedy, lies, war. As thousands desperately flock to the coast in the midst of a Soviet advance, four paths converge, vying for passage aboard the Wilhelm Gustloff, a ship that promises safety and freedom. But not all promises can be kept . . . This paperback edition includes book club questions and exclusive interviews with Wilhelm Gustloff survivors and experts.


Sweet Salt Air

Sweet Salt Air

Author: Barbara Delinsky

Publisher: St. Martin's Press

Published: 2013-06-18

Total Pages: 460

ISBN-13: 1250020387

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On Quinnipeague, hearts open under the summer stars and secrets float in the Sweet Salt Air... Charlotte and Nicole were once the best of friends, spending summers together in Nicole's coastal island house off of Maine. But many years, and many secrets, have kept the women apart. A successful travel writer, single Charlotte lives on the road, while Nicole, a food blogger, keeps house in Philadelphia with her surgeon-husband, Julian. When Nicole is commissioned to write a book about island food, she invites her old friend Charlotte back to Quinnipeague, for a final summer, to help. Outgoing and passionate, Charlotte has a gift for talking to people and making friends, and Nicole could use her expertise for interviews with locals. Missing a genuine connection, Charlotte agrees. But what both women don't know is that they are each holding something back that may change their lives forever. For Nicole, what comes to light could destroy her marriage, but it could also save her husband. For Charlotte, the truth could cost her Nicole's friendship, but could also free her to love again. And her chance may lie with a reclusive local man, with a heart to soothe and troubles of his own. Bestselling author and master storyteller Barbara Delinsky invites you come away to Quinnipeague...


Salt

Salt

Author: Hannah Moskowitz

Publisher: Chronicle Books

Published: 2018-10-30

Total Pages: 264

ISBN-13: 1452175713

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Roaming the Mediterranean Sea on sailboats and hunting down monsters is the only life seventeen-year-old Indi and his siblings have ever known. He never loved it, but now that his parents are gone—vanished during a hunt three months ago—it's harder and harder to fight his desire to escape. He's constantly battling his ferocious love for his siblings and the temptation of his parents' journal, which contains directions to a treasure that their parents hinted at. Maybe it's something valuable enough to distract Beleza from her mission to hunt down the monster that killed their parents. Something that would take the little kids away from the sea that's turning Oscar into a pirate and wasting Zulu's brilliant six-year-old mind. Something that could give Indi a normal life. Acclaimed author Hannah Moskowitz has reinvented yet another genre in this ridiculously propulsive epic that is part seafaring epic, part coming-of-age tale, and a totally warm-hearted story of a boy who loves his family and just wants to figure his own self out—if only the fate of the world weren't on his shoulders.