'I just wish I had armfuls of time.' These are the poignant words of a four year old facing a life-threatening illness. Armfuls of Time eloquently portrays the psychological experience of such children, who are irreversibly changed from the moment of diagnosis. Barbara M. Sourkes, Ph.D. describes how she works with these children, using drawings, soft toys and dolls, stories and real medical objects, to allow them to communicate their feelings about the treatment they undergo, their relationship with their families, their experience of the illness and living with the threat of loss. Making extensive use of the words of children, offering astute interpretations and sound practical advice, this is a book that will be welcomed by all those concerned with the care of children with life-threatening illnesses.
The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.
Each year more than 6,000 children and teens in the United States are diagnosed with a solid tumor (e.g., kidney tumor, liver tumor, neuroblastoma, retinoblastoma, or sarcoma). The illnesses and their treatments can have devastating effects on family, friends, schoolmates, and the larger community. This newly updated edition contains essential information families need during this difficult time. It includes descriptions of the newest treatments, such as computer-assisted surgery, tandem stem cell transplants, and targeted therapies as well as practical advice about how to cope with diagnosis, medical procedures, hospitalization, school, and finances. Woven throughout the text are true stories–practical, poignant, moving, funny–from more than 100 children with cancer, their siblings, and their parents.
Each year about 4,000 children and teens in the United States are diagnosed with a brain or spinal cord tumor. The illness and its treatment can have devastating effects on family, friends, schoolmates, and the larger community. This newly updated edition contains essential information families need during this difficult time. It includes descriptions of the newest treatments, such as computer-assisted surgery, stem cell transplants, and targeted therapies as well as practical advice about how to cope with diagnosis, medical procedures, hospitalization, school, and finances. Woven throughout the text are true stories&–&–practical, poignant, moving, funny&–&–from more than 100 children with cancer, their siblings, and their parents. The book, reviewed by renowned experts in childhood cancer, also contains a cancer survivor's treatment record.
For nearly three decades, Sandra Bertman has been exploring the power of the arts and belief--symbols, metaphors, stories--to alleviate psychological and spiritual pain not only of patients, grieving family members, and affected communities but also of the nurses, clergy and physicians who minister to them. Her training sessions and clinical interventions are based on the premise that bringing out the creative potential inherent in each of us is just as relevant-- perhaps more so--as psychiatric theory and treatment models since grief and loss are an integral part of life. Thus, this work was compiled to illuminate the many facets that link grief, counseling, and creativity. The multiple strategies suggested in these essays will help practitioners enlarge their repertoire of hands-on skills and foster introspection and empathy in readers.
An omnibus collection of novels and short stories by a late writer (1905-1990) whose witty tales of adultery found few publishers in their day. Typical is the novel, An Armful of Warm Girl, written in the 1950s and dealing with the many affairs of an upper-class roue. No publisher would accept the manuscript which took nearly 20 years to sell.
This second edition of the most complete parent guide available features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, financial issues, and communication. Woven among the medical details and the practical advice are the voices of parents and children who have lived with cancer and its treatments. As many parents know, advice from "veteran" parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel improves the quality of life for the whole family. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Parents who read this book will find understandable medical infomation, obtain advice that eases their daily life, and feel empowered to be strong advocates for their child. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record.
