Amyotrophic Lateral Sclerosis ___An Amazing Love Story

Amyotrophic Lateral Sclerosis ___An Amazing Love Story

Author: Beverly Jacobson

Publisher: Xlibris Corporation

Published: 2012-03-29

Total Pages: 112

ISBN-13: 146918527X

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Amyotrophic Lateral Sclerosis ___ An Amazing Love Story is the inspiring true story of Jerry and Peggy Weygandt who found their reason for living in a sentence of death. Together, they raised his four and her two sons and formed a solid marriage and business partnership. An electrician by trade, Jerry saw life as going his way, until he began to lose muscle strength. He became unable to raise his arms, use his legs to support his body or hold up his head. In 2003, Jerry Weygandt was diagnosed with ALS, also known as Lou Gehrigs disease. Since then, he and his devoted wife Peggy have seen his terminal illness as their mission to witness to Gods presence and love in the midst of hardship. Their goal is to inspire others to tenaciously live life to the fullest possible and to raise awareness of the struggles encountered by persons handicapped with a life threatening illness. Beverly Jacobson


ALS Saved My Life... Until It Didn't

ALS Saved My Life... Until It Didn't

Author: Dr. Jenni Kleinman Berebitsky

Publisher:

Published: 2018-03-18

Total Pages: 278

ISBN-13: 9780692066690

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The author shares her insights and perspectives on living with ALS, or Lou Gehrig's disease, sharing both her thoughts on life and happiness as well as practical ideas for daily living with this progressive neuromuscular disease.


Navigating Life with Amyotrophic Lateral Sclerosis

Navigating Life with Amyotrophic Lateral Sclerosis

Author: Mark B. Bromberg

Publisher: Oxford University Press

Published: 2017

Total Pages: 281

ISBN-13: 0190241624

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Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.


The Last Leaves Falling

The Last Leaves Falling

Author: Fox Benwell

Publisher: Simon and Schuster

Published: 2015

Total Pages: 17

ISBN-13: 1481430661

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In Japan, teenaged Abe Sora, who is afflicted with "Lou Gehrig's Disease," finds friends online and elicits their help to end his suffering.


Until I Say Good-Bye

Until I Say Good-Bye

Author: Bret Witter

Publisher: Hachette UK

Published: 2013-03-14

Total Pages: 346

ISBN-13: 1444762214

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THE NEW YORK TIMES BESTSELLER What would you do with one last year? Susan Spencer-Wendel was determined to laugh instead of cry. In June 2011, Susan Spencer-Wendel learned she had amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - an irreversible condition that systematically destroys the nerves that power the muscles. She was 44-years-old, with three young children, and she had only one year of health remaining. She decided to live that year with joy. She left her job as a journalist and spent time with her family. She built a meeting place for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She went to the beach with her sons and to Kleinfeld's bridal shop in New York City with her teenage daughter, Marina, for a glimpse of the wedding she would never attend. She also wrote this book. No longer able to walk or even lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working. And yet Until I Say Good-Bye is not angry or bitter. It is sad in parts - how could it not be? - but it is filled with Susan's optimism, joie de vivre and sens of humour. It is a book that, like Susan, will make everyone smile. From a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is Susan Spencer-Wendel's unforgettable gift to her loved ones and to us: a record of their final experiences together and a reminder that every day is better when it is lived with joy.


We Know How This Ends

We Know How This Ends

Author: Bruce H. Kramer

Publisher: U of Minnesota Press

Published: 2015-04-01

Total Pages: 215

ISBN-13: 1452945195

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Nautilus Book Awards — Silver Award Winner 2010 had been a very good year for Bruce H. Kramer. But what began as a floppy foot and leg weakness led to a shattering diagnosis: he had amyotrophic lateral sclerosis. ALS is a cruel, unrelenting neurodegenerative disease in which the body’s muscles slowly weaken, including those used to move, swallow, talk, and ultimately breathe. There is no cure: ALS is a death sentence. When death is a constant companion, sitting too closely beside you at the dinner table, coloring your thoughts and feelings and words, your outlook on life is utterly transformed. The perspective and insights offered in We Know How This Ends reveal this daily reality and inspire a way forward for anyone who has suffered major loss and for anyone who surely will. Rather than wallowing in sadness and bitterness, anger and denial, Kramer accepted the crushing diagnosis. The educator and musician recognized that if he wanted a meaningful life, then embracing his imminent death was his only viable option. His decision was the foundation for profound, personal reflection and growth, even as his body weakened, and inspired him to share the lessons he was learning from ALS about how to live as fully as possible, even in the midst of devastating grief. At the time Kramer was diagnosed, broadcast journalist Cathy Wurzer was struggling with her own losses, especially her father’s slow descent into the bewildering world of dementia. Mutual friends put this unlikely pair—journalist and educator—together, and the serendipitous result has been a series of remarkable broadcast conversations, a deep friendship, and now this book. Written with wisdom, genuine humor, and down-to-earth observations, We Know How This Ends is far more than a memoir. It is a dignified, courageous, and unflinching look at how acceptance of loss and inevitable death can lead us all to a more meaningful and fulfilling life.


Tuesdays with Morrie

Tuesdays with Morrie

Author: Mitch Albom

Publisher: Crown

Published: 2007-06-29

Total Pages: 226

ISBN-13: 0307414094

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#1 NEW YORK TIMES BESTSELLER • A special 25th anniversary edition of the beloved book that has changed millions of lives with the story of an unforgettable friendship, the timeless wisdom of older generations, and healing lessons on loss and grief—featuring a new afterword by the author “A wonderful book, a story of the heart told by a writer with soul.”—Los Angeles Times “The most important thing in life is to learn how to give out love, and to let it come in.” Maybe it was a grandparent, or a teacher, or a colleague. Someone older, patient and wise, who understood you when you were young and searching, helped you see the world as a more profound place, gave you sound advice to help you make your way through it. For Mitch Albom, that person was his college professor Morrie Schwartz. Maybe, like Mitch, you lost track of this mentor as you made your way, and the insights faded, and the world seemed colder. Wouldn’t you like to see that person again, ask the bigger questions that still haunt you, receive wisdom for your busy life today the way you once did when you were younger? Mitch Albom had that second chance. He rediscovered Morrie in the last months of the older man’s life. Knowing he was dying, Morrie visited with Mitch in his study every Tuesday, just as they used to back in college. Their rekindled relationship turned into one final “class”: lessons in how to live. “The truth is, Mitch,” he said, “once you learn how to die, you learn how to live.” Tuesdays with Morrie is a magical chronicle of their time together, through which Mitch shares Morrie’s lasting gift with the world.


Kickin' ALS

Kickin' ALS

Author: Carrey Dewey

Publisher:

Published: 2019-10

Total Pages:

ISBN-13: 9781941953877

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Carrey Dewey and her husband, Eric, worked hard to build their dream life: a strong marriage, three incredible kids, and a beautiful home. It all came crashing down when Carrey was diagnosed at age 42 with amyotrophic lateral sclerosis (ALS) - a disease that had no treatment or cure, a disease that is 100 percent fatal. Her doctor told her, "Get your paperwork in order and go make memories." But Carrey, a smart, courageous, and often very funny woman, was determined to do more - to spend what life she had left advocating for ALS research and educating people about the disease.Kickin' ALS is a compilation of Carrey's personal Facebook posts, written from shortly after her diagnosis in June 2014 until just before her death in May 2018. It is a powerful and poignant chronicle of one woman's experience with the disease made famous through the Ice Bucket Challenge.More than 5,000 people in the United States are diagnosed with ALS each year, according to the ALS Association, and it is estimated that at least 16,000 Americans may be living with ALS at any given time.Proceeds from the sale of this book will be donated to organizations supporting ALS research and education, as well as ALS patients and their families.


No Pressure, No Diamonds

No Pressure, No Diamonds

Author: Teri A Dillion

Publisher:

Published: 2020-10-19

Total Pages: 340

ISBN-13: 9780578736884

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In this intimate memoir on terminal illness, psychotherapist Teri A. Dillion asks if the most brilliant jewels of healing could be found in what we lovingly carve out of life's roughest blows.